I'm so sorry you're sick & have had to endure all of this, Butterflake! I have no words of wisdom, but I'm sending hugs, love, & prayers your way!...
Hi, all! It's been a very long time since I've posted, but I hope everyone is hanging in there. I have a very personal question for my fellow female lupies. I had what seemed like a normal period,...
Great! Thank u all! :)...
Thank u guys so much for the info! Now my next question - is Medicare pretty good about covering stuff?...
Thanks for the info! This may be a stupid question, but if I was approved for disability, would I still need insurance through my husband, or does that cover insurance as well??...
Hey everybody!I was just curious if anyone has any advice or thoughts on disability? I've never applied before, but my husband's supervisor at work suggested we look into it because I cannot work...
Yes, unfortunately some are very expensive, especially the cellcept. Thankfully prednisone is dirt cheap though. I had problems getting my insurance company to pay for Cellcept. If your lucky though...
I know how that feels & I'm sorry you have to go through this. I hope things start to get better for you very soon!...
Also, it sounds like you have been very stressed out lately, which I've found will trigger that....
I used to have really thick hair when I was younger, but ever since my lupus diagnosis it has gotten MUCH thinner, I keep my hair short now so that it looks a little thicker, because the longer I let...
I'm so sorry Joy! The nephrologist will probably want more urine & blood. If things look serious, he/she may want you to have a kidney biopsy to see what exactly they are dealing with. (I have had 3...
I'm so sorry you are having such a rough time! I think we can all (unfortunately)identify with being sick & tired of being sick & tired. Thank God for docs like yours & mine though! Good luck with...
I have lupus nephritis, and this is also my second bout with it. I was first diagnosed with it about 3 years after my lupus diagnosis. I had swelling, blood & protein in my urine, and have had...
Thank you all for your input. It's nice to know that I'm not alone! I will have to mention this to my rheumy next month & see if he can give me something to help. I was talking to my mom about this...
Hi everyone! Last time I posted, I was having problems with my blood pressure. Thankfully, it is starting to get better (for the most part) since I quit taking CellCept & have drastically...
Hey everyone! My doctors are considering switching me from CellCept to Imuran. Just wondering if anyone else has taken Imuran & what kind of experience you may have had on this med? Any input or...
Also, I have tried anti-anxiety meds before, and they also raised my bp....
Thanks for the advice everyone! I gave the meditation a shot & it did help to relax me a bit. To answer some of your questions:I have tapered down from 60 mg of prednisone to 25 mg. I am on...
Amy, I was just reading your thread & wanted to let you know how wonderful I think it is that you have such a great attitude! I also have lupus nephritis, although not nearly as severe as yours,...
Hi everyone! It has been awhile since I have been on here, but I've been having some issues lately, and the advice & caring comments that I have received on this forum in the past have been...
First of all, I would just like to thank Butterflake for your very generous offer to make my bouquet. That is so sweet of you!!!! I'd also like to thank everyone else for your posts & advice. I...
I am so sorry for your loss. You & your loved ones are in my thoughts & prayers!...
Hi Misty! You should DEFINITELY see ur rheumy or go to the ER! I don't want to scare you, but a few years ago I had the same symptoms u r describing & it ended up being congestive heart failure. Even...
Hi everyone! I haven't posted on here for awhile, but considering it seems like I only post when something goes wrong, I guess I should be thankful for that! Well here is my situation: The past week...
Thank you, suetoo! I agree with you, family has always been important to me. I've wanted babies since I was old enough to play with baby dolls, so I know I have to have children, whether they are...
Hi everyone! Its been quite awhile since I've been on the forum, so I would first like to say that I hope everyone is doing well, or as well as is possible. Anyway, here is my situation. I am 25...
Hi Melissa! Amy is right on the nose with her description of the kidney biopsy. I was really nervous as well, but it was really no big deal & over in no time. I was put on CellCept before my biopsy...
Hi Lynnwood. My body temp has always been around 97, even before I started taking plaquenil. My rheumatologist says this is common with lupus patients. The sucky part is that most drs dont think...
Hi Aimsgirl. I know the idea of a kidney biopsy is very scarey. I had one about 2 years ago, and I was so nervous! I wish I would've known about this site before that so that I could ask advice like...
The past couple of days I have been having sharp pains on my lower left side. It seems to move a little from my abdomen to my back, but it is always on the left side. It hurts the worst when I take...
Haha!! Well, it was interesting to read everyone's opinion of my name. Thanx for the laughs! I'm glad I shared that little tidbit with ya!...
Thanks guys! I went to my doc yesterday and he prescribed me zovirax. Haven't tried it yet because I have to get the rx filled. So will we see! Thanks for all the advice!...
My mom is my rock. She is always there for me and very supportive. We are very close, and therefore share a lot with one another. I have talked to her a lot about this site, and the wonderful people...
Hi Jen! I'm sorry you are having a rough time right now. That is pretty crappy that it has happened right before the holidays. To answer your questions, 1- Do you take many sick days off of work? How...
Ok, this is similar to Ginny's post, but not quite the same thing. Not only do I get dry, chapped lips, but I have a real hard time with cold sores on my lips. Especially this time of year for some...
Lol! You guys are great. Actually, just wanted to let you know that they do sell bag balm at fine retailers, such as WalMart. I have never used it on my lips, but it works wonderfully for chapped...
Hi Superwoman. I can relate to your sadness and anger. These diseases have a way of doing that to you. I am 24 years old, and I was 18 when all my trouble started. I am the total opposite of you...
Thanx for letting us know how Barb is doing. Let her know we are all thinking about her!!!...
Thank you both for the info and advice. I also tend to chicken out or forget to mention certain things to my doc. I'll be sure tolet you all know how the appt goes. Thanks again!!...
Thanx so much Rosie! I was actually going to buy some tylenol PM, but since I already have some Benadryl, I will just try that! Thanx for the savings!...
Thank you so much! I really needed to hear that. I didn't get any sleep last night because of this. It's like the more you try to relax, the worse it gets. I'm sorry you all are experiencing the same...
Thanks for your replies and advice guys. It's nice to know that I'm not alone! I've always been an overly-emotional person, but this is getting to the point where it is interfearing with my everyday...
Thanks RedRose! I actually think I had a panic attack awhile back. I woke up in the middle of the night and felt like I couldn't breathe. My boyfriend (who I live with) asked me if I needed to go to...
Hi everybody! I hope everyone is doing as well as possible. I have read a few posts this morning to catch up, and I want all of those who aren't doing so well to know that I am thinking about you and...
I will be thinking about you and your daughter. I pray she makes a speedy recovery and that you feel better soon as well. Hopefully once the anxiety over her surgery has passed and she is doing...
Thank you for your advice. I actually have been tapering off of pred for the past two years. I started at 60mg and slowly tapered to 2.5mg and then they took me off completely. I have an appointment...
Hi Keo! I'm sorry, I don't have any children yet so I don't have any answers for you, but I'm very interested in this topic. I am one of those girls who has dreamed of being a mommy for as long as I...
Hey everybody! Seems like its been so long since I've been here. Anyway, My question today is has anyone here ever experienced withdrawal symptoms from prednisone? I stopped taking pred about a week...
Hey, just wondering how I can get my hands on Judy's book? I'm very interested to read it!...
Lately I have been using Arbonne cover up, and it seems to hid the dark circles and the rash better than anything so far....