mysptball, there appears to be some really good advice at this link for how to best approach the subject of trying LDN with your doctor http://www.gazorpa.com/PatientGuide.html I hope it might be...
The Italian study you allude to is mentioned in the first link in my post dated 8/18. In general, it seems to work for some and not others, based on what little I've read about it so far. Since it's...
Barb, here are some references to current reports I have found: http://www.lowdosenaltrexone.org/ldn_latest_news.htm This is a Feb. 2007 article, but reports two patients with positive outcomes...
Gretchen, sorry if I overstepped my bounds. I post and read at the lupus forum on behalf of my sister (thus, my screen name of Sister Sister) who has been too sick to do so for herself. The recent...
Rhonda, no need to apologize!! And thanks for activating the links. : ) I hope that someone may find them to be helpful...or at least encouraging as something to look forward to in, hopefully, the...
Video, text and comments from ABC affiliate in PA, May 21, 2008 (This one explains the pharmaceutical connection to the delay in studies):...
Peg, our replies have crossed up while I was typing this. Maybe the little bit I've written here and the national news stories will give added insight about it not being approved yet. Here's what I...
Hello to all. I did a site search (from a different forum) for LDN and was surprised to not come up with any referrals to the MS forum. As I understand it, this drug is showing great promise for MS...
Patty and Carol - If it's ok, I'll send you an email I have saved with more info. Let me know....
From what I gather, many doctors claim to have never even heard of it...and the ones who have are often reluctant to prescribe it. Pharmaceuticals probably hate it.....it's cheap at about $1/day...
Anyone here heard of this? Tried it? "FDA-approved naltrexone, in a low dose, can boost the immune system — helping those with HIV/AIDS, cancer, autoimmune diseases , and central nervous system...
There's lots of info--and even a demonstration tape--for using a neti pot here: www.oprah.com/slideshow/oprahshow/slideshow1_ss_oz_20070426/6 You may have to 'cut and paste' or type the address if...
Lynnwood - I am scared. I wrote a whole bunch more after that one sentence, but deleted it all because that is the bottom line and should hopefully explain my frustration level. I'm not even sure...
Lynnwood - For your consideration: "Good Doctor" - oxymoron "Medical Care" - oxymoron Just thought I'd add to your collection. I've been using these for a long time now. I'm in a foul mood about this...
Thanks, Sj. I want soooo much to get on here and post some really good news one of these days soon. No. I want my SISTER to be able to do that. She has been miserable for 6-1/2 months! How do you...
You can count on it. Will be anxious to hear how everything goes....
WHAT IS GOING ON?!?!? My sister's leg was steadily improving and we were both so encouraged....and then late in the day on Sunday (or was it Monday?) something else started happening and is getting...
Thanks, Bill. I had wondered about the lack-of-use issue playing into this episode due to the other chronic and debilitating pain of the last several months. I had also thought this almost sounded...
My Internet Explorer has been goofy (wouldn't you know?) and I'm just now able to read your replies today. I will pass along your suggestions for her consideration. The initial pain was such that if...
After getting cortisone injections on 6/24, my sister got about thirteen days of decent relief from her awful knee pain. Well, actually, I guess that is still much better...but Tuesday evening she...
Ask your doctors before doing this, but has anyone who gets relief from heat tried the ThermaCare Heat Wraps? I see they have new ones now for arthritis relief in particular--such as hand and...
Rosie, I didn't think you were being trite at all. I was just wishing EVERYone....you, my sister, ALL the good people who come here...could have better solutions and more freedom to live and enjoy...
"Lots of folks with Lupus, get their dx, treatment plan and live happily ever after." Oh, what a big blessing that would be!..........
[color=blue>I] it...and which is why I added a facetious "sort of" to the topic. Just a way to cover several aspects in a, more or less, organized way. There's no doubt about this being very...
When muscle cramps were brought up with the rheumy, the first time it just got a blank stare. The second time, the answer was, "I don't do cramps." ?? And that's why I asked why another doctor would...
[color=blue>Sandy]& - Each of you started with kidney problems as an initial symptom, right? [b] [color=purple>Crystal]- What kind of eye problem have you had? [b] [color=red>SFnative82] - You...
Now that my sister has a dx of "Probable lupus with arthritis", we are wondering about several things in retrospect and thought it would be interesting to get a general consensus here to maybe help...
After posting, I went about my business and wondered why I wasn't getting any email alerts about any replies. Probably because I didn't flag that message to send them to me! lol Not to mention I...
I] methotrexate. That's what I get for being lazy (lol)...but any additional comments are always welcome. Folic acid was prescribed as well and from reading the comments it sounds like that was a...
[color=purple>Yesterday] This one is a female and actually took her time, did a thorough exam, asked a lot of questions and [i]listened . She is going with a tentative diagnosis of "probable lupus...
Babs, Here's what I'm not getting about the ANA Patterns: Hers say Homogeneous AND Speckled. My eyes are crossed and my mind foggy from trying to get a good handle on what that means. She also showed...
/community/emoticons/eyes.gif . [img]/community/emoticons/sad.gif This happened after taking only three doses of 10mg. She experienced what she called flashes of light (pinpoints, I think), bad...
Judy - I passed along (via email) your message of reinforcement about staying with the prednisone. When I spoke with her today, I reiterated. She was planning to call her G.P. and get his ok...well,...
I'm readin' and sharin', guys. Thanks for all the suggestions. I've passed along the ANA pattern info and hope to look into that more as well as the Resources thread, in general, tomorrow. DQueen, I...
I gave her that very same advice and she went to a university hospital about thirty miles from where we live on Feb. 28th, after having no luck with anyone locally. They aspirated her foot in two...
djoyg - So, did this case not sound at all like lupus to you, or you're just thinking this is just another avenue to explore? I have found some info on CRPS and am passing it along to my sister. As...
Thanks to HippiMom and AlwaysRosie for your input and encouragement. : ) It confounds me that doctors go to school for all those years and then, when it comes to something like this, so many of them...
Joan, Do you know what specific kind? Thanks!...
Jeannie, I think you're referring to lymphedema, which is something I have myself (from surgery). It's a non-pitting edema, but my sister's is the pitting kind. "Cellulitis appears as a swollen, red...
DQueen, Thanks so much for your input. One of the specialists she has seen is a rheumatologist. Well, actually she was examined by a Nurse Practitioner who then brought in a couple of the doctors....
Not that I'm aware of, but she has expressed that she has thought of that herself. Do you know of someone with a cancer diagnosis with these symptoms?...
When this first began in the left ankle, a chipped bone was suspected. Then arthritis was considered. Then it moved over into the other leg. A few weeks ago a Doppler was done on the right leg, which...
I'm writing for a family member who can't get a diagnosis. Her G.P. suspects lupus based on lab results, but a rheumatologist is saying they don't think so. Sometime prior to November of last year,...
I'm writing for a diabetic family member who was diagnosed ten years ago. Sometime prior to November of last year, she began losing weight for no reason. To date, she has lost about 27 pounds and yet...