Hi Chellybelly: I visit over here, and on the Chronic Pain forum, from the Lupus forum. The fatigue can cause a lot of isolation and people don't seem to understand. I'm feeling very isolated too....
((((((Butterflake)))))) I'm so happy to hear you are feeling better. The price of all these tests and meds and supplements can really add up, but it sounds like it is paying off for you. I"m glad to...
Linda, I have had the same problems in the past. I did get some literature on trigger foods that helped. I also found that Advil caused the problem. It took me a long time to figure that one out. If...
((((((Babs)))))) Im sorry to hear about you having the Internet turned off. I think the ideas others have written about using the Internet at the library are good. I know it won't be the same, but I...
Ginny, I wish you well. You are definitely doing the right thing by seeing a psychologist. DON'T try to sort it out yourself -- and trust your instincts with your psychologist. If you don't feel...
Butterflake: I'm so glad to hear you are able to get around a little bit now. That was a long haul. Best wishes for continued improvement. /community/emoticons/yeah.gif Love, Harmony...
Debbie, I'm so glad you've decided to go. Your family sounds caring and understanding. It's so nice just to sit on the beach and listen to the sound of the waves coming in. It's so relaxing. Reading...
I just went to the beach about a month ago with my husband and son and it was really great. Even the days I didn't get out of bed much. Sometimes it just helps to have different walls to stare at! Is...
((((((Butterflake)))))) I have been wondering how you were doing. I'm so sorry you are going through this. Have you called your rheumy? Was your face that swollen when he/she saw you on Tuesday? When...
I have the same problem. I'm more sensitive to the heat than the sun. Part of it may be the Raynaud's or some other circulation problem. I have problems just standing in one spot anyway (autonomic...
Hi Mary Ann: I have been thinking about your post for days. I think Carol is right that we just need to get a cane and get used to it. (Tink 2, I have seen a cane on the Internet that is beechwood...
Hi Mary Ann I have had problems with losing my balance for the last year or more. It's been getting worse lately. I used to have trouble on uneven ground, but now I find myself stumbling or weaving...
((((((Butterflake)))))) I sure hope you feel better soon. That is a lot to deal with. Ginny and Rosie have good advice about the acidophilus. Hang in there. I'm glad your sense of humor is still...
Hi Everybody! Thanks for the nudge Rosie, I've been reading the forum but not replying lately. I had a very rough few months (my whole family did), but we had a wonderful trip to Myrtle Beach...
Oh, Rosie! I hope you are feeling better. At least you got a diagnosis now and can start to sort things out. I don't know anything about Crohn's (thanks for your explanation), so can't offer any...
Joinery: I've used capsaicin in the past with good results. It's made from hot peppers though, I think, so be sure to wash your hands thoroughly before touching your eyes. I've also had some luck...
Congratulations Tink!! /community/emoticons/tongue.gif Thats great news! I'm sure that takes a lot of pressure off. It's so tough to meet all the bills, and the diability process is draining too. I...
Thanks for the idea! I'm so glad it helped cheer you up. I have extra pain today too and it distracted me. I think we should just keep this thread running endlessly. Some days we can get past the...
Hi Everybody, can I still log in on this one? Things have really changed for me in terms of what I am able to enjoy too, but here goes: My loving, supportive, caring husband of almost 30 years; my...
Hi Everybody! I take both Ultram and Vicodin -- is that a problem? I used to take Ultracet and then couldn't take the Vicodin at the same time because of the Tylenol component of each, so switched to...
There probably is a link between staying out of the sun and having a vitamin D deficiency. I was just put on a once a month high potency Vitamin D capsulea couple of weeks ago. It might be...
I have times when I itch too, and sometimes get bruises. It especially seems to bother me at night, probably because nothing else is distracting me. Sometimes I take Benadryl in order to sleep....
Hi Sussie. Thanks for joining us! I'm sorry to hear you are going through such a difficult time. This is a great forum and I hope you feel right at home here, and hope you are able to get on some...
Happy Birthday Judy! Have fun tonight! Your Alaskan cruise idea sounds great. It's such a beautiful place, and it's always so nice to have a vacation to look forward to. Harmony...
I totally agree. It's worth being patient to find the right therapist for you. Sometimes it takes awhile, but once you find the right one, it is all worth it. Same goes for the antidepressants. It...
The one on the corner of course! LOL Okay, good point, forget it. How 'bout I invite everybody over to my place for a party. Come as you are, bunny slippers and flannel jammies allowed. See ya soon!...
Butterflake: After the bartender cuts me off, which would probably be about half a beer! That would be a short visit. Maybe we better meet at the coffee shop instead. Love, Harmony...
I'm so sorry! You must be wiped out. At least you know you could study chemistry at one time and that it's just this DD. I can relate. I started working on my disability application this weekend, and...
I was wondering how someone finds a diagnostician. Does anyone know? Maybe at a specialty hospital like Johns Hopkins or NIH? I wonder if you could get an appt at a place like that. Maybe you should...
((((((Diabetic1965)))))) I'm so sorry for what you are going through. I have lupus and find I need to sleep every 2 1/2 hours or so to be able to function. I know exactly what you are trying to deal...
Hi Everybody I just started reading a book called "The Autoimmune Epidemic: Bodies Gone Haywire in a World Out of Balance and the Cutting Edge Science That Promises Hope," by Donna Jackson Nakazawa,...
Hi AlwaysRosie: We missed you! Glad you had a nice time. I've never heard of those dive suits, thanks for the link. You always have great recommendations. Your trip sounds glorious. The ocean is the...
Hi Everybody: I've been reading a little bit on the internet about UVA1 light therapy. Apparently, the exposure to this particular wavelength of light is supposed to aid in clearing out dead immune...
Hi Darlene: I was diagnosed with Lyme a number of years ago with a positive Lyme test (and with lupus about 10 years ago). Initially I had a PICC line inserted and had daily IV Rocephin for a number...
Hi Suzanne, I've been thinking about you and hoping you are feeling better today. Were you able to get any sleep? Were you able to eat? I know it's hard to think about yourself when you are worried...
I am so sorry to hear what your daughter is going through. It actually sounds pretty alarming. I really don't know anything about the Gardasil vaccine, but have wondered about so many states making...
I'm so sorry you are feeling so bad. It does sound like the flu. It seems to be going around. I don't know what you are on right now, but could you take some TheraFlu or something like that? Are you...
Hi Suzanne I'm sorry to hear about your virus. When we have to deal with lupus and all the stuff that goes with it, it seems like we should get a break on catching anything else. It's extremely...
Hi monkeyme: I have also had trouble with swollen lymph nodes and fevers up to 100 for years. I did better after I started on an antibiotic, but I also have Lyme which seems to be recurring and a...
I just recently returned to the forum after a very long absence and did not know Tash, but I feel like I did for she is one of us. I lit a candle for her this morning. I am so sorry for her passing,...
Hi Kim, I'm so sorry about your coughing fits (I'm so brain-fogged at first I typed coffee fits!). Have you checked with your doctor about an inhaler? Call the office and explain how bad your...
(((((((Tash))))))) I'm sorry to hear you are so sick. Please know that everyone from the forum is with you in spirit. Just close your eyes and know we are sitting with you, holding your hands,...
Hi Stephanie: Welcome to the forum. I agree with Ginny, it sounds like lupus to me too. Raynaud's explains the purple fingers and toes, and lupus could definitely explain the sore joints, rashes (the...
Welcome Nanda! I hope you find as much support and information here as I have. I have certain joints that hurt constantly, and some where the pain migrates as you mentioned. I have the same thing...
I'm taking 2400 IU of vitamin D daily, but haven't noticed too much of a change in how I feel with the lupus. Ginny, I'm glad to hear it helped your SAD. My son believes he suffers from SAD. I'll...
I have numbness in my hands, and sometimes my feet, during the day at times. I thought this might be part of the Raynaud's. I'm not on prednisone. Does anyone else get numbness during the day?...
I think my brain fog is the worst when I'm exhausted, although I have trouble with words (and spelling -- sorry guys) all the time now -- never in the past. My coordination is off most of the time,...
Ann, I'm so sorry. Losing a pet is very difficult, and it's obvious you love her very much and gave her a wonderful life. I'm glad you had a friend there with you, maybe she can stay with you for the...
Hi Lucylynn and welcome! I'm sure you will find comfort and helpful suggestions with all the wonderful people here. I also have debilitating exhaustion. The only way I have found to deal with it is...
Hippi, thanks for your reply. I never heard of anyone having a fever from doing too much. I'm sorry you have the same symptom, but glad I'm not crazy! I feel exactly as you described it. I feel...