I need help..i cant eat or drink without haveing diahhrea. Just 1 bite of food will cause it. The only fluids I can sip on is soy vanilla drink and NOS energy and oly 1/4 bottle a day. My main dr is...
one more thing...thank you all for listening and your loving replys:)...
Hi, After 5 weeks of being on the MXT and being sick with no positive results I stopped taking it. I called my dr to let them know. His assisant called back and said to keep taking the low dose of...
Hi, Each time I see my specialist I do what you do and bring everything written down since sometimes he's not approachable but at others he is. I dont give him the list of all my conditions/symptoms...
Thats what they were talking about, the IV infusion of those two medications. Why is it we have to suffer for so many years before getting help??? You went 15 years, i went 19, and almost everyone I...
Hi..Thanks so much for writing back. Plaquenil was the 1st medication I was put on. I'm average size 5"6" around 145 pounds, I also feel my prednisone level is very low. Since thats the only...
Hi everyone, Once again it's been awhile since I've been here. I run a at home business which takes every ounce of energy to keep it going. My eyesite is being affeted badly by my lupus & other...
Hi..thanks so much for your suggestions, I'll try the natural one and find out about the others you mentioned, I see my neuro in the next few weeks. so far it's helping with small thing like bladder...
Hi everyone, It's been awhile since I've been here, the last time i was i hadnt started my lupus treatment yet after 20 years of being ill. first I was put on Planqinel which is great and got rid of...
I'm so sorry to hear all that your going through:( Like you I've been ill for 15+ years and since it advance it might take longer to treat. What caused the MDS? was that due to any of the lupus...
Hi, Thanks for your responce, information and your own experience. I am a pretty direct open person, my life is a open book when anyone ask's me something. My main worry at the moment is what happens...
Thanks Ginny:) I try and stay positive and do a good job of it most of the time. Today is one of those hard ones. Hearing about that great gal here that past away reminded me of a friend who pasted...
Hi:) Your information helped to much, thanks lynnwood!! I told my eye dr that I dont want my glasses changed cause i knew that wouldnt fix the problem, i just got glass's 6 months ago after having...
I am slowly getting off oxycontin after being on it for 6-7 years. At first it kept me out of being in a wheel chair due to my pherial neuropathy in both ankles & helped my 24/7 chronic pain every...
My heart goes out to all of you....I dont know what to say..I'm so sorry for your loss and everyone else who knew Tash. Reading these post's brought tears to my eyes..I can see she was loved by all...
Thanks for letting me know how to add my signature:) Sorry about the all caps, thats how I usually type due to my carpel tunnel and in bold so it's easier to read, all my friends and buyers know but...
THANK YOU!! I COULDNT RESPOND SOONER DUE TO VISION TEST'S, DR' APPOINTMENTS AND HAD TO RE-OPEN MY PART TIME ON-LINE BUSINESS TO KEEP SOME MONEY COMING IN. EACH TIME I THINK I CANT GET WORSE I DO, I...
Hi..Thanks so much for explaining that to me. I had a feeling he wanted to check my bones to make sure my body could handle the medications. I've been on OTC medications for a long time and they dont...
Like okie i do go to therapy to help me deal with all of this. mentally he say's i'm the sanist patient he has, lol. At the same time I have my days were the depression takes over the positive...
(((((carol)))))...
thanky you all:) Besides predisone what are the other medications usually given for lupus? I havent done much research on it due to i didnt want to get more scared of the side affects then I already...
Thanks so much for writing...one thing I'm scared about is another doctor will not want to deal with this. even though he said he wanted to treat me progressivly what happens if he doesnt like many...
Hi all, I joined today and have no idea if this is how I should introduce myself. I'm 42 and have been suffering with lupus for 15 years. acourse it took them 12 years to finally diagnose it and when...