Hi Peacesoul i understood what you meant about the almonds.It is one of the many sources of calcium found in food and if people eat several different sources of calcium in a day ;you can meet your...
Lucy, Be careful with certain sprouts.I forget which one it is but there is a particular sprout that is particularly BAD for inflammatory conditons.If i find the name of it i will send it to...
Sorry the link doesnt work.I think if you do a Google search you will find it....you know what is interesting?? The foods in the Nightshade family are considered alkaline but they also can cause...
Hi All, I hope we can all find a diet and supplement program that works.I think a diet and supplement program that focuses on decreasing inflammation and supports your immune system would be the way...
Hi Lucy, I'm also trying to keep my body in a more alkaline state.I heard of a book called Alkalanize Or Die...i never read the book but a friend of mine who was diagnosed with Breast Cancer swears...
Hi Lucy, I'm 38 years old now.I'm also a Registered Nurse.The diet and lifestyle changes have helped me a lot.As crazy as this sounds i feel Lupus came into my life for a reason.I wanted to make...
Hi All, It is going on one year since i was diagnosed with SLE Lupus.I have made major lifestyle changes since my diagnosis and want to share my results. In October of 07 i had lots of migratory...
I have a positive SSA( 889) but NO SYMPTOMS at all for Sjogrens.I was told you can get false positives with the SSA's if you have Lupus....My rheumatologist said that i may or may not develop...
Hi Steph, I'm and R.N. and worked in the Emergency room.I would strongly suggest you NOT wait and have that checked out ASAP.The E.R. should send you for an abdominal Cat scan.They may even want to...
Hi All, I want to know the type of pain that is typically ''Lupus pain''.How do i differenciate typical aches and pains from Lupus pain?? I know that sounds silly but i just dont know anymore.I'm an...
Hi Sunshinesyl, What meds are you on? Some meds cause hairloss like that....methotrexate can and even Prednisone...i read Plaquenil can too but it's rare. Fran...
Thank you for the replies.I truly appreciate the feedback.I had some other bloods drawn last week so lets see what that shows.I know she drew another ANA and C-complement,C 3 and 4 and some others......
Hi All, Have a few questions about my CBC....I was diagnosed with SLE Lupus in October 07.At the onset of some symptoms(migratory myalgia and arthralgia and some fatigue) my WBC was low and with each...
Oh and Jenn....If you are in otherwise good health...drink PLENTY of water.I also follow a anti-inflammatory diet that Dr.Weil recommends for people with Autoimmunity to prevent further...
Hi Jenn, I can relate to your anxiety as i was recently diagnose with SLE Lupus.I'm with you Jenn and feel the same way.I worry so much about my kidneys now.From what i read so far,some people get NO...
I never heard that beans and soy fall into the nightshade family.I'm am a vegetarian and have been following a fairly strict anti-inflammatory diet since being diagnosed with Lupus in October.I need...
Hi All, I was diagnosed with Lupus in October.Being that this is new to me;i'm not sure how to determine a ''flare''.What does it mean or feel to have a flare?? I'm sure it can vary from one person...
Hi Hippimom, I went to the ER cause i felt some heaviness in my chest with the high BP.I didnt have any pain while the BP was high.This seems to happen once in a while.I get a sharp rise in my BP for...
Hi All, I was diagnosed with Lupus and Hypertension in October.My blood pressure took some medication trials to get it under ''control''.For most of the month my blood pressure is good....130/77 but...
Hi, I'm with you on looking for alternatives.Temporarily you should take the Prednisone.I with you cause i HATE taking prednisone.I was on 40mg and tapered it when i was having an allegic reaction...
I get pain in my hands and swelling at night.Even my shoulders ache at night.To turn over and put the covers over me sometimes HURTS bad.I blamed the Lupus and lately i have been blaming every...
Hi All, I had an allergic reaction(Angioedema) a little over two weeks ago and at first the MD's at the ER thought it was the Plaquinil because it was a new med for me and i was taking it only 5...
Hi Fran, WOW,you had a very scary experiences too.Allergies are scary and so unpredictable when you have multiple allergies..I have lots of allergies too.I had an anaplylactic reaction to...
Hi Fran, How long did your reaction last??How long were you taking the Benicar?? I also have bad allergies.Always did!! I have been taking Benicar for only 4-5 weeks but there is an accumulation of...
Spoke with my Rhuemy and she said this sounds like Angioedema.It might not be the Plaquinil but the Ace inhibitor that i'm taking.I'm taking Benicar.So she said to stop the Benicar too and continue...
Hi , I feel worse today than yesterday.My mouth is still swollen and now the glands under my tongue and even my tongue is slightly swollen.When i swallow my toungue burns.I have stifness in my neck...
Oh and the E.R. doctor said to discontinue taking the Plaquinil until i see my RhuemY Fran...
Hi All, I started taking the Plaquinil only 5 days ago.I was supposed to start with 200mg daily then if tolerating increase it to twice a day.The second day i took the plaq i was feeling a little...
Hi Carol and Gidget...also everyone else who responded,Thanks for the support and responses.Yes i agree Carol.i wasnt happy with how my doctor spoke to me.I didnt even get any Professional...
Hi All, i spoke with my Rhuemy and primary MD...Rhuemy said in a VERY STERN tone....NO,not related to Lupus.I said well then what the heck was it?? She said maybe Parasthesia or maybe it was...
Hi AlwaysRosie, Thanks for the quick response.I feel a little better knowing that others had this too.I'm still waiting for my doctor to call me back.It was VERY SCARY.It took me a few seconds to...
More questions.....This new symptom happened to me once before about 2-3 weeks ago.It happend in the middle of the night while in bed after one of my sleep cycles.Anyway,my scalp was numb and...
Hi Victoria, I'm in a similar boat as you.I dont have too many symptoms of Lupus but was just diagnosed on October 30th 2007.I just get occasional joint pain and have all the positive blood work for...
Hi Frank, Did your doctor ever tell you why?? I'm a little reluctant to get one.I do know a little bit about Autoimmunity and how vaccines affect autoimmune related conditions in dogs.Now,were not...
Hi All, I have a question again.....I'm a Registered Nurse and work on a Oncology/Hospice unit.I do care for ''regular'' patients too.The elderly with pneumonia and other upper respiratory...
Thanks for the replies.....I'm going to start the Plaquinil today and i will be going back to work on Friday.I had both Rheumys and my primary MD suggest i get the Flu/pnuemonia shot because i'm a...
Hi Lynwood, Funny you say that,i sometimes get jaw pain.I felt it a few times in the morning and in the middle of the night over the past two years.When i woke up in the morning and tried to bite...
Hi Gidget, Go to Dr.Weil's website and type in Anti-inflammatory diets.I am following his pratices and supplement program. Avoid known inflammatory foods....that is dairy,white flour and all forms of...
I got my blood pressure down with meds and dietary changes.My pressure 4 weeks ago was 160/102.It is now 130/80.First,DO go to Dr.Weil's website and reasearch hypertension and pregnancy.Check out his...
Hi All, For those who read my posts you will remember i went to one Rheumy who said basically said 'go home Your fine'.I read his report to my primary MD and it read this ''Pt with Migratory Myalgia...
Hi All, Thanks so much for responding.I REALLY appreciate the support.I filled the prescription for the Plaquanil but didnt start taking it yet.I still want to do a little more research about it.I...
Ok,this may sound like a silly question.But the symptoms i had 6 weeks ago...the extreme pain,stiffness and fatique...can i consider that a Flare?That was the very first time i felt so terrible.Every...
Hi Always Rosie, I'm 37 years old right now.Now that i think back,I did get vague symptoms of Lupus but it never was bad enough to seek out help.I would be tired and achey for a day or two but it...
Hi All, I went to a new Rheumatologist two weeks ago after the first Rheumatologist gave me a pat on the head and a nice red lollipop when i left the office...lol.Ok,he didnt really give me a...
Hi Rosie, I also read that even certain containers that are said to be 'microwave safe'' are not very safe at all.During the heating process some of the plastics or whatever the container is made are...
Hi Always Rosie, Yep,your right about the microwave.When i had my breast cancer scare two years ago i stopped using the microwave all together.It kills and even changes the cellular structure of the...
BTW....i got a reminder while working last night.My body is NOT meant to work 7pm-7am.I need to get on the day shift.Anyway,i had some twinges of pain in my wrists and knees last night that i had not...
Hi Marji, I have not noticed any negative side effects from using Soy yet.I dont use a whole lot of it though.If i have one cup a day that is a lot.I was never a big milk drinker so replacing milk...
Hi All, Just want to share something.This is day five and i'm still free from pain,stiffness and swelling after my sudden extereme painsthat began on September 9th.This is the longest i went pain...
Hi Always Rosie, I dont think the diet is supposed to work this fast.I have NO IDEA why i feel better so fast.I made another berry and flaxseed drink for breakfast.I add two tablespoon of ground...