Awesome, Marji! Way to go!...
Greetings! I started taking asulfadine (sulphasalazine is the generic form) last month and I am just starting to notice the benefits. My RA is considered severe right now and my rheumy has explained...
Greetings! I have frequent nausea and stomach pain. My rhuemy tells me to take prilosec because the meds we take cause this. I see you take methotrexate and this was the worst for me as far as nausea...
Hi Ginny! It is so nice to hear from you! As hippi said, try not to be too busy! Rest as much as possible! Audrey...
Thanks so much, everyone, for your good advice! I do not have pain and I do not remember hurting myself where the bruise has appeared but that doesn't mean anything since I have been on prednisone...
Hi everyone! I have just become aware of a major bruise on the inside of my right foot. It does not hurt to touch it but it looks awful. I have had a lot of what I thought were varicose veins in the...
I, too, have taken a prescription dose of Vit D and am now on an over the counter dose to address a deficiency found in recent bloodwork. My family doctor decided to test me for this since new...
Hi Patty! I know exactly what you are talking about. My mornings are the worst! They have been for three years now. I am taking Celebrex for now and it does help. Instead of two or three hours of...
Hi aimsgirl! Whenever I have blood in my urine it is usually from a kidney stone or a kidney infection. I would recommend going to the doctor about this. Having blood in your urine is not good....
Hi Mary! I am not sure about your test results but I have been on methotrexate and prednisone. The methotrexate seemed to suppress my appetite as well as make me sick to my stomach. My rheumy then...
Thanks for the sun warning, Fran! I sure hope my sun sensitivity does not get worse but I have become accustomed to accepting the worst, unfortunately. I really want to thank everyone for the...
Greeting Joan! Like Ginny says, don't ever worry about coming here to share your pain or your gripes! This is the best place for that and it does help to share and to get it out. I remember the first...
Lynnwood, I am so sorry to hear you are not doing well. You have had so much to deal with lately that it is certainly understandable that you might need time off! Please take good care of yourself...
Thanks so much, everyone, for your quick response to my questions! I think I understand now why I haven't heard of this med very much from this group. In my research on this it says that about 30% of...
Happy New Year everyone! My rhuemy just put me on Sulphasalalzine to help me go off of prednisone. I haven't been able to stop the prednisone after two years straight and, also, after about 18 months...
Wow, I have not experienced the broken molars, either. I do have a problem with my front tooth "chipping" every few years, though. My dentist just repaired a chip and had to build it up since there...
Hi, again, Hippi! It is nice to hear you are resting and not overdoing it. The final days of the Holiday season can be almost as busy as the Holiday festivities and preparations! Your hubby sounds...
I am so happy for you, Judy! My prayers are with you and God Bless you, too!...
Many hugs for you, Kasey! ((((((Kasey)))))) I remember feeling much like you have described when first coming to grips with the realities of the autoimmune diseases I had been diagnosed with. Just...
Greetings Hippi! I can certainly relate to your difficulties with travel! I just returned home from family visits over Christmas on Sunday - we have about a five hour drive. The trip does a number on...
Carol. I have you in my prayers and hope you have been able to take things slow as this busy time of year is upon us. My mother has COPD (and, probably, lupus) and she is on most of the same...
Greetings Morroco! Welcome to the HW family! I do not speak arabic but some of the children in my school speak arabic or Spanish. I work in an area of Michigan where we have a large population of...
Greetings! I appreciate your questions and have enjoyed hearing from fellow HW friends of how work fits in with dealing with this illness. I started a new administrative position this last fall with...
Prayers to you, Judy! It sounds like they will have things under good control but, even so, having surgery is understandably a bit scary. Sounds like you have lots of friends and your Healing Well...
Hi Ginny! I am so happy to hear you are doing well! I knew you were so worried and apprehensive about the whole hysterectomy process, but, you did it! Way to go girl! Each day will get better and...
Ginny - I hope all is well with you and that you are recovering nicely! Good for you for going into this with peace - you did a lot of research on this as well as making sure you tried everything...
Marvelous news, Lynnwood! I am so happy to hear things turned out so well for you. Don't go overboard doing the "Happy Dance" - you need to keep those flares away! All my best and many, many hugs for...
Greetings, Dawn, Welcome to HW. I am so sorry to hear of your terrible pain and fatigue. I had almost the same symptoms and it took forever for a diagnosis. They just recently concuded that I might...
(((((Redrose))))) Try not to be so hard on yourself. We all do the best we can for our children and there is not one, right way. You are actually doing better by your son if you take care of yourself...
Barb, I am so sorry for the serious problems with your health that you must now deal with. I will keep you in my prayers. Can you feel those prayers coming your way? Love ya!...
Hi Jennifer, Rosie and Lynn give you good advice. It took me a few years to come to trems with losing my healthy self, too. Lupus just knocks the "c***" right out of you and it is unforgiving. It was...
Great idea, Rosie! I could have the grain bags on weekends, though, when I am trying to do stuff around the house! Thanks so much. Jennifer, your description is so much like what I experience. I do...
Thanks so much, everyone for your input. I appreciate any suggestions. I do dress carefully and have resorted to wearing short sleeves year-round, also. My family doc has already had me double my...
Greetings everyone! I am so sorry that I haven't been able to keep up with everyone here at HW lately. I miss everyone here so much and I hope all is well. My new job is going well but I am pretty...
I would try going to the rheumy that the doctor is sending you to see. A good rheumy will know that a symptom of lupus or most any chronic disease is depression. Cymbalta has been very good for me...
Greetings Dominique! If you are not well enough to go to the school meeting for your daughter, please call and ask them to reschedule. They will not think bad of you. Explain your situation and ask...
Carol, Have you tried taking acidolpholis (not sure of the spelling) along with the Nystatin? Anytime I am on an antibiotic, I take this and it helps me to keep any yeast infections at bay. Lynnwood...
Thanks for sharing, Lynnwood! Prayers are on the way for Julia, her hubby, and her sons!...
Greetings Barb! My prayers are with you and Nikita tonight and always! Sleep well and allow your body to heal. (((Healing Thoughts and Prayers Comming Your Way)))...
Greetings Lynnwood! I have been out all day and just saw your post. I am so sorry for the terrible pain this whole situation has put you through! You sound as though you are doing everything right,...
Have fun, Hippi, and pace yourself and wear sunscreen and take naps and enjoy your kids and enjoy your husband and, and, and, and! Don't let the "ands" confuse you! I will keep you in my prayers!...
Good luck to you Ginny! I know you have been considering this for a long time and it is certainly a hard decision. I have never regretted having my hysterectomy because of the pain and discomfort of...
Greetings! I certainly have constant sinus infections and it is very annoying to say the least. I spoke with my rheumy about Evovac and she is worried about the side effects because it can cause your...
How sad, hippi... I am so sorry to hear your family fun was cut short due to the heat and the sun. I can certainly relate to your situation as the sun and heat wreak havoc with me, too. I hate the...
Hi RN! I am sorry you are so worried. I, too, worry about this non-stop since I seem to crave sweets and carbs and I go to the bathroom very frequently. Everytime I have my sugar checked, it comes...
Great, I am happy you are looking into all options. I would think that if you were on an approved maternity leave that you would be fine. If you would actually quit your position with the hopes of...
Wonderful news! I wish you nothing but the best! Thank you so much for keeping us updated. Audrey...
Greetings Stars! What a great career you are pursuing! I have been in education for 23 years now and I have loved every minute of it! I have founs that I love students of all ages and there is a...
Yes it is a good question - probably not much. The govt is not known to be a trailblazer in research. But, I hope I am wrong!...
Greetings Leigh! I have a diagnosis without the positive ANA. The ANA can go positive and change to negative at any time. Some of us stay negative after beginning treatment because the meds help us....