So glad to hear the surgery went well, Butterflake. Please rest often and don't overdue. (Hugs)...
Hello! I thought this was only me. The itching is so bad that I am left with quite a lot of bruising from scratching. It occurs on my legs, ankles and feet. And it's a vicious cycle. Once you start...
Did not do so well this past weekend. But I plan on getting back to a better schedule/diet starting tomorrow. I honestly do find that it helps!...
This sounds like a great idea. I would like to join in. I am gluten and soy free. Also allergic to peanuts, treenuts, shellfish. Dairy i can tolerate in small amounts. I try to stick to lean meats,...
Wishing you lots of luck and as stress free a renovation job as possible. We are also replacing all 1st floor carpeting right after the New Year and I have no idea where I am going to put everything!...
Hello. I have received that call a few times over the years. Switched to a high potassium table salt. That seemed to help. My doctor advised me to increase my consumption of bananas but I am allergic...
Just wanted to add some virtual (((hugs))). For both you and your husband:)...
Just wanted to add that I, too, have found CellCept to be the drug that has been the most effective in controlling my lupus. I have been on it for about 10 years. With the supervision of my doctor, I...
Lynnwood, I hope you are finding some answers for your recent struggles. Once depression grabs a hold of us, it can be very difficult to shake. I have been there more than once and I feel for you....
Not a lot of activity on the board, lately. Hoping that means everyone is busy and doing well. I've started a course of physical therapy to try and alleviate worsening pain along my spine and hips....
What a wonderful tribute. Please take care and have a safe trip....
My deepest sympathies to your family. Your mother was always so kind and helpful to everyone on this board. My prayers are with you at this difficult time....
Thank you for the update. Please let your mom know we are thinking of and praying for her....
Hello Carol! I remember you from your "Okie" days. I am sorry for the loss of your mother. Thoughts and prayers are with you....
Thoughts and prayers to you and your family....
Hi Melissa, Yes, just went through this about 6 months ago. I had the difficulty swallowing, chest (esophageal) pain, an upset stomach, laryngitis, and most concerning, severe difficulty breathing....
Lynnwood, I am so sorry to hear of your troubles. Hope things are improving! You are always offering such positive thoughts to all of us, so it's our turn to send positive thoughts your way....
Also sounds like GERD to me. Have you had an EGD done? My most recent one showed severe GERD (which was suspected) and a severe yeast infection (which was a surprise) running completely down my...
Are you on prednisone? That may be interfering with your cycle. It's been awhile but I believe I remember that happening....
Hello and welcome. I am sorry that you have to go through this. Have you been to your primary physician? I ask because you have already been to a rheumatologist and most of us wait quite a while to...
I had a HIDA scan. It did rule out gall bladder problems. Ended up being "lupus pancreatitis". It was extremely painful and I am so sorry you are experiencing this pain. Mine was about 5 years ago....
Oh I am so sorry you are going through this. And your description of the rheumy treatment is, sadly, spot on. My primary was absolutely positive I had lupus but wanted a rheumy to treat. Went to 4...
Strange. I take Bactrim along with my CellCept. My rheumy prescribed it and my kidney doctor agreed. Works wonderfully for me - everyone is different....
Hello jennmem. I started this thread about 6 years ago. My reaction to Imuran was very similar to yours. I will never try it again. I have been on CellCept since then and the improvement in my...
Hello and welcome! Please keep in mind that everyone reacts differently. That said, I had a severe negative reaction to Imuran. Severe headache, muscle aches and weakness to the point that i needed...
Hello, everyone. Just wondering how everyone is doing? I miss some of the "regulars" that frequented the board back when I joined. I am happy to see some new posters, though I am sorry you must deal...
Hello! What a scary time for you. If it were me, I would contact my pcp and see if you could get in to the office to discuss the test results as soon as possible. Perhaps they have a cancellation...
Agree with Joy. You should definitely see a doctor. This is a very dangerous situation you describe. Even if you stop driving, there are so many other dangerous (even life threatening) things you...
I am guessing he gave you steroids (like prednisone) in the form of a shot. It should help with the inflammation. You might consider getting another opinion if you are dissatisfied with this doctor....
Happy Birthday! Hope you were able to enjoy some time with your family....
First off, I am so sorry you have to go through all of this. There are many people on this site that will tell you (myself included) that getting the proper diagnosis can be very difficult. Trust...
Thinking of you. Vent all you want. You have definite cause. Is it possible your friend is having some life problems you are unaware of? Just a thought....
Hang in there a little longer. The plaquenil should make a huge difference. But know that it can take a few weeks to a full months to fully kick in. I know the fatigue and lack of any ambition is...
Leesha, I am sorry you are experiencing worsening symptoms. I have had the nerve test done twice. It is as Joy described but (in my experience anyway), the description is actually worse than the...
Hi Leesha, do you mean Imuran? Imuran, Methotrexate and Cellcept are often what doctors try if plaquenil alone does not control the lupus. I tried the Imuran and had a very bad reaction. Doctor...
Hello and welcome. I am sorry to hear of your diagnosis. I have had lupus for 12 years and have blood and urine checks every 3 months. Like Lynnwood said, it can vary depending on doctors. I have had...
Lynnwood, I am sorry to hear this. Lab error? That would be my first thought, too. Hopefully you can have another blood test that will clear this up....
Sorry to hear this! Are you absolutely certain the stinger is completely out? Sometimes running a credit card or something similar over the site will "find" a tiny piece of the stinger. Other than...
Just thinking. Acid reflux or allergies? They can both cause the cough and shortness of breath. I am sorry for everything you are going through. Hope you get some answers soon....
Donna, I am so sorry. I had it last summer and I feel your pain. Please rest and feel better. Easier said than done, I know....
Please see an ophthalmologist as soon as possible. About 13 months ago I experienced something similar and it turned out to be a torn retina. I had same day emergency surgery to repair it. Better to...
Just checking in. Was thinking about you and hoping all is going well!...
Yes, many times. Once I walked into my allergist without an appointment because I could not stand it one more second. They saw me immediately and shot me full of steroids. No answer as to what causes...
I miss the active portions of my life. I used to be on the go constantly. Now, it is so difficult to maintain a balance. My biggest "lupus resentment" is the feeling that for every activity I...
I have always been one to have a short hairstyle. As I noticed my hair falling out (in patches) I opted to go with a "buzz cut". I am female. That was about 4 years ago. It has grown in a bit since...
I am so sorry. My first suggestion may sound strange but it is true. Are you getting enough, proper sleep? I am now on a nightly sleep aid. The deep sleep really does make a difference. Your body...
I have been on CellCept for 4 years. At my last visit, my rheumy dropped the dosage by 1/4. If my bloodwork and urinalysis show no change, then we will lower it another 1/4. The goal is to eliminate...
Hello. I am so sorry for everything you are going through. Unfortunately, lupus seems to be very challenging for doctors to diagnose. Your history would suggest that you have already been a...
Oh yes, I understand exactly where you are coming from. I have had allergies all my life but they have worsened considerably since the lupus nightmare/diagnosis. Seasonal (all of them), foods,...
Yes, unfortunately that sounds too familiar. I also have the prednisone on hand and use the taper schedule as needed. Always fun to get away but we definitely pay for it!...