Hi Everyone, I have just started reading about kidney involvement the first of June. My 10yr was diagnosed last August and we just had significant amounts of protein found in her urine during the...
Does anyone have any information on the best state to live in when you are sun sensitive? We live on the Gulf Coast and our 10yr old was recently diagnosed with Lupus. We have learned that she is...
I actually was able to purchase them through the Lupus Support Group in Pensacola that we attend. They were $5 a piece although they do get them at a discount. Do you have a support group near you?...
We attend a Lupus Support Group and when I spoke to the leader about my concerns on the fluroscent lighting, she told me that she had to change all the lights in her office(covering them with sleeve...
My daughter(10) was diagnose in August and was put on prednisone and plaquenil in September and we started to see hairloss in November. After we freaked out and tried to find the reasons why and...
My daughter and I were at our first dermatologist appointment yesterday and she prescribed PROTOPIC for her. She said that it was not a steroid that it just worked like one. We are just starting to...
Thank you Rosie and Kyle for your help!! Wow this is so overwhelming!! Melissa...
Good Morning, Her ANA Direct was 830 and her ESR was 25. As of 9-14-08 bloodwork. She is on 20mg every other day. We were at 40mg and every week we were to taper down. When she got to the 20mg every...
Hello Everyone, My daughter was diagnosed with lupus in August (rash on face, + bloodwork, and then hairloss) she was placed on 200mg plaquenil and 40mg of prednisone,daily. Her hair stopped falling...
Thanks for your response. I do not know why she is on predinsone. Weird. I am so busy trying to stay on top of everything that is occuring with her. I am so worried that someone will drop the ball...
Hello Everyone! My daughter was diagnosed with Lupus the 1st week of August. We went in for a rash that she had had for about 2 weeks. At this point we have been diagnosed by our peditrician who...