Hi, Welcome to the forum and to my neck of the woods. I visited your rheumatolgoist for a second opinion once if it is Dr. DeH. My sister in law used to work for him. I am 47 years old, have had...
You are quite welcome Amy. Yes, my kidneys have flared again however the inflammation I have now is not quite as severe as it was 10 years ago (and 18 years ago when I had my first kidney...
Hi Amy, Cytoxan is a chemotherapy (immunosuppressive) drug. It is usually give intravenously, 1500mg is a standard dosage. If the U.S. is still doing the NIH protocol you do 6 monthly treatments...
Hi, Sorry to hear about your lupus with the problems being kidney and joints. What type of kidney disease do you have. There are different classifications and usually with lupus nephritis,...
Hi, Double stranded DNA is a blood test that makes a definite lupus diagnosis. This along with low complement levels, specifically C3 and C4 often correlate to kidney involvement. There are many test...
Hi Amy, I'm doing well, thanks. I am currently taking 1500mg Cell Cept. I'm to increase to 2000mg tomorrow also. I have had no ill effects from the medication which is nice. My WBC actually has...
Amy, Hi, thank you for responding to my post below. Please know, that you can live many years with your kidney disease. I have had lupus since I was 15 years old. My kidneys flared when I was 28 and...
Hi, I am new to this forum. I have lupus and have been blessed to be in remission for 10 years, but have recently had a kidney biopsy and it shows some inflammation. I have been off all medication...