Thanks for the advice! I've been having problems with sleep since Sept of 2007 when I went to sleep one night and never woke up the next day. I spent 8 days in a coma, from (accidently) mixing...
Hi everyone, I've had problems sleeping in the last 18 months- once I get to sleep, I sleep well but it's getting to sleep that's the problem. I've tried Ambien, Ambien CR, Restoril, and Xanax. Xanax...
Hi Melissa, well, I can say from experience that South Florida isn't the best place to be with lupus. I was diagnosed shortly after moving there from NJ in 1994. But, as long as I wore sunblock and...
D, I think most of us have been in your place at one point or another. Right now, I just am tired of being too sick to do anything. Your post reminded me of an episode of "Dr.G:Medical Examiner". The...
Hi Carol, we don't know each other but you are in my thoughts and prayers. I've been in and out of the hospital since last Sept. with lupus pneumonitis and I now have my first nephrology appt...
Hi! I am very sensitive to fluorescent lighting. I discovered this years ago when I worked nights in a busy trauma center where the lights were on 24/7. I started wearing sunblock to work and also...
Hi! I was diagnosed with lupus pneumonitis back in 2002 after being diagnosed with asthma and respiratory failure. Every cold that my son brings home leads to a hospitalization; last year I was on a...
Oh, can I relate to your story. When I first got sick, about 17 yrs ago, I went to a rheumatologist affiliated with the hospital in which I worked as a RN. He saw me, without any of my labs or Xrays,...
Congratulations Melissa! I know what an awful process it is to go through. Sandy...
Hi Melissa, I was on OxyContin for about 10 years and it really made a difference in my quality of life. I started weaning it down last year and am now off it but am not being held by Darvocet. My...
Thanks for the advice- my husband is mixing lemon water right now, but I've never taken Milk Thistle,so we'll have to go the herbal store tomorrow. Is Milk Thistle available at Wal-Mart? I know they...
Thanks Marji! My name is actually Sandy, and I am Conor's mom....
Marji, You and I are so alike! I too am the "hub" of the family. I have brain fog and also cognitive dysfunction due to cerebral anoxia in 2007. I can't walk more than 20 feet without getting winded...
Marji, I'm sorry to hear about your dog, but it ISN"T your fault. That woman should be arrested and charged with animal cruelty. I have brain fog and a CT of my head in Sept. showed areas of cerebral...
Well, I heard from my friend that a co-worker has acupuncture and feels like crap the next day but then feels great. It's been 2 days since I had it and I'm still feeling like crap. That woman...
I was registered to go and bring my 10 year old son with me but I just got out of the hospital for pneumonia (again) and I think it would be too much. Also my son's school is giving me grief because...
Thank you all for your welcome and sharing experiences with me. I was on the computer to get directions to my nephrologist and noticed I had some email from the forum. After I posted, I talked to my...
Hi Lulalann! I'm new here too but have had SLE for 15 years. I remember my first rheumatologist well- if I ever see him again, I'll sue him. He told me I was working too hard and maybe depressed and...
Hi butterflake, I'm new here but in my post I asked about lupus nephritis and here you are! I have my first appt with my nephrologist tomorrow because I have protein,ketones,bili in my pee, which is...
Hi! I'm 49 years old and live in NJ. I've had lupus for 15 years. I was diagnosed when I lived in Florida, and it really got bad after I had my son in 1998. Now I'm on SSD after being an RN for 17...