Carol Hope you are doing well today after your coloscopy, I know how that feels like when the big d comes on hope you made it without stopping. I'm sorry to hear about your brother. Throughts and...
Hope you had a good trip it's always nice to see family. Glad to here from you... Debbie...
Even through I'm diagnoise with lupus she also said I may have roseacea with the lupus she also said scle because I have the rash on arms, chest and starting on my back. So I do think you can have...
I haven't been on here for awhile since I been having to deal with my own problems. My daughter has been in rehab. for drug addiction she is only 20. She got hooked on street (oxycodine) very rough...
Hi Anne, I also had a skin biopsy on my face, they did a good job not scarring they numb the area so you don't feel anything, mine came back as lupus. When I was first diagnoise 20yrs. ago I had...
Nola, Welcome to the forum, I'm glad you found us! It's good your rhumy put you on plaquenil it will take time to work but it will help you! Take Care Debbie...
Barb, I'm sorry you are both feeling so down, I hope they will give you an answere soon so you don't have go threw so much stress waiting around. I know what Nikita is saying about staying under the...
Carol sorry to here about all this!! I haven't been on here latley. I'll be praying for you. Debbie...
a photosensevitity test I never had that done.I do have the malar rash also my arms are red and bumby my neck and upper back I had a biospy done about[b] a year ago on my face that showed lupus. You...
I've been doing good. Went to a wedding last week I had soo much fun haven't seen some of my family in so long it was great to see them. I must say it did take a little out of me, slept alot. I've...
Hello everyone, Has any body ever had problems with ssd. if you move out of state. I have great Docs,and I'm afraid to move, my husband and I are thinking about moving. We have family Tenn. and Ala....
Barb Hope you have a great time with your dad, sorry to hear about Nakita. I'm glad she's ok. Carol, I hope you are doing better. I'll keep you both in my prayers! Debbie...
Hello Nanes. Welcome! I also have the rash, mine is on my face and arms, are you on any meds. plaquenil, preds. mtx. that's what a Rhumy would usually put us on. If you just started plaquenil it will...
Patty My sister is watching her grandson he just turn one, she did say she does get tired, but it is worth it to her, and she doesn't have lupus. What a great grandmom you are to those children, it...
Carol Your such a strong women,you inspire me how much one person can go threw, so vent all you like. I hope your apps. go well. But get to the doc. sooner so they can look at your leg. Take Care...
When my husband saw (join) on aol.... ery he just added on. My daughter was in 5th grade at that time, our first computer....
Thanks every one I have a docs. app. next week I hope it's not they serious. Debbie...
Iris13 I'm sorry to hear you are diagnoed with this disease!!! I know most of us had the same reaction scared, can we do this or that with our children, yes you can just know your body when you feel...
Lynn, My case I got the letter, one month later I recieve the back pay. Threre's something wrong there you should have recieve the money within a month or two no longer. What a hassel, you should not...
Smurf, I don't understand spend money before your monthly...I put mine right in the bank with no problems, and still got monthly payments. The only people who got money was my lawyer and I did have...
Hello Aunt C I'm not on the meds. you are taking , I just wanted to welcome you.. sorry to hear you are having so much trouble, I hope you will get something that will work for you!!! Debbie...
PA. SSD--- It took me about 1 month they paid 2,500 to the lawyer or what ever he charges you then you should get your money soon after that!!! Debbie...
I've been having pain it's back by my ear where the bone is and runs down to my shoulder not sure if I have an infection on or thyroid acting up. It comes and goes away but this time it's staying,...
Hi Trish!!! You do sound like you could have lupus we all tend to be in limbo for sometime. I went threw a couple of rhumys and derm. I went to a teaching hosiptal where I was diagnois. The sun is...
I saw a program on what your going threw, pertty sure it primetime, the child had broken bones I think it was the ribs, they took the child for abuse, well she got pregent again same thing with that...
I think we all need punching bags only if we had the strenght to hit it... Sorry Lynnwood you are feeling so bad. Vent all you want were listing. Hope you will have a better day tomorrow. Take Care...
Pat I'm like you if your sick don't come over,I have two young adults kids and when they have a cold I get sick. They know to stay away from me, but it donesn't seem to work I still come down with it...
Thanks Deb25, I should have pick up on that I do hear people on the lupus fourm who have gluten intolerance. Thanks for the web.sight. I'm going to buy somes books on it, even if he doesn't it will...
Well were back, Hubby has to cut his intake of protine, levels were little high in his kidney, he also has elevated enzymes, had ekg showed a little irregularties so off to the cardio. needs...
Lovedbyhim I'm sorry you are dealing with so much!! can you have someone come over to cut your dads grass. I know about the pain and brain fog I was making mistakes when I was working and the pain...
Welcome honbunnie. I lurked around the forum before I started posting, I find that there are heart warming people on here.. I did hear remicade can induce lupus. I hope your rhummy is right,are you...
Well it sounds like you found the right rhumy. Sorry to hear about your DX. I would think the rhumy put you on meds. if she put you on plaquenil it will take about 6 months to start working, you...
Thank you everyone!! Well he did read everybody's post, I guess he woke up to he's problem he's going to the doc. tomorrow if I can get him in, I should be able too, I'm going to make an emergency...
redrose I'm so happy for you that you came into the big bucks, that will help out a great deal. You sound so happy and excited I haven't heard that from you in such a long time I'm also glad your...
Hello peekaboo, Welcome!!! you found the right place.. I think most of us have stomach problems some from the meds. we are taking, and others like myself autoimmune. I don't have pancreatist sorry I...
Hi jojo I'm on zoloft it does help a great deal. I'm on two bp meds. diavan,norvasc. It's good to know the cellcept is working for you some can't tolarate it!! never had problems with my kidney's...
Carol, I'm so happy you found a doc. you really like. If I had one like that I tell him he could do what ever he'd like as I'm staring at him. lol I just hope everything goes well. You are funny and...
Jeannie, I throught it could be his pancrease to, he did look up pancreatist after he read it I throught he would go to the doc. but he didn't he is stuburn when it comes to himself, but yet he will...
Carol, I would get another doc. too he sounds like a idiot. Good for you telling the secretary how you feel about him. Geeze you have so many app. so close together I'd be exhausted, no wounder your...
tink, Glad your doing better!!! Take that nice hot bath. Take Care Debbie...
LanieG.. Thanks for your quick reply, I'll most likely be up all night just to make sure he's alright. He couldn't eat that much today he didn't eat dinner. I think that is why he drop when he drops...
Hello everyone I'm on the lupus forum, but I'm writing in regards to my husband. He has been having pain in his stomach,back he's been using a heating pad, I ask him what kind of pain he says it...
Thanks Pat for the info, my sister has a condo at the shore and I don't go as much as I would like too this is wounderful, I just showed it to my husband I told him I would like that for mothers day...
Hello Jen. welcome..I never heard of it keratosis ..But I look it up it sounds like it's herrditary I'm sure you knew that, did you try creams if you did apparently its not working. I have dry skin...
Hi Trish, I also want to extend my welcome to you!!! Hope to hear from you.. Debbie...
crazymomma, I am sorry to hear both your children are going threw this ordeal. I hope ped . rhumy will give you the answers you need to know and help them and yourself to understand what is going on...
I think I know what smurf is referring to!! if she was on some other kind of services she might of had to pay back. When I got ssd. I had to pay Med. life back even thought I paid for long term...
Hi Jen, I also have the dry skin, my rhumy put me on amlactin lotion it does help. It's good that you see your doc. soon hopefully he can find an answer for you. Take Care Debbie...
Hi red, I'm not on mtx, I know your under alot of stress so I really hope it works well for him. Take Care Debbie...
kOOKLA It does take time! I had short and long term disaibly I pick up when I was working that help out alot. I tried the first time and was turned down, I got an attorney the second time and won.It...