I wasn't too bad with Plaquenil until I doubled the dose a few weeks ago to 400mg. Then I had explosive diarrhea :smhair: I've settled down a bit but about once a week I have a really bad blow out....
@debbie that's what my cheeks look like, like I'm sunburned. Hope you get some answers soon....
I usually get a sunburn like appearance on my chest and cheeks. That's the nearest I get to a butterfly rash - it just looks like I've been out in the sun too long (even though I just don't go out in...
Another hot bod here - although my body temperature is normal, my skin is literally on fire. I permanently feel like I'm sun burned. Which I'm not because I never go outside. I was joking the other...
Sorry you're not feeling so good - it's a horrible illness and it robs you of your life. I had a similar experience today. It's getting rather warm and summery here in the UK (makes a change...
So glad you had a pampering - you deserve it! The other week my feet were red, inflamed and swollen and they looked a mess. So I decided to paint my toe nails hot pink - it made my feet look less...
I've had a nerve conduction study in my arms and hands - it really isn't anything to worry about. It's exactly as Rosie describes, it feels a little strange but nothing more than that. It's good that...
Heck you sound like me about 3 months ago, I know what you're going through. You need to take care of yourself. That sounds like a nightmare of a trip you have to take. For a start if you have to...
Was diagnosed over a month ago now. Have been taking Plaquenil for two weeks - no obvious side effects other than a bit of nausea occasionally. Obviously too soon to notice any effect. Also been...
I'm in the UK so our medical system is different. GPs look after long term care, I will only see the rhumey for check ups once every six months in the first instance unless my GP thinks I have...
Just got back from my (rather brief) rheumy appointment. She just came right out with it - didn't really tell me much about the results that had come back, even though I asked, just that I had all...
That made me giggle :smilewinkgrin:...
Good luck for tomorrow - hope you start to feel better....
That's really helpful, looks like a good article. I'll try and post the link here: http://tinyurl.com/d2kb3x ...
Swimming is good excercise and I say stuff what you look like in a swim suite cause you can guarantee there will always be someone looking worse or feeling worse than you do! I used to love the...
The doctors here in the UK seem to be obsessed with diagnosis - and both my GP and rheumatologist have said to me they won't treat my symptoms until they know what they are dealing with. Twice in the...
Yeah I've been feeling ill on and off for years, but the last year I have felt truly horrendous. My skin does flare and go bright red, especially my cheeks. I have terrible pain in my hands and feet...
Typical - I keep getting rashes, but never when I'm due a doctor's appointment. Right, this time I'm going to photograph it to take with me. Slightly embarrassing though as it's on my left breast,...
I still have mine, despite having a phase of tonsillitis about every couple of months during my late teens and early 20s. Then I didn't have anything until recently and in the last year I've had...
How lovely. Have a fab time. You know what - I have a week off after next week and I may just book a spa day....
Thanks ginny, it's nice to have someone to talk to who understands. I know you're right but I'm just so frustrated. This has been going on for a year now. The last hospital consultant referred me for...
That's interesting - I'm having dreadful cramps in my feet so I might try this. I feel a trip to Holland and Barrett coming on! I wonder if there's any other natural minerals that would help with...
Just rang to see about moving my appointment, nothing available. Get this, the clinic I'm going to only runs for half a day once a week, and for the next 4 months, they have 1 spare slot at most for...
Rang my GP this morning and have an appointment on Monday morning. Still have a load of ulcers in my mouth - had them for a week now. Whenever I get anything like that it seems to take forever to...
Thanks everyone for your suggestions, its really helpful. I doubt I'll be able to speak to anyone, but the cancellation is a possibility. I will give them a ring tomorrow. I'm currently without...
Got home tonight to find a letter saying my next appointment with the rheumy is being move back to the end of April. I thought I'd only have another week and to wait and now it's a month. I feel like...
I don't know whether I'm becoming obsessed with finding symptoms but I've just developed mouth and nose ulcers. Urgh it hurts! Both on the same side of my face too....
lol @ twinkiet - yes you can, but advice is not to use it for more than 3 days. Had a good chat with the pharmacist tonight and I've got a much higher dose of ibuprofen - one specifically for...
I can't bear heat at the moment - especially hot water - it makes my hands and feet feel like they've been scalded if that makes sense! Which kind of worries me as I thought heat sensitivity was more...
I am in agony at the moment - mostly my hands and feet. I keep taking paracetomol for pain and ibuprofen for inflammation - but they don't seem to be very effective. Is there anything I can do to...
I'm without diagnosis and the only blood result so far is ANA at 1:640. I have symptoms that could be attributed to many auto immune illnesses, and have just had bloods taken for a range of tests -...
lol @ dirty socks - yes I suppose it does. It has a sweaty cheesy feet kind of smell. Doesn't taste that nice either. But I find it very effective. Probably best taken in capsule form if you don't...
When I first tested ANA positive in July last year, I had few symptoms other than fatigue and a couple of numb fingers. I now have numb hands, pins and needles in my neck, pins and needles and pain...
I'm glad you found your doctor helpful, my experience of seeking help through my GP was not a good one. They were very good at dishing out the smarties and sick notes, but in terms of coping...
I take this and I find it very effective. I find the best form is the liquid tincture, but it smells foul and doesn't taste that nice! If you like your natural remedies, I find a lavender bath...
Some interesting thoughts, thanks everyone. We are having some building work done in the house at the moment, and there could be lots of damp and mould around. I seem to be really suffering at the...
If I pick anything up I seem to hang on to it for a long time. I'm absolutely exhausted at the moment. I could literally sleep the clock round. I don't have any other conditions, and I'm not taking...
I don't have a diagnosis yet, but the one thing that is really hitting me hard at the moment is the fact that I seem to pick up colds and flu really easily. I've been ill with a really bad cold and...
Had a fairly lengthy appointment, the doctor went through my symptoms, did a few tests like muscle weakness etc which seemed to be MS related, I was fine no real problems. Found out that my ANA was...
Thanks that's really helpful. I'm not looking forward to it, but at least I know what to expect now....
I've got a rheumatologist appointment on Thursday - it will be my first appointment. I have been referred there as I have a positive ANA result and a few other autoimmune disorder symptoms. Just...
Just wanted to say I know exactly how you feel. I've been ill off and on for years now, but particularly ill for the last year. Lots of random stuff I thought which didn't seem to connect up -...
Hi there! I'm fairly new too and without diagnosis - I have a rheumy appointment on Thursday. Everyone here is really lovely - and there's so much information, it's taking me a long time to trowl...
Take your own! I quite often have a bag of dried fruit and nuts in my bag. Beats paying £5 for a bag of stale popcorn...
My boss is usually quite good, but he seems to be dealing with me being ill even worse than I am. I am going through some nightmares at the moment and have yet to be diagnosed (I have a rheumy...
I think I might give it a go - my doctor's advice wasn't that helpful other than rip up all your carpets (like I have the budget for that!) I keep trying to persuade my partner that we ought to get...
I was surprised to get a letter from my GP inviting me to asthma clinic. The surprise came as this letter was the first time the 'a' word has been mentioned! I do have a ventolin inhaler - I have...
Why don't you say you posted on a forum and some other people with the same symptoms as you found it helpful and could you try it?...
Just got back from occupational health - they were incredibly helpful and supportive, really nice lady. It really helped to talk to someone who understood how I felt - she totally appreciated that...
I feel like this all the time at the moment. I do know exactly how you feel. My neck and chest are bright red right now and feel warm to the touch, yet my digital thermometer says my body temperature...