balance issues YES i have a lot of ear issues brain fog YES what we we talking about. i try laugh at the sillier stuff. i also write evrything down or else it is gonners! bothered me at first and now...
you go yoga warrior! so hear you on the sick of the sickness!...
bryan hi ... (hi everyone else also) i think that you should be looking for the 3rd opinion - someone with a bit more medical ... loss for words ... ?insight? knowledge? ? sorry it is not coming to...
Thanks for all the replies so far! Lynwood :idea: thank you! you've quoted my 'go to book' Dr Wallace (i've loaned mine out and not got another yet). read it all the time but cannot remember things :...
Hi Carol ****BIG HUG**** sorry the procedure was such hell & absolutely a 'little heads up' can at least let you prepare! silver lining - it's over!...
Hi all ... i am always researching everything to do with lupus and here is something that was sent to me by someone claiming to be able to *cure lupus*. if you read this please give me your comments,...
Hi alli ... did you have your ANA result before the appt? i think that is just a threshold test and now they get more specific - different auto antibodies indicate inflammation, organ involvement...
hi el & Lynnwood ... i looked thru resources post again but didn't locate the books ... i did however find a link on the top navigation bar called BOOKSTORE and clicked on lupus ... my favourite book...
great to read you are doing better - see breathing does help (even if it's just a little) LOL one more night down! Pat ***extra gentle hugs*** for you as you get thru the bronchitis! i think i have...
hi all ... just wanted to start a thread to debunk something i've seen on many lupus boards ... please understand that i am *just* a patient and get my information from doctors and not off random...
aaargh ... just lost my reply but here goes again lilbitz ... that is exactly how i feel (except the 5 nights working - good luck) please i also want to be normal (???) what ever that is indeed! so...
hi lovethekids ... carol said it all! maybe grief counselling might do some good! i guess the hardest part is that it was not your choice and by no means did it sound like an informed decision ......
redrose that is fantastic! exactly what you needed! so when things get tough you keep that picture in your head and know that this too shall pass! hope you are enjoying your new place! Ang...
redrose - hang tight until your court date - you do exactly what you need to until then ... follow the (riculous) rules, play their game and just do your part best you can! you are a kind, loving...
redrose ... you are not a bad parent - that is the part about kids ... things happen all the time ... all we can go on is their crying and moaning and when they are cutting teeth then everything gets...
redrose ... that is absolutely messed up! why is it that some ppl feel the need to manipulate other ppls lives ... the one they are hurting the most is your son ... the longer they mess with the...
i have had an injection only once ... walked/hobbled into rheumies office with tears running down my face ... stiff everything ... i think he felt really bad for me so instead of upping the meds he...
i too used my name Angelique M-J : Angel MJ : AMJ i actually cant remember my member name but it has to be one of the above ... i have to keep it simple or i know i'll 4get...
hi diana ... sometimes all this stuff gets a bit over whelming! about the falling maybe try be aware of your surrounds (avoid obviously dangerous stuff) i always plan my path ... remember to take it...
stacie ... my heart just broke. i am a firm believer in things happen for a reason. hubby worked late, not in your control ... but also you were not feeling physically up to it & you did the right...
hi ... gone cray ... it is not just in your head but probably at some point works its way around your body ... it is called an invisible illness. FM / SLE ... somethings going on! sadly, a bad doctor...
sound advice pat ... a pictures worth a thousand words? isn't that what they say? lynnette sorry to read that you have swelling etc ... if the swelling persists try asking a pharmicist for free...
hello iris firstly here is a ***great BUG HUG*** now take a deep breathe and remember that it is normal to go thru all sorts of emotions! try avoiding panic attacks! i found my SLE dx in 2003 a...
i quite by chance happened opun a set of 'Healing with the Fairies' oracle cards by Doreen Virtue (try google it) i find them positive to have around, i let friends shuffle and pull a few and the...
phew ..... 3 in one day ... at least hope they are done for a bit!...
hi redrose ... Bless him, such a tender little age ... he will be home soon! suppose the cupcakes & gifts are not that important as when you get back together again ... that will be the gift it is...
jenna so sorry you are having such a bad day ... the most important thing to remember is to not hate yourself for any of this ... none of it was asked for and it simply is the way it is ... all we...
hi RR ... Happy birthday to Alexander! i also just love cupcakes! did u mention how old he is? keep thinking ... wait until he is home!! he will be home! sending lots of gentle healing hugs to you...
hi all ... thank you for the kind welcome ... encouragement to others sees me thru my 'dark patches' ... my mantra 'this too shall pass' i am in my 30's now and experiencing hormones like never...
hi jenna ... you will be welcomed by caring, understanding and supportive people here ... my heart goes out to you ... you need to know that you are not alone in all you are feeling! we have all...
hi again ... even with my pos dx i sometimes feel like it isn't real ... drugs make a lot seem 'unreal' ... but i am not on any now so it isn't just them. burst of energy / burst of normalcy ... i...
i just wanted to say hi ... i will try be as brief as possible :blush: i was having a lot of trouble coping a few months ago, i am going thru all sorts of physical issues (as most of us) but my mind...
hi ... Susanne ... what relief! ER is not a fun place, but least you have a ray of light (no MS) phew ... i was dx with lupus after suspected glandular fever turned out pericarditis (positive ANA &...
to get the answers you need you will have to push, push, push ... sometimes change doctors ... i stand to be corrected but the best doc to dx lupus would be a rheumatologist ... so if the GP gets...
firstly ... sorry for anyone feeling like junk ... me too! then ... it is sometimes exceptionally hard when everything around you is just so peachy and inside i feel so toxic ... other times i draw...
aaaarg! indeed ... stuck is a word i try avoid (positivity is usually my forte) EXCEPT once a month (if the mentsraul cycle stays regular) but you are quite right ... we are stuck in this for the...