That's too funny Butterflake, my fingernails and toe nails are all very thin and wrippled very weird....
I've get the jaw pain from time to time it makes it so hard to chew I go on a liquid diet until it subsides, I have the chest pain most of the time and it's pretty uncomfortable....
Yup my big toes are always ingrown, my cousin who has the same thing I do had to have hers removed....
I would like to welcome prettiness, kfn7453 and LordRhal to the forum as well. I know the folks on this site have been great. LordRhal I too have low testosterone and Raynaud’s, you are not alone...
The last time I had my blood done for CRP Mar 2011 it was 27.1 and they didn't seem to concerned as it's always high. I know that values over 7.0 are significant for active inflammation or infection,...
Hi Brandi, Yes I get this too all over, normally just before bed time, drives me crazy, I haven't found an answer to it yet, but i sure hope you do, I find if I meditate that it get were I can get to...
Hi Amy, I haven't been on here for a while so sorry to here what you are going through, my thoughts are with you and I have to agree your attitude rocks. I finally got back to work full time after...
Thanks Fran I believe a positive attitude helps in feeling better. By the way I finished my two weeks of Graduated Return to Work 4 hours for the first week and 6 hours for the second week. Next week...
I start back to work Monday on my accommodation....
Yup I've had those symptoms the first time I thought I was having a heart attack and added stress doesn't help. I've been on anti-depressants for several years now. Mentally I feel much better,...
Hi Sonyalee, one thing you can do for a sore throat is take a spoonful of honey and slowly swallow it. Honey is a natural antiseptic and its consistency is allows it to coat your throat. It works for...
Thanks I'm hoping for the best I find out later today if I get my accommodation. I'm sure it'll work out. Sending you both soft hugs...
Hi all, I haven't posted in awhile so I thought I’d just give you all an update. Well what ever it is I have is progressing affecting my eyes, ears, jaw and temples. For those that don’t know I have...
Hi, it might be a calcium deposit? Is it painful? I've had calcium deposits in several joints i just have to press them out or give them a smack so they break up and go away. It hurts but it's worth...
I suffered from this myself, but my doctor has put me on water pills which has helped considerably. It can't hurt to ask your doctor....
If you are OK with a particular shampoo and it comes as a 2n1 shampoo and conditioner. I use Pantene 2n1 classic clean as a full body wash helps with dry skin and no itching....
In Vancouver British Columbia Canada you can only donate blood if you are not in an active flare or in remission on the Red Cross website. When I went to donate I was flat out told I couldn't donate...
Oh yes my Dr put me on water pills that have seemed to help....
Hi RaeRea, I know exactly how you fell you just can’t seem to get ahead and nothing works out. I have long struggled with weather it’s fair to anyone I would go out with because of my condition and...
Thanks for the responses and the info. Bryan...
Has anybody had luck with Lyrica for Fibro/Arthritis pain? I’m up to 225 mg a day and it hasn’t really helped. Has anyone had luck with higher doses? I take Celebrex as well 200 mg a day and as...
I get brain fog off and on and yes it can last for so time. I used to thing I was getting a head or sinus cold. It makes it very hard to concentrate and do what should be simple tasks. I’d learned to...
Hi Jane I've had night sweats for several years it seems to be worse during Flares. Hope the sweat subside for you soon. Bryan...
For your own benefit and sanity ask for a second, third or more opinions until you can find someone to help you. All the best Bryan...
I've had problems with my eyes during flares and this last flare has been the worst with blurry vision. With the brain fog i get during flares i make more spelling mistakes, forget things and have...
I have to agree my rheumy doesn't believe in Fibro and he's a professor and it's scary that he's teaching rheumy's under this belief. I would have never known that i have Fibro as well as what ever...
Thanks everyone. I'm doing exactly what you've suggested get a 3rd opinion. I got a hold of my cousin (who has the same symptoms as I do and has been diagnosed with MCTD & Fibro) so I can get...
Stacie i'm so sorry to hear your having these problems and hope you feel better soon. I get the shacks from my muscle weakness and with that 1000 lbs coffee mug (it does fell like that) i'll be...
Went to my rheumy today and was told I don’t have an AI at all even though while on prednisone and plaquenil my ANA went from 1:1280 to 1:320 not to mention I have felt much worse since I was taken...
Thanks for your support. I've got an appointment with my GP on Wednesday and I'll ask him if I can donate. Thanks again Bryan...
Definitely go for the therapy I have tendinitis in virtually ever joint and you have to keep it moving or it WILL get much worse. Good luck and hope you have a speedy recovery. Bryan...
Since your in Vancouver may I suggest a visit to the Boucher Institute of Naturopathic Medicine it is a training center for Naturopathic Medicne. My cousin who has the same thing I have steered me in...
I've got a question about donating blood? My father has Myelodysplastic disease and is in need of a blood transfusion and possibly a bone marrow transplant. He is refusing to do the blood transfusion...
Hi Smithy, Ask your Doc to send you for allergy tests to see if it is the dog dander or if the dog is just bringing in extra pollen in it's coat. There are breeds of hypoallergenic dogs such as...
Yes I've had this too and definitely get to the doc. Since the doc put me on Furosemide for the swelling it has stopped. You'll have to take extra potassium because the diuretics strip your body of...
You were luck Anne they didn't do anything but give me the shot in the spine and I've got to tell you that really hurt that day and the next but after that it was worth the pain for the relief I got....
I have had many cortisone injections in my spine and ribcage because of breathing and sleep issues. It does work wonderfully but you can only do so many times. It should be a last resort option...
Hi Heather, I'm still doing research, but here is the Iowa Human Rights Commision/Persons with disabilities site http://www.state.ia.us/government/dhr/pd/index.html And here is the Disability Rights...
My latest flare has also corrisponded with very low limbido and the growth of breast tissue. My Dr. checked my hormone levels after I complained that I had pain under my right nipple and it was...
When I'm asked how much weigh I just tell them I'm about a 6th of a ton. I love the stunned look on their faces. So behave yourself Desirèe (LOL) Bryan...
From what I've read it could be an extention on the Raynauds but you should confirm that with your Dr. By the way how did basketball go this year. Bryan...
Thanks Amy, Ya it's the same Dr. that took me off my pred. and Plaq. I have a positive ANA 1:1280 that keeps climbing, CRP 9.6mm/L (3.0mg/L is high risk over 7.0mg/L is significant for active...
It'll take a little research (state/federal laws) but i'll see what i can do. My dad is from West Union Iowa. Hang in there Bryan...
Heather about your unemployment can I ask what Country and Province or State you live in. I've had a bit of education in LTD, duty to accommodate and LTD from pensions. Maybe I can help??? Bryan...
Hi Barb, I had the same feelings your daughter had that life was over and I have to tell you I'm so glad I went to see a counselor. It worked wonders as well as being on here. It does help to talk I...
Thanks Lucy. Yes I'm in South Surrey BC. My second cousin has similar symptoms and has been Dx with Fibro and MCTD. It's funny because her conditions got bad enough that she had to stop work at 40...
I thought I’d give a quick update. I’m still off my prednisone and plaquenil on Dr’s orders from last December and things have been much worse since then. I was told by the UBC lupus specialist I...
Has your Dr. ever suggested having a can of Guinness stout beer a day. It has been prescribed to increase iron levels and I know people still do this. It maybe worth asking....
Glad to here you're at home and so sad about your father. Best of wishes to you Bryan...
I went to the first day of my union's convention last Tuesday to coach the delegates from my component and get leaflets to all the delegates to get them on are side. I must have talked to more than a...