I think this chemo got really screwed up.Partly because I never got and of the fluids to flush out the stuff,just sent me home,was to sick to argue.Still sick as a dog,can't eat cause of mouth...
Lupus vasulitis or cerebritis as the rheumies like to call it(all the same thing),Seem to have different manifestations for everyone,like all things lupus,the great shape changer. Had never had any...
Thanks for all your support.Call into dr. now. gotta go. God Bless love ya all. Raven1954...
This I.V. chemo has been worse than any of the others,mouth is so sore I can't eat,skin burns,so weak I fell yesterday,legs just gave out,so tired, but feel so bad can't sleep.Up now and it's the...
Hi. Lupus and most autoimmune are sneaky mean dogs.They lead doctors on a merrygoround with symptoms and positive lab work one week, the next they are different symptoms,different lab results. I...
your symptoms sound classic lupus to me also.Demand the testing you know should be done, even at the va you can fire your doctor,and register a complaint. We employ them,always remember that,we are...
Thank you all for your support.My dose changes every 6 months with whatever my weight is.It only took 3 hours to get in,my veins were behaving.Nausea was bad,but they were right on top of that,plud...
Hi Tonya,I'm Diane(raven1954),another newbie. You found a great place in this forum. I found it by accident, God's hand was guiding that day,and He doesn't make mistakes. I have spent 25 plus years...
Hi Carol,I'm Diane(Raven1954) new to the forum.So glad I read your post,I just had i.v. chemo yesterday,and the dog signing the papers gave me the first good laugh I've had since.I know you are...
I went to rehab for a month after my stroke,then a month of home p.t..Supposed to do exercises daily.But alot of times just to exhausted.I try to do just at least range of motion daily.We all do what...
It's not complaining to me,just telling it like it is. I have found thru this forum that just getting it out really helps,all the frustrations and fears,just letting them out and not stuffing them...
Going to hospital for I.V. chemo(cytoxin) in few hours. Dreading it,but also know will feel alot better in couple of weeks.Family getting everything ready for me,so I just have to concentrate on...
I quit 3 years ago,and went on disability.Hardest thing to do, but have to do what is right for you and your body. Asess how effective you are at work, that will help make your decision,also how it...
just my opinion, but demand the tx. you want.We employ them,they are not doing us a big favor by seeing us. If it will give you you peace of mind to have them removed and biopised,demand it.I'm an...
Dear mom,what an overwhelming task you have,but you are at the right place for good advice.I lived on the beach all my young life,Calif.,then Naples Fla. Then as an adult Clearwater beach Fl. Never...
Hi,Rose,I am new to this forum too.It is the best thing I have done for myself,and hope you find the same.The people here really participate,and have alot to offer. Welcome from another newbie....
Going to rheumy tomorrow,cerebritis acting up,i.e.Slurred speech.loss of balance,memory problems,really bad headaches.Missed 2 doses due to sinus surgery,which really worried me. Hope to have it by...
I take a maintence dose daily. Used to try the taper, with occasional injections.I would just make myself and family miserable. My rheumie got got of medical school same year I graduated nursing...
Nothing to make your appetite come back,but you need a certain amount of nutrients thru out the day. I know the feeling, I call it the 50lb. leg arm, even blinking seems to much. I keep lean cuisines...
managing lupus is a fulltime job itself. Before I had to finally quit (I'm almost 56), I started cutting down hours it seemed by the week. Luckily my job did not require standing, but extensive hand...
d was writing a nice detailed reply,don't know what I keep doing but lose everything.maybe a hint from above to keep it short and sweet. Anyway, my son said mom please look up s/s of gallbladder,even...
Thank you for your question,as it has answered one I have had for years,I always fell better after antibiotics for years. Read something about this years ago,but had forgotten post cerebritis (memory...
Dx.sle ra, after birth of 2nd son,1986.Left 1st husband in hurry due to some pretty horrid things.Oldest still in wheelchair,other little and acting out,me ready to jump off cliff.MY experience is...
Thank you so much for the added info. Been trying to get my husband to take mold situation more seriuosly.( live in Fla. with wildlife preserve about 15 steps away),plus bad plumbing problems...
Thank you for the welcome. Hope you are doing well today.(i've learned to go one day at a time). God Bless,Namaste Raven1954...
I am very new to this forum, so wanted to check in let you all know that I really want to participate.Computer dummy,so please bear with.cerebritis improving-slurred speech gone and balance...
Sorry haven"t figured out subject and name yet, am computer dork. Old time hippie from the 60's. I am on an increased dose of prednisone now for flare of cerebritis. Am on inderal daily for heart...
I am brand new, but in your original post you said you felt like screaming, just a suggestion but do it. I have on more then one occasion,very freeing,hold your head and go for it. Best wishes,...