I live in Texas, where I'm about to start graduate school in 2 weeks. Parking on campus is near impossible because of the large amount of students, so I will be walking 2 blocks to the bus stop by my...
I don't have a hairdresser... haven't needed one in a long time because I just put on a hat every day. the kind of extensions I'm talking about are the ones Anna mentioned above, that you get woven...
can you get extensions when there isn't much hair? how does it work, to attach? is there a risk of the hair that the extensions are attached to falling out? has anyone tried Rogaine for alopecia?...
or cosmetic products/makeup that is good for covering it, too? right now I use MAC super-sculpt foundation and a concealer on top of that when I need to go out. I'm very fair-skinned though, so it's...
I get regular steroid shots but into my scalp for hair loss. I usually get about 20 shots (5-10mg) total to make the hair start growing again. I don't really feel any side effects though......
I have a splotchy, red rash on my face. I know it's very characteristic of lupus: all around my eyes and across my cheeks and nose. And now I've started to get sores on my face that won't heal......
do you get sores anywhere... fingers/toes? I was recently prescribed Biafine topical for mine and it really helped them heal faster Hopefully the warmer weather will keep them away... for now anyways...
thank you for your reply! could you share with me the name of the compounding pharmacy in texas? maybe then it won't cost so much for shipping next time...
My dermatologist is adding 100 mg/day of Quinacrine to my 400 mg/day Plaquenil. Had to order it from a pharmacy in California because it's not made at all here in Texas. I have the worst skin ever....
Has anybody been diagnosed with this condition? I've had really intense pressure on both sides of the lower back back of my head for over a year now. Gets worse when I exert myself physically...
hi Ellie, I have had two rounds of the steroid injections in my scalp for hair loss caused by "both" alopecia and lupus. The first time I lost my hair, most of it fell out on top and sides (like an...
thanks for all of these links to gloves! I have to wear them every day when it's cold so I'm stocking up. does anyone else get sores from Raynaud's? I have them on all of my fingers. My derm/rheum...
my rash comes and goes depending on how stressed I am, the weather, my mood, how much sleep I got, how well I've eaten, exposure to the sun, anytime I exert myself physically, ETC ETC ETC in other...
I also took Nifedipine for Raynaud's and it caused my blood pressure to drop pretty severely... dizziness and partial/full loss of vision every time I stood up. Rheumy reduced my dosage and that...
I have systemic lupus but specifically a TON of "skin problems related to lupus," is what my doctors keep saying. I think that means they don't really know specifically what's causing problems...
I have lupus and a TON of "skin problems related to it," is what my doctors keep saying. I think that means they don't really know. Just stopped taking Methotrexate a month ago because my rheumy...
Does anybody have any advice for going off methotrexate? Personal experiences, withdrawal symptoms, side effects, etc? Anything helps!...
hahhaahhha! LOVE THIS. My friends call me a vampire, too. Keeping a sense of humor is crucial :]...
I have this same issue... does it have to be a bad thing, though? Could it just be how some people are normally? Another idea: do any of you that have this issue also have Sjogren's? I feel like...
"it's super sad when people really need a strong cup of........shut the hell up." [/quote] HEAR HEAR!...
My lupus is (mostly) manifest in my skin. I know that I'm EXTREMELY lucky to have not had worse, internal issues so far. That being said... IT STILL SUCKS. Especially since at age 23, I am still...
Raynaud's can be a huge issue if you let it become one. Fingers/toes can fall off. If you're still unconvinced, look up pictures of cases on Google Image. My fingers get really crazy in cold weather....
I saw my rheumy last week and asked about Benalysta specifically... he said it was not going to be a viable option in the foreseeable future and we shouldn't hold out hope for it. If it comes through...
i want to know more about increasing the folic acid... should i consult my rheumatologist before doing this, or is it okay to try on my own?...
thanks for all the replies. summertime has been better for the sores... i have had them but they have been MUCH less frequent and painful. the only time i've been wearing my gloves is in the grocery...
my question is also about "pushing too far" so i decided not to start a new topic... i pushed too far, too. went home to visit some friends and stayed up too late, had a few drinks, etc. and my body...
just irregular, or does it come more often since you've been on the mtx?...
does anyone have any experiences with methotrexate causing irregular bleeding? I have been injecting 3ccs/week subcutaneously for 2 1/2 months. this time, my period (I'm assuming that's what it is)...
does anyone have any experiences with methotrexate causing irregular bleeding? I have been injecting 3ccs/week for 2 months. this time, my period (I'm assuming that's what it is, anyway?) has been...
so nervous!!! i had a bad reaction to the methotrexate pills (severe nausea/vomiting for 10+ hours) so i'm mostly scared of that happening again. my rheumy says the nausea shouldn't be as bad with...
i know prednisone has gnarly side effects, but at a low dose is it really doing that much harm? the withdrawal and reemerging effects of flares hardly seem worth it. i've tapered down to 10mg for...
thank you for the advice. what does the bactroban do?...
Diagnosed with lupus pernio today. I have discolorations (purple-ish) and painful, open sores on my knuckles that won't heal (3-4 weeks now). I have full-on sores on 4 fingers and 3 that look like...
For those of you that have face numbness/tingling and are not taking Cytoxan, have any of you figured out what yours is related to? I can't pinpoint under what circumstances my face tingles (or...
I'm going through the same thing with alopecia, and i've had some positive results from a round of steroid injections to the scalp (it sounds a lot scarier than it actually was). my hair loss was...
thanks for all the info. it turns out that the gyno I was seeing didn't even do a herpes culture until the 3rd time I saw him... he said it looked so stereotypical that he didn't think a culture was...
Is Nystatin prescription or otc? I feel like I may need to find another gyno......
definitely sounds like one of the crazy effects of raynaud's... my rheumy just recently prescribed me "Nitro-Bid," which is is nitroglycerin ointment that I dab on the tips of my fingers and it helps...
I was diagnosed with SLE in August 2009 and HSV-2 (genital herpes) in October 2009. My lupus has also been flaring for months, and I have been on 5mg of Prednisone and 200mg of Plaquenil since...
i know the feeling :/ i also find myself (subconsciously?) avoiding food because of the GI problems that inevitably follow......
about 6 weeks or so. i noticed hair falling out before i started taking it, but it's gotten a lot worse in the last 2-3 weeks. my scalp is also really tender. feels like i had it in a really tight...
i'm taking plaquenil and i know it's a side effect, but i used to have a full, thick head of hair and now it's thin and scraggly-looking. i have a small patch underneath where there is no hair at...
I am 22 years old and was recently confirmed SLE. i guess i'm going through a flare right now, but the fatigue is overwhelming. i'm so sad because i can't imagine living with all this for the rest of...