Many vitamins are water-soluble, which basically means if you take "too much" it'll just be washed from your body in your urine. B12 is one of the water-soluble ones. My dose of B12 is not to 'bring...
When I started getting signs of nephropathy associated with my Lupus and/or Fibromyalgia, my rheumatologist suggested Jarrow Formulas Maximum Strength Methyl B-12 5000 mcg, one daily and I've been...
I have dry eyes from Sjogren's Syndrome -- there are eye lubricants, NOT MEDICATED EYE DROPS< NOT FOR GETTING RED OUT, that are available over the counter. -- there are medications that are supposed...
I occasionally poke around to see if I can find news of David, unfortunately I found this today. He was a great member of Healing Well, active in Chronic Pain as well as here in the Prostate Cancer...
I generally used this website. https://www.drugs.com/drug_interactions.html You have the option to just use it, or to make an account and let it save the meds you've entered....
For what it's worth, and I know my situation was much different, my SSD was NOT reduced by my LTD. Perhaps if it had come thru a work policy things would have been different. And, my disability was...
My private LTD and SSD were determined independently from each other. I can't remember even notifying either one that the other existed....
It's my understanding that the "Own Occupation" coverage is no longer offered by ANY insurance carrier. I was lucky enough to stumble into purchasing a "Own Occupation" plan back in the late 80s; so...
I'm still here. Just nothing much to say. Cheers!...
I'm sure you've read that both speckled and homogeneous ANA patterns point toward Lupus and/or Sjogren's. You rheumatologist will evaluate your daughter for the "4 of 11" symptoms to see if either of...
I've never heard of an ANA measure moving around over time, but 1:640 isn't a 'high' number per se. ANA is mostly an indication that something is going wrong in the immune system that needs to be...
I have Lupus, an autoimmune disease, and take that dosage of Xanax intermittently. Seldom multiple nights in a row, but haven’t experienced any adverse reactions. Maybe everything is connected to not...
I broke my ankle Oct 1st. It was also my first broken bone, so like you I didn't know quite what to expect. I found that RICE - rest, ice, compression, and elevation is very important. Next I've made...
I had to go on disability due to severe cognitive defects from Lupus at 42. Losing my mind was a huge blow, as I was finishing PhD research and owner/operator of a 6-person high-tech company. (Also...
Not UC but over 20 years with Lupus, another great (sic) autoimmune disease. Before that, I could train hard one day, be sore the 2ond day, and be fine the 3rd day and ready to train again. Now I...
There are mental health professionals who deal specifically with accepting significant life changes due to health. (Sorry, I can't recall the right verbiage just now.) I ended up never seeing one of...
Sometimes I just have to remember "The best I can do is all that I can do". Not to add another platitude to the pile of 'em, but my particular mix of illnesses is unpredictable and unmanageable. I'm...
Yes, I've had Trigeminal Nuralgia - terrible pain! Mine seemed to be triggered by my Lupus, and when my Lupus was treated and was calmer the tirgeminal nerve also calmed down. It's been a while now,...
The neuropsych exam & it's results are what made my road to full disability happen. Don't take offense, it's not a judgement, it's just a measurement of how your brain works and you already know it's...
I find that I'm okay with a 10pm-9am schedule for about 10 days, then I need a "big sleep" - like 9pm-thru till 1pm the next day! Not Lyme, but Lupus and Fibromyalgia. In my (younger, healthier)...
Just used Google Translate on the last post, here is the result. "I gave birth to a baby this year. With the lack of sleep, I bought melatonin 10mg which I took every night before bed. I took it for...
Yes, my feet periodically cramp at night. I haven't been able to correlate it with any cause, so you are ahead of me. I keep thinking I should drink more water, but haven't done it yet. Good luck!...
I've been on that for over 20 years, as most of us with Lupus remain on it for our lifetimes. I have never heard of that particular side effect, so my educated guess is that they are unrelated and...
This is very interesting and timely for me! Despite having a fibro dx for over 15 years, I have mostly managed to ignore it's existence and just keep on going. Recently, thou, I've noticed much more...
Regarding the fishy taste -- many people can eat salmon when they can't stand any other fish. Might be worth a try!...
Poppie, Have been on/off Plaquenil for about 20 years now. I've never noticed any changes when going off or on the 400 mg / day dosage -- I don't think you need to worry about "shock to the body"....
I was thinking about the depression hotlines (often called suicide hotlines) -- they would have suggestions for ways to make therapy an option for you. Hard to say what that might be - money,...
Re: Advantage Plans -- several have you have commented that Advantage Plans have a network of drs you must use. One exception, you can purchase an Advantage PPO, in which you CAN CHOOSE your Drs. I...
Just wanted to chime in to let everyone know that the lip biopsies often leave visible scars that most women are uncomfortable with. Also it is quite possible to have Sjogren's without mouth...
You will probably get better help from seeing a rheumatologist. Plaquenil takes up to 1-2 months to ease symptoms of RA, it is primary a disease-modifying medication meant to slow or stop the...
Hey there. Still putting one foot in front of the other here. Recent breast cancer diagnosis is the 'fun event' of the month. Right after I had lost a few pounds and begun to feel hopeful. smh...
When my knee sometimes acts intermittently like that I carry a cane - it gives me a measure of comfort to make sure I can support myself if/when the knee goes out -- and it warns people around me...
The lip biopsy for Sjogen's can leave a scar that people are not necessarily warned of ahead of time. So beware! lol Just wanted to put that out there for anyone planning on getting the biopsy. I...
I read this and started thinking about women's body temperatures. A quick search told me women's is usually 0.4 degrees F HIGHER than men's, which I was surprised at. My personal temperature has been...
I get that from time to time -- something with the ear, balance, and vertigo. Stress and too many foods that cause inflammation are contributing factors for me....
Typically, four or more of the following eleven criteria must be present to make a diagnosis of Systemic Lupus by a Rheumatologist. 1. Malar rash: butterfly-shaped rash across cheeks and nose 2....
Ugh, Sounds like a big mess (to put it politely). Keep banging away till they make things right. I see SO MANY people these days running into brick walls getting appropriate care for the elderly. It...
So sorry to hear that. It is such a helpless feeling to see one's parents in a decline. Sending healing thoughts and energy to you both. Lynnwood...
Sorry, to the best of my knowledge we haven't had anyone here with impacted gland issues. We do have a Sjogren's Syndrome forum as well as Lupus -- but I don't recall it being mentioned there either....
NJFred, 'twas a question, not an accusation., nor did I contest what you said. Thanks for sharing your experience with us. That's what HW is about.... shared experiences! Thanks. Hoping Cilly is...
NJFred, I see you usually post in the Prostrate Cancer forum. Do you have any personal experience with diabetes? An A1C over 9 should, as Lanie says, not be allowed to hover that high for 3 months...
I thought if you didn't sign up for Medicare within a few months of your 65th birthday either you could NEVER signup later or there is a big penalty for signing up later. I forget which....
So my fasting insulin number is higher than my Dr would prefer, and I'm wondering about paying closer attention to the Glycemic Index of what I eat. Is there an app that y'all find useful for...
My brother the Nuclear Engineer says it's still 40-50 years away from being a clean, consistent source of energy. IE, not in my lifetime....
I had significant cognitive dysfunction with Lupus, and I learned that 'brain fog' can actually be tested and proven! I had testing by a neuropsychologist that proved my "fog" was so bad that I...
This guy? https://www.healingwell.com/community/profile.aspx?p=289267 ...
Hi everyone. Still hanging in here. Picking up patient status with a new Dr, who I hope can figure out why I can't loose weight. This extra 40 lbs is a HUGE drag, both physically and emotionally....
Yes, there was a chat. Unfortunately it became more and more buggy and eventually stopped working altogether and Peter had to remove it. I think he tried to find other chat software to install but...
When Healing Well started, there were already several forums available across the internet for cancers, so the owner/founder chose to just include breast & prostrate cancers then. Actually, between...
No, Lyme does not cause Lupus....