Hello fellow lupies! I haven't posted here in quite awhile, but am going through something that have led me to log in. My new rheumatologist took me off Imuran for about 5 months because my WBC was...
Lupus Newbie, I have never noticed any side effects from Plaquenil. The only thing that I did notice was feeling better and that's the truth. There was no weight gain from it for me either. I sure...
LupusNewbie: 3 years ago when I was diagnosed with Lupus I didn't want to go on the medication either. I had already suffered through the side effects of my anti seizure medication and didn't want...
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I haven't "had" a pregnancy being over 30, but I am 30 years old and am pregnant with my first. I am just over 9 weeks along and wondering what to expect. I guess I really can't know ahead of time. I...
Thanks for your reply Lucy, It's nice to hear that you have had something similar. It was just so weird..wasn't there all day, I didn't bit my cheek (but I have definately done that before), and it...
Hi Lynnwood, Thanks for your response. I did take a look at the link you provided. I looked at the picture, and that's not at all what mine looks like. Aren't Canker sores open and painful? Mine...
Hi everyone, I JUST now noticed a red blister like sore on my inner cheek. It's puffy, and reminds my of a blood blister or something like that. I have never had anything like this before. It isn't...
Hi Lucy (and everyone else too :) I know that I said that I would write another post after I had my steroid injections. Yesterday was the appointment with my dermatologist. He gave me 23 injections...
I am glad to know that sharing my hair loss story a bit with you has helped. I also am happy to let you know how my experience with the steriod injections work out. I'm having them done next Thurs...
Hello everyone!:) I am asking for tips from anyone who has raynaud's phenomenon. I have it where my whole hands and feet are affected. What I'm finding now is that in my new job, working in an...
Hi Lucy, I have been on plaquenil for almost 3 yrs. It was about 2 yrs ago when I noticed my first bald patch starting. It quickly grew, then another, and then a third, and they all eventually merged...
Thank-you Kimberlyrenee for sharing your experience with me:) I hope that I have a similar response to the injections as you have (minus the pain of course). You raised a good point about expense...
Hi everyone:) I have been working with my dermatologist for almost a year now trying to get my hair to regrow. Thank the Lord there has been regrowth of about 3 inches now after trying three...
Thank-you everyone for your reassurance and letting me gain from your experience. I also appreciate the advice for letting them know in advance..hadn't thought of that. It does concern me a bit with...
Hello everyone, I have been on Imuran since Feb of this year. I scheduled myself to have a regular dental cleaning next month, November. It'll be the first time since I have been on this medication....
I bought Voltaren Gel for the first time last winter. It's available as a non-perscription on the shelves in the drug stores. I love the stuff..works great for stiff and sore shoulders too. I found...
Hi :) I haven't signed onto the forum in ages it seems. But I looked at your post, because it caught my eye. Last winter was the first one that I discovered that I have raynaud's in my feet. I have...
Hi:) I'm not from Vancouver, but VERY close...Vancouver Island. I have switched Dr's twice, and am fairly happy with my 3rd. I now have a Theumy who comes over a the Island a few times a year and I...
*ROTFLOL* Okie, that's hilarious. What a great way to end my day, laughing. Thanks! -Ellie...
Okie!! I just wanted to say that I read your profile, and I absolutely loved your claim to fame. What an awesome "quote" if you will. That's pretty much all I wanted to say, and wish you well. -Ellie...
Thank-you Lynnwood, Amy, Frank, Melissa, and Wolf for taking the time to let me know how you share with people about your illness. I appreciated the varied responses. I just get stumped sometimes....
Well let me say that you have surprised me too...because I wasn't aware of how few people experience this. As I said I do have just plain 'ol epilepsy all on it's own. But a couple years ago I...
I've used a few different kinds, but have yet to find one myself that doesn't stain yellow:( I have found great protection with the Neutrogena and Ombrelle brands. I mostly buy 60 or 70spf. I usually...
Hey everyone:) I've just had a lot of people today ask what lupus is, and how it affects me. I know a LOT about my personal experience, and some about the disease itself as labelled by the docs..just...
I'm having a day where I'm feeling incredibly emotionally drained. Just having my summer blues..it happens to me about 2-3 times every summer thus far since I've been diagnosed. I do good most days,...
Hi everyone! I don't usually post here, as I've been blessed with my experience having epilepsy thus far. I was diagnosed over 5 years ago, and have had 2 tonic-clonic seizures that day, and have...
Thank-you for your reply Bill. I have only been taking Imuran for 6 months now, and I hope that my WBC doesn't get lower. "Hopefully" it's just temporary for me. I guess I'll know next month when I...
I would by no means call myself a sun worshipper..or whatever term you wanted to use. I never used the tanning beds, and didn't really go and hang outside to tan much. I wouldn't say I NEVER did it,...
To keep myself busy and my mind engaged this summer I am working through a 10 week personal study called Breaking Free by Beth Moore. It's amazing stuff. There's a lot of homework to do during the...
Hi Amy. Thanks for your response. It's just nice sometimes to hear what other people experience, even if it's something on paper that's so impersonal as #'s of counts. I always like to hear when...
Thanks from me too Amy for asking the question, "How are you?" to so many of us. Over the past fall and winter, a bit in the spring too I was checking this site regularily, and I have to confess I...
Hey Everyone:) It's been quite a while since I've posted on here, months really...but that's a GOOD thing. I have been feeling pretty great. In Feb I started taking Imuran, which has really changed...
Hi Okie! You're so sweet to ask. As far as my cold goes, I believe it's almost gone. I still have some sniffles (caught the cold before April 9th ish..) but nothing to write home about. I am...
Redrose, My sinuses aren't bothering me I'm happy to say...I've had way worse..I'm not complaining, just wanting to play it safe with my first cold since being on an immunosuppresant, ya know? As for...
Thanks ladies:) I guess I don't feel aweful or anything...just bothered by this pesty cold. I don't want it morphing into anything else for sure, that's kinda why I asked the question, "at what point...
Wow! I will say a prayer for you too. I didn't know these things could happen. Isn't the human body marvelously complex? God's finest creation. I hope it goes really well for you too. Nasty to be...
Hi Everyone! I am writing to you in the interim of waiting to hear from my rheumy on this very question....How long should I wait with having a "cold" before going to see my GP. First off, I am on...
Hey everyone! Thanks so much for your concern and words of comfort and encouragement. You're right, it is impossible sometimes not to worry, even a little. In the first few days after finding out I...
Hey everyone. I'm feeling really sad right now...I'm so tired that I slept oh a good 12 hrs last night. I haven't done that in a long time. I just found out this past Thurs that my older sister (by 1...
I heard a comment about ANA numbers and patterns by Amy very recently...and I was just wondering what the possible number and pattern could mean. I've had a few diffferent ones show up at diff times...
Thank-you Bill and "Former" for replying. I guess I was just assuming (never a good idea to do that, eh?) that everyone on it has low WBC counts. It has been the norm for me since I've been diagnosed...
Hey Everyone! I've just got my second work/urinalysis back from starting on Imuran. I'm just wondering what an average WBC and Neutrophils count are for most of us Lupies on Imuran. Mine's dropped to...
Hey Amy, I think that short term disability (in Canada we call it medical unemployment insurance, or med EI) is a wonderful idea. I am currently on it..or was, as it's just come to an end. We can get...
nasalady, just a short post here, but I will try and keep you in my prayers from time to time at the times I think about my current job change as well. It helps to know that you're not alone. I'm in...
This is really good stuff to know. Thanks gals/guys. I have been asked many times if I've had a fever. My answer is always no, as I really don't think that I've had them. I'm more often than not...
I don't know if you'll get this response post, but thanks for seconding the "yellow pee" from Imuran Amy. It makes complete sense when you think about it...mine's still bright yellow..and I've...
Hey everyone. I have been using the arthritis center in town here with a nicely heated pool. I have been getting my body used to the form of exercise slowly without exhausting myself too too...
Hi Britt, I felt led to respond to your post as I have struggled with a lot of leg pain. Unfortunately we (the doctors and I) have not got to the bottom of it. I fear that there will not be an answer...
Hi Redrose:) Thanks for the reply. I totally meant to update this post, as I did get a call from my GP the very next day. My sample tested negative for a bladder infection. YEAH!!! Good news. I...