Take care and good luck!...
Every day is different, but most days I notice pretty significant fog. The worst for me is teaching or trying to have a conversation with someone. I forget what they said and I'm always struggling to...
What if her doctor can't find what is causing the low BP...I'm not saying to run out and ignore your doctor's orders, but in my case, multiple doctors brushed it off. Do your own research and make...
I suffer from low blood pressure when I stand up...oftentimes I feel very dizzy and faint and have to hold onto something to steady myself. I've mentioned it to my rheumy and he said it wasn't lupus...
The good news about plaquenil for me was I never experienced any side-effects at all...the bad news is I haven't noticed an improvement either. But my rheumy said that plaquenil can stop the...
Ugh that sounds exactly like what I'm going through right now...rheumie tested me for a kidney infection yesterday but it was negative. He says it's "just a flare..." Hope you feel better soon!...
It varies so much for me. I rarely feel good, but I would say an average day for me is a 3. Some days it gets up to a 6 or 7, other days I may not have any pain at all, just fatigue....
Apparently my dr just thinks this is part of my flares...she started me on a Medrol pack and I felt better the next day. Gotta love lupus......
Last fall I got what my rheumy calls lupus pneumonia, and the pain in my chest now feels very similar to what I was feeling then. The only difference is my right jaw hurts along with the right side...
I don't have a good answer for you, but wanted to let you know you're not alone. I was diagnosed at 23, right before I entered a master's program. It never crossed my mind to not go because of lupus,...
I just did a juice fast for a day (I know I know it's definitely not 60 days like the documentary!) and I'm really glad I did it. I really do believe in the healing power of food and even though I'm...
Really?? Thank you so much for the advice!!...
I'm travelling to Central America in May for my honeymoon, and my doctor just informed me I need to take a separate antimalarial while I'm there (I believe Malarone is what she called it). She said...
I get dizzy spells too...my rheumie can't explain them. My blood pressure is always normal at the doctor, but I wonder if it's low other times. Especially when I go from sitting to standing,...
I was 23 when I was diagnosed. I take Plaquenil every day and Prednisone for flares, which luckily are usually only in the winter. I have never noticed any side effects from Plaquenil (good or bad)....
I thought I would give an update in case anyone else ever runs into this problem. I just found out that my frequent urination was caused by the birth control pill. I recently began to see a...
I just wanted to say welcome to the forum! I was diagnosed when I was 23 (I'm 25 now) and it sounds like you've been through so much. I'm in my 2nd year of graduate school now and I find that the...
Hi Niki, I just wanted to say I know how you're feeling and all you can do is keep going and seeing different doctors. I've definitely had my share of "oh your bloodwork looks fine" when that is not...
I've been on 400mg of Plaquenil for over a year now and have never experienced any side effects-I just always make sure to take it with food. My weight has stayed the same unless intentionally...
Also, I'm not sure if you have this option, but the way I juggle all of my doctors appointments without my boss knowing is I asked for one day off throughout the week permanently and just work extra...
Hi! I'm pretty new to lupus myself so I'm not sure how helpful I would be regarding all of the tests they're running. It's great that your rheumie decided to run tests, sometimes I don't think they...
I'm so excited about this! Even if it can't help my lupus specifically, I feel like this will put lupus in the news and possibly encourage others to learn more about it or even look for a cure....
You're a pretty remarkable dad! I'm still pretty new to lupus myself, I was diagnosed when I was 23, now I'm 25. Maybe it will help if I tell you my symptoms and how I was diagnosed. Fatigue, lack of...
Thanks so much for your reply! The prednisone was prescribed on an as needed basis, I've just never taken it so I wasn't sure how fast acting it was. Is 5 mg enough to actually feel relief?...
I'm going snowboarding for the first time on Monday and I'm worried about my knees. They don't hurt enough to warrant taking prednisone on a regular basis, but they start hurting when I bend them...
I feel better since I was diagnosed last September, but I almost feel like it's the calm before the storm. Lupus came on very suddenly and very hard. Within a matter of days I went from feeling...
I black out parts of conversations too! I'm unclear about what lupus fog is exactly too, but I will sort of come to in the middle of a conversation and have no memory of what I just said. Or...
So I had a gynecologist appt today and she was way more helpful than my rheumy! First of all, she referred me to a different rheumy, saying that she knows a lot of patients who have gone to the one...
I tried Ambien about 2 years ago and it was terrifying. I tried it for 3 nights in a row. The first night I was hearing things, like a radio, all night, but I did get a little sleep. The next two...
No, I found out completely by accident. I was in the hospital for something completely unrelated and my ANA was positive-my doctor mentioned it and said it might be something worth checking out cause...
I'm sorry kat10, this really sucks. All my urine and blood tests came back completely normal, so I'm so glad it's not my kidneys, but what is it? I'm going to ask my gyno next week, but I'm sure she...
I went to my rheumy for my usual checkup and he ordered the usual blood work. I just started graduate school so I can get my labs done for free at the health clinic at school, then they fax the...
I had the exact same thing happen to me last year. I was 23, in a lot of pain, and had absolutely no money or health insurance. I ended up going to the ER and I've actually been back several times...
I've never gotten a headache from Plaquenil but I've definitely had a lot of dizziness. It's very odd-I don't think I've even mentioned it to my doctor. It seems to happen the most when I go from...
Good luck jdrea. I've got several more doctors appointments this month and I plan on bugging the crap out of all of them for an answer!...
Good luck at your doctors appointment jdrea. Thanks for the replies-I've got a gynecologist appt in the next month so I guess I can ask her? I'm surprised my rheumy won't handle this problem, I think...
I was diagnosed with Lupus almost a year ago. My symptoms were pretty mild, mostly fatigue and joint pain, and my Rheumatologist put me on Plaquenil and I have been almost symptom free for the last 4...
I haven't had experience with those, but I had some luck with melatonin-you can just buy it in the pharmacy. It worked for me and a lot of people I know, but I did get some really weird dreams from...
I went to my general practitioner for joint pain, just thinking it was arthritis. He did some blood work and suspected lupus, so he sent me to a rheumy who confirmed it....
I was just diagnosed this past November. In September I started getting really bad joint pain in my hands and wrists so I visited my doc. Arthritis runs in my family so that's all we thought it was...
I was diagnosed in October and was the same as you, 5'4 and 130, but my weight has stayed about the same. I've dropped a couple of pounds, but I think that is just me making healthier food choices...