Hi, am sry that i cant be of much help here. But just wanted to show some support I am new to this site. However not new to having Lupus. Your symptoms sound very familiar to mines. And yes predisone...
Yea me too. And thanks for the response. Its just there..I'll let you know if it works. But for now the burning sensation has disappeared so am good now....
Well i dont know if my rheumy is trained to the symptoms of MS but before i was diagnosed with lupus, he did ask me questions like: Is the pain mostly or always on one side? Does one side hurt more...
So i hav this lupus rash over my nose and on my cheeks..SO i asked the doc if there was anything for it and he prescribed this Elidel cream. Its hella expensive where i'm from. I bought it...
AWWW ((HUGGS)) We know how unwell u r feeling... We can relate totally to what you are going through. But think of it this way, the test will hopefully shed some light on what you is going on with...
Well i am not from USA so i dont kno how it works over there. But we buy wigs at the store.. I have never heard of getting a prescription for a wig. Sorry i couldnt be of much help to you...
Like redrose said VERY dangerous..... Usually, the dosages decreases with time until you are off it completely...I have never heard of a rheumy just stopping it cut and dry like that. Especially...
Oh..i didnt know people did that (PCP)....I just assumed we all were treated by our rheumys.. Sorry :( But like i said before...I have spoken to some of his other patients that had been there for...
I get fevers as well.. My doctor always ask me this when i do a check up..So i guess it is related to me having lupus. Also. lupus can be treated. Its not a life sentence. Won't you be glad to...
Sorry to hear that...*HUGS*........hope its not tho, and whatever it is i hope he recovers. How old is he? And recently and more frequently i have met people online who had lupus in their family as...
thanks @ Lynnette that was cute...:) made me smile..and the knee pain is d most distracting but there r other minor joint (wrist, and fingers) i dont pay the little ones no attention tho. And @ Amy...
I totally agree with you. It is really very sad when patients know more about their doctors! And i would get upset too. Idk about you but where I'm from...you have to pay for all those test (if u...
Sorry to hear that. I can empathize at this time. I am at the beginning of a flare. So we all at some point have went through what you are going through. But like you said one day at a time. just...
Really @ Lynnwood? I was never on 2 per day..My most frequent was 1 per day...and every doctors visit (since i was diagnosed over 2 yrs ago) according to my bloodwork (which was always in my favour)...
Thanks :) From the very beginning he said (the doc) that once in remission meds are not necessarily needed with lupus. So he decreased it to 1ce a wk...And this visit once my bloodwork was well was...
Aww.. I really do hope u feel better today. But you should visit the doc if it continues....
So i had my doctor's visit today... I was on plaquenil 2 days a wk for the past 5months (since my last doc's appt)... I have been getting some minor pains in my knees mostly..And well the test showed...
Oh hi and welcome. It definately sounds like you have something else. Discoid Lupus deals with skin issues hence u having ot see the dermatologist. But being hospitalized as well as having seizures...
I am glad for you...It took me at least 3-4mnths for me to be off my painkillers and feel great with plaquenil. Glad for you tho :)...
I had no clue. Was a healthy 17yr old. Until gradually i started waking up with pains in my knees and joints...eventually during the day it would disappear. But at the end of the day when i would lay...
Ok thanks for the suggestions. And yes I am being treated. but the fatigue can still cause problems for me..Not all the time..sometimes i have a good week sometimes i dont. And yes i do sleep...
I agree, you are entitled to it..You endured it for quite awhile. I couldnt survive for more than 2wks. After that i RAN to about 3 doctors. And telling the kids is a good idea as well.....
Hey I'm new to this site. Still tryna figure out how things work. lol :) Anyways...i was looking for sites where i can talk to people going through the same thing as me. And i found this one. I dont...