Yes, all my doctors are provided an updated list at each vist. I try to walk some each day. Because of my lupus, I am unable to be in the sun...so that does limit alot of daytime activities....
I will not be seeing my doctor until April...I know a long time but we are out of state right now. I have my primary that prescribes my diabetes meds...then I have a pulmonary doc, rhuemy, gastro,...
Thank you grose. I have been trying and I am still all over..for example yesterday was as high as 211 and low at 58, I was sick to my stomach, sweaty etc....I am just a mess..................about...
Good idea!...
Good Luck with your appt this week....
Hello, I know the website on this drug is scary....but I get this infusion every 4 months and have had good ressults. One thing that surprised me was the length of time it takes to administer it....
Good Morning, I was a huge sufferer for years, severe pain.. you know the feelings. Anyway my rhuemy put me on Brand Name: Arava Generic Name: Leflunomide...................WOW! I have never been...
Hi sos, I don't have any words of wisdom for you because I am just learning myself. Just wanted to welcome you to the board....
Thank you Rose. I was very pleased with my results yesterday after eating out. But this morning I am back to 160. I do take prednison and the amount varies between 20 mg and 10 mg per day. I know...
I will do the journaling....and keep you posted...Thank you!...
WOW!!!! I can not thank you all for this info....especially the menu suggestions. I just never thought in my wildest dreams that a hot dog with a roll would be so wrong for me. So I took your advise...
ok, I can add veggies and make the other changes. We are out and about most days and I find it hard to chose from lunch menus, so my thought was to stay under 45-60 carbs per meal. The chips are a...
First Thank you for responding....what I need is a coach..lol Ok Yesterday: Breakfast: one chobani yogurt: 21 carbs Lunch: Hot Dog/wheat roll...cup of yoguart ice cream Dinner: Lettuce/Tomatoe/Mayo...
Good Morning, Can anyone guide me as to where I can read up on diet and carb counting. I am so confused. I need simple reading and hopefully something on the web. My reading are hanging around 180....
Do you know what your RA number is? That is a determining factor as to what meds they give you. There are a TON of relief meds out there, so I personally don't think you should suffer. Achy, stiff...
I have been taking Imuran for years now....50 mgs, 3 times a day. I have done just fine on it. Listen to what your doctor recomends and go from there. We are all so different what works for one,...
Sorry about your friend....Anna stated it the best...we are all different. Just be there for her, no matter what kind of mood she is in or how tired she gets....
So sorry to hear this. I, too, have been diagnosed with ILD...anyway my therapist told me that you can strengthen your lungs with one step at a time and just increase it every other day.... I am not...
Hello, Have you been diagnosed with sjogren's? It usually goes hand in hand with the lupus. It has been determined that my asthma was caused by lupus and sjogren's. I had this confirmed by two...
Sorry to hear this, I personally have not had an issue with my eyes. I know that I was told to only use drops that are like our own tears, not to use anything else. I know this probably did not help....
I, too have been on this drug for about 10 years and have not had this issue with my hair. I agree with the others that lupus itself will cause thinning hair.....keep us posted....
Hi there, I would let the doctor know how she is responding to the med and see if there is something else she can try. I am hoping they did not start all the different meds at once....if so,how do...
it. ...
/community/emoticons/wink.gif Glad you had a good appt......keep us posted and feel free to join us in chat......
...
/community/emoticons/yeah.gif WONDERFUL!!!!!!!!!!! Tuesday night should be good for me. I am on the East coast so I think I am two hours ahead of you...right? I will email you also...............
Will keep her in my prayers......................................
Sorry to here you are not getting answers or relief. Lupus is a complicated illnes, did you see a rhuemy? They are the ones that manage this condition, usually. I am not sure what was 37, but is was...
/community/emoticons/turn.gif First let me say that I feel for you.....pain is hard to explain to a doctor that has never felt what we feel. On that note, I have been on pred for about 7 years now,...
/community/emoticons/turn.gif I have been on this med for years....3 times a day: I do fine when I go to the dentist. Keep on flossing, your gums will get tougher and no more bleeding....enjoy your...
Hello to you, For me it was the overwhelming fatique, you sleep and wake up just as tired. Plus, pains, aches and fevers---put me onto the Lupus/Sjogren's rollercoaster ride. Health and Hugs,...
Good Morning to you, I am new to this site and just read your post......so upbeat. Good Luck to you and here is hoping that you catch a break! Health and Hugs,...
Boy oh Boy, you have so much on your plate, I think you need to grab a platter. I have a suggestion, I would tell your childern sooner rather than later. This way they can research it and except the...
Thank you, I look forward to getting to know all of you! Health and Happiness, Wis...
/community/emoticons/turn.gif Hello: I am just saying Hi and trying to get a little support.....plus, hoping to give support to other sufferers. I was diagnosed in 2000, no longer able to work and...