Yeah, apparently, it is VERY effective with Lupus manifestations of the skin. The company that controls the drug here in the US is (I hear) much more vigilant about controlling it's being prescribed....
I do the "rice sock" thing, where you put dry, uncooked rice in a sock, tie the end, and microwave it. I usually use that, however for my eye's compress, when my bursitis gets real bad. But it can...
Biotine mouthwash! Also, their mouth moisurizing gel is wonderful. Biotine rocks. The mouthwash alchohol-free, and actually makes you feel like the ulcers are being cleansed and allowed to start...
Happy day-after-the-4th, All! My insurance company is giving my Rheum. a hard time about approving my taking Thalidomide. I need it for my skin condition. Rheumy has never prescribed it before, so...
At the start of April, my Lupus got really really bad with my skin. I would love some advice, any advice, diet, lifestyle, meds, foods, for how to live through this. I hate waking up now - and need...
Hi everyone - Does anyone have experience with painful rashes and topical steroids? I have a really painful rash that won't go away - all over my back, upper arms, and spreading into my forearms and...
Jo Baby! Happy Birthday! When you're ready, let us know what the test results show and what it all means. Hope you have a good birthday, and that you are able to relax a bit!...
Sonyalee - I was looking at your post and you seem to have a lot of the same diagnoses and meds that I do. I wonder if you can advise me - I'm having an outbreak of these skin rashes all over my...
I hate how you have to worry about how to pay for it. That's the last thing you should have to worry about!! And I have to say, I agree with your husband who is pissed that the doctors told you it...
Amy - good to know it's a bit stronger than prednisone. I was at 10 mg of pred, and the Methylprednisolone pills come in dosages of 4mg each, so I'm taking 8mg - now that I know that this drug is a...
hi tsmall, i am wondering about similar issues. i just started getting a new kind of skin rash this past summer, and they've not gone away yet. i've not yet been diagnosed with discoid lupus, but...
Hi all, My rheumatologist is now recommending that I switch from prednisone to methylprednisolone. I've been having ongoing skin problems that don't seem to get better with increased dosages of...
Hi all, I haven't posted in over a year, as I've been way too busy being busy, and also perhaps being in denial of my illness. I'm having some new issues that I can't ignore, however, and no matter...
Hey Y'all! Has Anyone here had a Kidney Biopsy? My Nephrologist thinks I better get mine ASAP, and my Rheumy supports him.... What was it like? Did it hurt? Were you better within a day or two?...
Hello All; I had a pretty bad scare this past week. Vomiting and nausea, diarrea. These were some of my symptoms at the beginning of my major Kidney-nephritis episode in September. Another thing you...
Hi Everyone; I'm sorry I'm always so "out of the loop" - I have returned to work pretty much full time, and it's a teaching job, so it takes a lot of planning time, too. Fortunately, my bosses are...
Just to add to that - looking back at my own initial advice, I'm interested to see how I didn't learn from my own experience, just as the rest of you seem to have. And I paid the price! Now I'm back...
Yes, I have to admit, I think you all are right. I think I may have caused my own flare-up (in September, which became quite serious, 9 day hosp. visit, now can only work part-time) by not increasing...
I know how travel takes it out of you - you might just really need the rest. So my advice? CRASH! Try not to increase the Prednisone, unless you absolutely have NO alternative. CRASH LIKE A...
Yeah, so that story about the dog kibble really made me laugh. MMM-MMMM. People give me that look all the time - like "what is wrong with you"? - while my brain takes a few moments to process what's...
Hi everyone! I am in need of your support once again. I'm sorry I disappeared for so long. I get sick of computers quickly, so I tend to not "surf" or "blog" like but I'm going to start just with...
Melissa; That just makes me mad. Lupus is different for everyone. Tell her to ask a rheumatologist, or better yet, get a note from your doctor that verifies this simple fact. Then tell her "DUH"...
Hi everyone - I'm starting to get these, too. Is there a way to PREVENT more from arriving? Is it just as simple as avoiding too much sunlight? thanks, Townsend...
I get red rashes all over, mostly on my legs and feet, sometimes on my inner arms and stomach when I'm doing really badly. It's what I get when I've had too little sleep for too many days, two much...