And I forgot this part. When in the MRI machine for the lumbar & thorasic scans, I had to be pulled out because the machine was making my back so hot, I started shaking and my left leg started to...
Okay, been a little while since I last posted, and thought I would give you all a follow up of what has been happening. Started seeing a neuromuscular doctor last of October, I think. Her first...
Thanks Gretchen! It helps a lot. Lets me know sort of what to expect. Had a great day yesterday. Then today, it took til about lunch time before my legs felt strong enough to walk. They were very...
First, I wanted to let you all know that my appt with Neuro has been moved up! I go on Thursday, the 20th. Previous appt was Nov. 14th, therefore I am happy about that. The office called me today and...
When I had a really bad attack in June, I went to ER, because not only was my muscles extremely weak, but I had a racing heartbeat as well. The ER doc said my potassium was normal, however I...
1/2 of one wall when I suddenly became very sick. Thought surely I had been stricken with the flu as immediately I started having chills and ached all over. I told my hubbie I needed to lie down for...
Lupus is a hard disease to diagnose. Most ppl have it for very long time before correctly diagnosed. Lupus also mimics a lot of other diseases or syndromes. I was told for yrs I had fibromyalgia....
/community/emoticons/smile.gif That's a very nice thought, but not one you really want to do at such a young age. When I was first dxed with lupus 11 yrs ago, I started a local support group because...
I am at a point where I think I will go out of my mind for sure. Don't know how much more I can take. The neurologist office just called and changed my appt from Oct 13th to Nov 14th. I do understand...
Hi again. I posted on here about a month ago with a lot of symptoms I am having and you all were so kind to help me and answer a lot of questions for me. I have lupus, but have been having some bad...
Hi Anita Lynn and to you to Tori, I have had lupus for approximately 21 yrs and now it is highly possible I may have MS too. Actually they seem to think the worst of my symptoms may be MS now instead...
I know this is going to be long, but I will try very hard to keep it short as possible. First of all, let me say, I was dxed with lupus in 2000. At times, there have been some doubt, but then mostly...
/community/emoticons/smile.gif Again, thank you all so much for your help. You've been so kind and informative. Like I said earlier, it's the ppl who have the disease who know the most about it. You...
Thank u all so much for your replies. Understand this is difficult, just so much going on at once. Some doctors don't try hard enough to find out what's wrong which is what I went thru with lupus for...
Hi to everyone! Normally I am on the Lupus forum as that is one of my problems. The other is definitely my stomach, especially my lower right abdomen. I am really going to try to make this short as...
Hi Razzle, Yes, I get chills a lot and no fever. I am one that is always and I mean always hot. Seems my body overheats no matter if I'm walking across the yard or minor house cleaning. But,...
You have every reason to be a %&#*%. I have had lupus for approximately 20 yrs. I have been diagnosed for 10 and I never thought I could make it this far with this disease. As for your rheumy,...
Hi I am new here and do not know if I have Crohn's, but I have dxed lupus and have taken methotrexate in the past for 2 yrs. Six months of oral and 18 months of injections. Let me tell you, the...