My wife did call Mayo on wed. Most disappointly, they never called back. The strange thing is, it's been somewhat sporadic. One day she feels ok the next she is miserable. And it's not like she is...
I wonder how someone would know they were allergic to beans when they weren't before? Most lupus pts are allergic to beans? I'll have to pay attention to what my wife eats and try to find a pattern....
My wife has just started it two weeks ago. She's only on 1000 mg so far and has been in worse condition now than before. What side effects did you have? She been having a lot of flu like symptoms...
Local Rheumy diagnoses my wife with inflammatory arthritis but treated her as if she had lupus. The Rheumy at Mayo said she has a variant of lupus or "some kind of connective tissue disease". She has...
There is a book called "The Lupus Recovery Diet" book that also talks about a vegan diet. I want my wife to try it but she doesn't want to. She eats just terrible. That's the only thing that is...
It is possible to get SSDI the first time. My wife got it. She is only 35 without any major organ involvement. She has "only" been sick 10 months and was approved about 2 months ago. At the time she...
Dr. is the same Rheumy we saw at U of M and he was terrible. U of M must have better Rheumys than that! Shame both of us didn't get a better one because it would of saved us a ton of trouble (and...
Thanks Denita. I know the sick have it worse than the healthy but it's not easy being caregiver to my best friend who isn't the same person anymore, single parent, working two jobs, and sitting at...
Would love to hear from you. I'm really struggling with this. Wondering how other caregivers cope....
Lol. It's great you guys like your Rheumy. I'd like my wife to go see Dr. but she dead set on going to Mayo. I heard they aren't taking new patients but our Rheumy called and we are going Dec 21 on...
Brandi, sorry you still aren't feeling well. Maybe ask your doctor if you can take it by injection. It's suppose to have less side effects and I think it's suppose to work better. That being said, my...
Hope you feel better Brandi. My wife has this disease very bad and never feels good but she goes back to "normal" two days later....
"Hives" was the initial symptom my wife had before all the other symptoms started. Now being on her meds, that and fever are the only symptoms she doesn't have. Were you out in the sun?...
My wife has been taking MTX for about 5 months now. Honestly, we are more afraid of the side effects of some of the other drugs she takes. Your rheumy shoud monitor your lab work to make sure...
Sorry to hear that about your niece. I have three young daughters. Now they have a mom with some autoimmune disease and my dad has MS. So they have it on both sides. I'm terrified for their future....
Bill, what is Rush? A hospital at NU?...
Thank you Joy and Bill for the suggestions. I've read about a lot of the research Northwestern does. That would be the closest for me. We actually talked to our Rheumy. We were afraid we would offend...
I want to take my wife somewhere else. I don't care where. I've scoured the internet trying to find Rheumys or hospitals known for their lupus care. I live in Mich and have what I thought was a good...
Well, it's been 7 months now and little has changed. My wife still isn't even diagnosed with lupus yet. Still calling it inflammatory arthritis. She's still taking methotrexate, Plaq, prednisone, and...
Thanks for all the advice. I will have to go check out that disabillity info on the CP forum. She has applied but not yet heard back on sher disability claim. We did see a lawyer. He said it doesn't...
Thanks Chartreux. I think I might go check that book out. I just got home from work after a 12 hour day and she has stayed in bed all day because she feels so bad. My poor kids pretty much fend for...
Thanks for the responses. She did file for disability. Funny thing is, if she actually got it, it would actually hurt us financially because we'd then have too much money! The bankruptcy would change...
I know how bad this sounds because I'm not the one sick and I know she feels worse than I. My wife went from perfectly healthy to disabled almost overnight. She has lupus and is on many drugs. It's...
Every time my wife starts to make progress she has a setback. First it was (and still is), these vertigo attacks that have caused her to fall on several occasions. Now, as if she isn't suffering...
Doesn't really sound like lupus but there is something called "autoimmune ear". My wife is having a major problem with vertigo and it's maybe more debilitating than the usual lupus symptoms. For my...
My wife is an ultrasound tech. Her hands and wrists hurt so bad I have a hard time thinking she will ever do that job again. Right now she is so weak, tired, in pain, and dizzy she can't do anything...
Anyone have trouble with severe bouts of vertigo? Everytime my wife starts to get better she gets hit out of the blue with a severe vertigo attack that can last days to weeks to months. Her last bad...
Maybe you all have had better luck with ERs than we have. They have done NOTHING for us in the first month before my wife started treatment and she was in absolute agony. Because her labs didn't show...
Well I'm no expect on lupus yet but it certainly sounds like it or some other weird autoimmune disease. As we all know by now, lupus can effect any organ or system, I see no reason why it can't cause...
Thanks for all the advice everyone. As far as my credit and my house... Good as gone, about as fast as my wife's health and our families happiness. We were stupid with our money and lived paycheck to...
Lynwood, thanks for the detailed and informative response. I guess it's just wait and see. Its all very hard. I try very hard to be there for my wife. She is struggling just as much mentally than...
Lynnwood, My wife's story is kind of strange and had the doctors scratching their heads. I'll try to be as brief as possible. My 34 yr old wife was completely healthy and our family went on a 7 day...
B...rad, my wife is in bed 20 out of 24 hours. Those four hours she just sits in a chair. It's an improvement over a month ago where she never came out of the bedroom. It's agony to see her like this...
Lost Husband, if you are still around I'd love to hear from you. I am really struggling after my wife became sick 3 months ago. I really can't imagine the rest of our lives being like this but I...