Thanks so much, Joy and Amy! Really appreciate your responses and glad to hear that it's not something to worry too much about. I've been feeling OK...I dont think I feel any worse or better compared...
Hi Everyone! It's been a while since I posted...I've been doing pretty well (fingers-crossed) and trying to do my best to eat healthy and exercise regularly. Over the past 6 years I have been...
Hey Purplebutterfly, I'm sorry, but I do not have any experience with plastic surgery, but I have had several surgical procedures due to Lupus, although, they have all been performed in the US. As...
Thanks, All for your replies :) Snowbunny - you are so helpful, thanks so much for your support!! Those are good ideas about how to be honest with my doctor and keeping a pain journal is something...
Hello! Thank you all again for your responses, it's really nice to get some opinions and answers to my questions Snowbunny- So sorry for the confusion, I should have been more clear...When I said I...
Hi Everyone! Thank you so much for your responses and advice, I really appreciate it. Actually (I deleted this from my original post because it was already a little long winded), I am apprehensive...
Hi Everyone! I am not new to this site, but I am new to this particular forum. I usually post in the Lupus forum, but I think this particular question might be better answered here....Please bear...
Hi Anna, Sorry to hear about everything you're going thru right now, it must be very frustrating (and painful) not to have an answer. You know, my Rheumatologist once told me that all of his Lupus...
Hey! Joy-I do not think I have DDD because it sounds like it would be MUCH more painful than what I am going thru right now, and I'm so sorry that you have to deal with that kind of pain. It sounds...
Wow...reading these posts are so comforting. Everyone hit the nail on the head with how I've been feeling for the past few years. I actually really did not know that this was related to Lupus before...
Thank you for you're reply, Joy. I have not been checked for Degenerative Disk disease, but I have had a lot of X-rays. Is this something that can be shown in an X-ray or are different tests needed?...
Hi Everyone! I have a history of kidney failure, multiple deep vein thromboses, pulmonary edema, shingles and have mostly recovered (fingers crossed!) from everything thus far. However, I have been...
I participated in the SF Lupus Walk in October and during the walk there were signs posted along the way that stated different facts about Lupus. One of the ones I found most interesting was: "On...
Hi Lynn, thanks so much for your response, it makes me feel a lot better knowing I'm not the only one that feels this way. You're exactly right about pain and fatigue being factors...I have constant...
Hi All! It seems like it has been at least a year since I last posted. In terms of my health I feel like I am doing really well...I have been very stable, my labs look really good. Even though I...
Hey Everyone! After having total kidney failure 6 yrs ago, I feel lucky my kidney functioning returned and are within normal ranges now only with a little bit of protein spillage, the pain from the...
Thank you all! It is very glad to be back, I hope you all are doing well and looking forward to getting back into these conversations...its so important for us to help and support each other :)...
Hello, all: It's been quite a while since i have been back to the forum, I really have missed you all and would like to reconnect and share my thoughts and opinions as well as get support and advice...
Hi! i know its pretty hard to get a loan right now, but if your credit score is good enough could you take out a student loan and then pay it off after you finish school? it could be a possible...
Hi everyone! I am not new to HW, as I was diagnosed with Systematic Lupus, Lupus Nephritis, and Antiphospholipid Antibody syndrome about 3 years ago. Recently, maybe the past year or so, I have been...
Thanks! I will check over in the fibro forum!...
Hi everyone, I have been having a lot of aching in my upper back and neck....I have tried some different stretches...still aching, took some pain medicine (5 mg oxycodone) but it just made me even...
Thanks everyone, those are great tips...I am sort of feeling like that right now...my upper back is hurting from fibromyalgia and I'm soo tired, my eyes are only half open right now (lol)...like you...
Thanks Lucy, I was wondering what to do in such situations, I have lost like 5 lbs over these past 2 weeks...and I was 115 before that...are there even medications that increase your appetite? I am...
Hey everyone, More often than not I just don't feel like eating...even if I am feeling kind of hungry or I know I should eat because it has been a while, I just dont feel like eating. Almost as if I...
Hi everyone, I just wanted to say thank you all again, I thought I was just literally losing my mind and didnt even know that this could be a part of having lupus. I also am drawn to more creative...
Thank you so much for your replies! I was in a fit of tears earlier today because I am terrified that my mind is betraying me just as the rest of my body has. But just knowing that others experience...
Hey Everyone, Does anyone else feel as though they are just getting dumber?! I am in my last year of college (I was diagnosed my sophomore year and took a year off to recover after kidney failure,...
hi there, i am newly diagnosed but i have had lupus for a few years now... i know from being diagnosed with lupus with kidney involvement that weird smelling urine can also mean the you are spilling...
Hey everyone! I havent been back for a while...Ive been so busy with school, doctors appointments etc.. AND I was recovering from a ruptured ovarian cyst that bled 6 units of blood into my abdomen!!...
Hey, when I was on 50 mgs of prednisone I had to get insulin injections every few hours too...212 is so high for blood sugar! you get get a blood glucose meter and insulin to help you regulate the...
hi there!! its good to know that it was only a one day thing and you are feeling better. I actually have an allergy to heparin, so when I was exposed to it a few years ago I had to get blood and...
Hi Everyone! I know this has been a topic of discussion many times but I was wondering...how do you deal with other people who dont have lupus, and dont really know what its like? I am in college and...
hey everyone! thank you so much for your replies its made me feel so much better! I think I will try wearing something at night, it would make things a lot easier, I actually have done that once but...
hey everyone.... this has happened to me a few times now and its it absolutely horrible. I wake up and I find that I have had a bowel movement while I was sleeping...and it is all over me It is...
i forgot to answer your questions! I just started on the dose I am, no need to taper up or anything...when I have some symptoms of a cold or something my doctor usually has me stop taking the...
hey there I have been cellcept for over a year now and it has been a really great medicine for me. i take 1250 mgs of cellcept twice a day and I dont think I have had any adverse side effects....it...
I forgot to add that i had a lot of protein and blood in my urine too as one of my VERY first symptoms. it was stinky!! i didnt think to mention it to my doctor at first because I thought it would go...
Hi there! I am relatively new to Lupus too so i think everything should be pretty fresh in my mind for the "survey" 1.) my first symptoms probably were fatigue and swollen lymph nodes all over my...
hey guys, thank you so much for the support and advice i really appreciate it! I called my rheumy so hopefully she'll be getting back to me soon. I am taking predisone right now so I'll see if it...
hey everyone, for those of you that have fibromyalgia, does it just suddenly appear or is it a gradual buildup of pain? i went to the gym about 3 days ago and the next day I thought I was just...
thanks so much for the tips!! i had no idea there was an APP lol! ill definitely consult my doctor (and mom lol) i would NEVER get pierced with a gun! i used to get more piercings when i was younger...
hi everyone! I know it has been a while since I've posted... I was just wondering, I was thinking about getting another piercing in my ear...I have gotten piercings in the past (before I was...
Like most of you guys, I take at least 20 pills a day and I was wondering if you all had a favorite type of pill organizer that helps you keep everything organized. thanks!!...
Hey! I had a kidney biopsy done about a year ago. I was nervous at first because they informed me of all the risks and how there can be complications and everything but it wasnt nearly as bad as I...
i was wondering if anyone had any experience taking Effexor to control anxiety and that horrible moodiness that prednisone causes (it makes me a psychotic emotional wreck sometimes!!) benefits? side...
hey there! I didnt really gain that much weight in my body when i was on prednisone but my face BLEW UP!!! i looked like i was in a marshmallow eating contest....all the time. it slowly but surely...
hey there! wherever i go i pretty much always use Quest Diagnostics. the have a website you can search for it in google and give the zip code you will be in and it will find a Quest Lab nearest to...
hmm so no one here has had a good experience with paxil! lol. my doctor said i should try paxil because it doesnt have as many drug interactions as other SSRIs and I would be on a pretty low dose....
So i told my doctor about my moodiness and anxiety and she is going to start me on Paxil next week... i was wondering if anyone else uses this medication and whether or not it helps... i have read...