yep, same thing happened to me! I used a patch behind my ear called Transderm Scop (or Scopalamine) that is used for nausea from sea or motion sickness and one of the side effects is that it stops...
oh amy I am soooo sorry and hope that your good hours can be peaceful and full of love/hope. This might be a stupid question but can anyone donate a compatible kidney to you or will the Nephrologists...
Welcome LogansGrammy! I too have a MCTD and have been told by several Rheumys that it often may begin as this diagnosis and inch its way toward Lupus, RA, Scleroderma, etc. But you are in good hands...
I am so happy to tell you that I have gone into complete remission and Ive even stopped ALL pain meds, immune suppressants - except small taper down dose of pred, etc! How, u ask? I am not sure..of...
Wow - just re-read your post & realized we have alot same symptoms! I too had salivary stones (tumors really) - benign. And the severe joint pain, pain everywhere, fatigue, foggy mind - all of it! I...
Oh my gosh! I was treated w Lupron for 3+ YRS for stage 5 endometriosis (it was the only way to "preserve" my organs so I could conceive) but I have long-suspected that Lupron was the reason for all...
Hi all. I need serious advice for severe fatigue! I know it has to do w lack of sleep bc I stay awake til 4 or 5 am & then sleep til kids get home fro school & TRY to stay awake but not always...
I will call my Rheumy in a day or so - need to anyhow as I've had severe fatigue that hasn't improved much. Thx for responding Lynn. :)...
Oops - That was supposed to say the book by Dr SHA! Sorry! :)...
Wow Adam, you have been thru the ringer as many/most of us have been. The hand pain is very familiar to me as is the Raynauds,GERD, rash (now) but these auto-immune diseases are so complicated that...
Oops again! "LUPRON -not Lipton!" Hahaha! Silly me!...
Oops! Its supposed to say "once I had the hysterectomy" - gotta love these little word finders! (On my kindle fire) :)...
Wow does that sound familiar! I too had symptoms appear out of nowhere once I had hus..but I did have some joint pain in the last pregnancy ...so my doctors assumed pregnancy triggered the lupus (or...
Hi all... I need some personal advice & you are the best ppl to go to! Ok..here goes: I have a "mixed" diagnosis of lupus/RA/Raynauds/Fibro ...& I know about the lupus butterfly rash but have never...
Thank you oreo! I've been looking into everything from Jin Shin Jyutsu to Reiki to whatever else I can find! Tai Chi isn't one I had come across yet! The one problem I've been facing is that I'm...
Oh! I forgot to mention - Lyrica sometimes causes more "loopy-ness" than pain meds! Also, I have had good luck with Cymbalta - it helps with not only moods related to pain but pain itself! Good luck...
Although most ppl distrustful of pain meds, I have to be honest & tell you that without them I would not be functional at all! This is a very individual & personal decision and one that should be...
Hi all! I've been on a fatigue vacay! (Hardly!) Just started back on Vitamin B12 shots & hope that increases my energy! Any other suggestions bc I'm all ears! Good thing: my blood"markers"finally...
Hello everyone...it's been a really rough few days! My mom is in the hospital w Viral Meningitis (Encephalitis) - swelling of the brain from some odd & rare virus! She is not cognitive or verbal at...
Also..when we first moved to ND I was already taking strong narcotics for pain (I'm 1 of the lucky ones that has no dependence issues) & I was told to go to the pain clinic here. The physician...
Dear neverthought, I have extreme sweating upon doing any type of activity! It isn't hot flashes per se for me bc I've had those (plus I take estrogen) & they are totally different; hot flashes feel...
But I'm not having inflammation which is a mystery to the Rheumatologist! I'm not sure they know as much about Auto-immune Diseases as they may lead us to believe! He (the Dr) was totally at a loss!...
Dear Cathy, I too am sorry. I'm not a newbie to this disease but new here :) I hear u @ all the meds & illnesses/allergies! Everytime I start an immunemodulator I end up w pneumonia or my liver...
Hope u feel better soon! Have u tried a Calamine bath? Sometimes helps!...
Thanks - ive had a rough week. The Dr just told me to increase Pred to 20 Mg for a few wks & very slowly go down by 2.5 Mg every 2 wks. He also said to quit Arava (immune suppressant) bc he thought...
Ultram is not considered a traditional narcotic although in some States it is still a controlled substance. It does cause some ppl drowsiness but side effect most common is constipation &...
Thank you both for your input! I think I'll stick to modern..er. traditional medicine!...
Well I've been putting this off for 2 wks - ok maybe 3 wks. I called my rheumy this am for appt but she's preg & cut back on her schedule so I have to see her partner whom I don't like (he doesn't...
I have worked in the medical field for nearly 2 decades & I can tell u in the u.s. they wouldn't know unless they called the pharmacy. You should probably inform your physician....
Believe it or not - the pain in legs could be fro lack of calcium. Have u tried this? Also, you mentioned IBS symptoms, do they happen to correlate w your cycle? I had same symptoms before...
Mn- yes, mine did start with positive EpsteinBarre Virus after a difficult pregnancy. Sed rate good place to start but prob will need more - if anything like mine alot more! But u never know - have a...
Make sure labs are done often (should be @ 1x/month I believe). I got relief from Mtx but liver enzymes went sky-high! Wish I could've stayed on it!...
Mamanan - so sorry if I offended you! Did not mean it like that! I'm sure ED probably has ruined some relationships as has Fibro & all of the Auto-immune Diseases. I need to be careful how I say...
I tried twice for SS & was denied bc my Rheum believes if u can possibly work 2 - 3 hrs a day then that's better than SS - she says if a person gets SS there is no motivation to do anything! Ha! If I...
Ok..maybe I'm getting desperate - I just read @ Reiki .. a energy therapy of sorts. Is this another scam?! I went to a Chiropractor once that claimed he could "heal me" for @ $4000 & an appt several...
Haven't had any but just thought @trying reiki (hands on healing therapy). Sounds a little extreme for someone w my condition (lupus) but.. I'm getting to the point to where I will try anything!...
What's Kirby?!!!! Sorry I'm not familiar either though I'm a child (er..teen) of the 80s! Sorry @your mom ..mine kindof same - she isn't really "with" it - early Alzheimer's I think even tho only 62!...
I know! I'm getting tired of the ups/downs..well not many ups :( Having a hard day - not feeling too happy..just full of tears! I know self-pity gets u nowhere. Thx lynnwood for Msg. Feel like maybe...
I'm :cry: getting so sad and frustrated...everytime I get below 20 Mg Prednisone the aches in joints, swelling in hands, knees etc and fatigue comes back with a vengeance! My Rheum seems to just take...
You would be surprised that there are not a whole lot of drug-drug interactions! There is really a short list of offending agents BUT alot of meds have adverse drug reactions that can be from: A)...
Oops! I meant RELAXED attitude! Sorry - sometimes I hate these kindle/nook/ipad keyboards!...
Wow Robin! Your dx history looks alot like mine! They seem to " bundle" like that. I wish I could have your totally confident & not relaxed attitude! I've been flaring one right after the next for...
I cannot believe they didn't do an ANA right off the bat! But..I too went thru this! My last pregnancy triggered the symptoms & I kept telling my OB but he said "No your fine! You have a textbook...
Sounds like a re-run of my life! AS SOON as I get down to 5 Mg of Pred - watch out! I sleep for days on end, hurt like the semi- truck ran me over then backed up over me again! Crystal, you need to...
Yep..bill said it! I'm one that has gone thru Diagnosis (dx) hell. It took 3 yrs to get a dx & by that time I was bedridden & had ruined my career! My family, friends even ME - started questioning if...
Cindy, you nailed that one, honestly saying it better than I could have. I teared up bc ive been there - through horrible pelvic pain (nagging, gnawing, unrelenting until you don't care if no more...
Well the consensus seems to be in: Correlation does not mean causality! (My husb the Economist is always telling me these things) Maybe we all just are stress-cases! I knowing certainty was when it...
Please let me know how she's doing on the Cellcept! I have a healthy fear of that 1 but I'm getting desperate! Thanks for responding!...
Oh Maggie! That makes my heart hurt & brings tears to my eyes! I'm sorry for your misfortune as well as illnesses. I guess noone told us life would be easy but does it have to be this hard?! At least...
Wow Maggie! So sad but I imagine you're right! I can remember where we last lived (wash state) & lots of Russian immigrants & they drank vodka like it was water! That's one way to kill the pain -...