Hello Lynnwood, it's been awhile since I've been on here but I saw your post and I'll take a whack at trying to give you some of my dealings with Trazodone. I also use it for sleep and my fibro. I...
Hi Lynnwood, just trial and error on the meds. If the Leflunomide doesn't work, then I go to some IV thing. I can't remember what med they said it was but it is done twice a year. The lead doc said...
It has been a long while since I have been on here. Mostly because when I scrolled thru the posts, some of my questions were answered. Mainly because, I am just used to dealing with stuff alone....
Mrs. Brady, I have had changes in my cycle as well. Of course, it was hinted that I was nearing menopause but it didn't make sense of when the night sweats would happen. I have figured out for me, a...
I know what you are talking about. It absolutely kills me when I do the shots in my thighs. Does your swelling ever really go away?...
Couchtater I hope you feel better. I am learning that propping my legs up after walking helps with that weird stinging pain for a bit. Now if I only could convince the VA specialist that my swelling...
I do the mtx shot weekly as well. Been on it for over a year now. I can honestly say, like you on the pill form, my poor stomach was a mess. I also have Acid reflux and let me tell you, it was rough....
It has been awhile since I have been on here, I have searched on the internet about this but I would like to know from people that have and are dealing with this. The swelling and bloating. For the...
I came across this and decided to add my 2 cents. I take Plaquinel and was told it would take up to 6 months as well. I noticed a difference in a month after a few dose adjustments. After 3 years, I...
I overheat and my rash gets really dark. I now have a patch in my eyebrow and they itch or burn whenever they feel like. I noticed that a few months after I developed lupus I have some acne on my...
Chartreux, I took the first pill and at the 15 minute mark, I started feeling really bad, my heart rate and breathing changed. I am being started out on 25mgX daily. I could only get the first pill...
yup you are sun sensitive. Cover up, wear sunscreen on all of the places not covered by clothing. Wear sunglasses, and a hat when you go outside. I would venture to say do this on cloudy days as...
Hello All, I have a question about Lyrica. I have been taking it for a week and my thinking is: it ain't worth it. I know I should stay on it for awhile for it to start taking effect, but the side...
Hello, I agree with Lynnwood. It's all about trial and error with new meds. One thing I've noticed with myself, is if I take my methotrexate shot and my plaquenil pill within 2 hours of each other...
Hi, just wanted to say a few things..Therapy-you said you found someone you like, I say go with it. I used to think therapists were weird and well, just plain ol weird. That was until it was strongly...
One thing I noticed at my former rheumos office, the waiting room had soft lighting and I loved waiting in there. I could've hung out in there all day watching tv(provided I had control of the...
Hello all, I have a question. I have been on celebrex for several months and definitely not complaining about it. I like it but the VA does not carry it and is going to switch me to Mobic. My...
Alicat, I hope you feel better. Symptoms are weird with us, after I take my weekly does of MTX, that night, I seem to drool more than usual. Not the sexiest thing to have. Sitting there reading or...
elcamino, hmmm, Vacations, oooh what are those. I really would love to go see my best bud but I can barely handle being out and about for 2 hours. Since I've had ra and lupus over a year now, I've...
I have a question for all of ya; how do you get your trigger fingers to straighten? I used to be able to yank mine straight almost as soon as it happened, but now it can take up to an hour of...
Hello, I was lurking around and saw this post. As I was reading I started to wonder about what does a person do if the Almond milk and rice milk and others along that line make a person(that would be...
Couchtater, I hope not. Trust me, it ain't something I'd wish on a dead eel. Make notes of when it hurts and how long,etc... and go see the rhuemo. I really hope it's not hugs to you...
Hi Couchtater, my hands used to be cold all the time. Most of the time now they are warm. My rheumo guys told me its due to the swelling. Although you may not think they are swollen, inside there's...
Hi, if you are taking Plaquenil, you should take care to cover up while outside. It is a form of malaria med and causes sun sensitivity. I've asked about special diets for lupus. All of my rhuemo...
Don't give up, you aren't alone. I, too have had severe sinus allergies that got worse after my first deployment. I just dealt but after this last deployment and waking up with what I now have, the...
WOOOHOOOO Couchtater!!!If you call the credit card companies, they will work something out. I had to do that, They looked at my history and I just laid it out on the line and said look if I could I...
NanaBee, unfortunately, I will not be able to afford insurance and pay my bills and meds. I will have to rely on the VA system but really hate to lose my civilian rhuemo since he's been with me from...
Hi every one and Thank you for replying. I don't feel so weird now. I just found out I am on a waiting list to see a PT and OT to decide which one will be the best for me. Thank You to all for...
Hello, I have a wondering. Since having been diagnosed with RA and SLE, I have noticed that one of my fingers that the RA has settled in, locks or goes out of socket???. It will lock in a curled...
Hello East, when I was diagnosed with RA and SLE, I was put on methotrexate. I had the usual symptoms of dizzyness, nausea, etc approximately 20 minutes after taking my weekly dose. For a week or so...
Hello, normally I hang out on the Lupus forum since I have RA and Lupus. It was brought to my attention that I may have CFS from my rhuemo. Ok, how does one get tested for it and who does the...
NanaBee,I got my SSD. It's not much but, right now, it's a fortune. Now, the fun part, since I am retiring from the mil next month, I will not have insurance or be able to afford any type of...
Hey Couchtater!!!Glad to hear your vision isn't going too wonky....
Good ol stress, yup, I've forgotten I also have costo this past year. Mostly due to the fact I am learning what kinds of aches and annoyances RA and Lupus cause. If I really thought about it(I'd...
Congrats!!! takes some stress off doesn't it? :)...
I agree with Couchtater, mine was about the same minus the vibrating thing?? No neuro test. Good Luck!!!...
hmmmm are we living in the same state????? When I started my VA and SS claim, I was called by both and asked that lovely question as well. My case is rather weird but, yup, I felt the same way. Like...
Lawchick, I was wondering how the Plaquenil is going for you. I decided to start taking one pill and see how it goes. I've been on it for a week now, no fat itchy tongue. yet...I decided to give it...
HI Lawchick, from what I understand, it's a reaction from the sun, that may be the reason he said not to worry. Of course, if you've never had it before, I can imagine you would worry, alot. I've...
NanaBee, the exam is just a lot of range of motion things to go thru. The "doc" watches and evaluates. Be honest. I never had anything telling me to have someone with me, all my appts. I've done by...
Hi I was reading your post and wow, the stuff you deal with. When I was first diagnosed with my RA and SLE, my rhuemy sat with me and went over ALL of the drugs and such that is used for my two...
I know the paperwork you speak of. Yup, looks rather terrifying and what rattled me was when I listed what I USED to do on my job compared to what I do now, whoa. yup depressing. I'm not gonna lie to...
Thank you Triple L,I am trying, since I do not have any type of medication in me or painkiller, it's a whole lot harder to see the good in things. I just came back from my SS exam. I forgot to tell...
Lawchick, yup well considering I now weigh somewhere around 97lbs. I'm thinking drugs affect me faster....I do hope the plaquenil works for ya this time around.....
NanaBee, I am sorry you are going thru all of this, especially with all of what you have going on in your life. I, like Couchtater am fortunate to live with my parents. I find it interesting that...
Hello Lawchick, I only took Plaquenil for 3 days. 1 pill 200mg X2 daily. I had some weird symptoms and I did notice a difference on the first day of how I felt. my shoulders didn't feel so awful....
Couchtater,I hope your endeavor with SSD goes uneventful and you get it. I have a physical in a few days and am nervous about that thing. I started my claim over 6 months ago and have gotten this...
Hi Seth, all I can say if everyone actually made a list of their issues, man oh man. It takes a strong and honest person to hop on a site and say hey, I got these things what is wrong with me??? I...
Hello itsallgood, I was recently put on plaquenil like 5 days ago and had to stop taking it, I was on 200mg X2 daily. Since I was coming off Tramadol I ignored the weird issues for two days. This...
Oreo11, you just gave me a good idea. I totally forgot about the fresh shakes. well, thank you lupus,lol....I have a smoothie maker or whatever that thing is that was mailed to me while i was...