Hi...I also am dx'd UCTD . Like you I have/am still a guinea pig for every test under the sun. It's soo beyond frustrating trying to get a clear cut diagnosis. Just this week I had an ENG and an EMG...
Oh yes...extremely common. It's so embarrassing. I look like a tomato sometimes. If we go out to dinner and I have a glass of wine forget it...I'm beat red and look like I have sunburn.my face my...
Nicole...where do you find a lupus conference? That would be soo helpful for my family also! Una dia mas....oh how I can relate!!!! My husband is also bipolar and my 20yo daughter has borderline...
I get those days all the time. Yesterday was one of them. It's hard to "find something" or "get up and do..." When you feel like that. I know I usually feel like I just want to crawl into a cave and...
Welcome! I also am dX'd UCTD, fibrao, degenerative disc disease with instability, arthritis, bursitis, TMJ, IBD, nerve damage, carpal tunnel....the list just keeps growing. I was on Plaquenil and...
Oh thank you. I was on the plaquenil for about 5 months. Hopefully the chloroquine will work. I do get very concerned about the eye toxicity tho. From what I read the toxicity from chloroquine is not...
Hello all. Saw my rheumy today. Quick update...had seen him 2 months ago. Tried reducing my pred from 8mg every other day to 4 mg every other day...have been having bad flares. He also had me on 400...
Haha... Of course! I agree regarding the pressure thing too....
My eyes are definitely hypersensitive. I have sunglasses stashed everywhere. I wear them outside, driving, 365 days a year. I can't be without them. And they Re not enough sometimes. I guess I have...
I may be in total denial here but cannot imagine not being outdoors and in the sun. I will probably pay for it physically and maybe that will be a true test of what is going on with me. I live in the...
I've been on medrol maintenance dose of 4 mg every other day. I asked him to increase it. He said to double it for 4 days. It is helping but I don't think it's really kicked its butt yet and I'm done...
Hi all, I haven't been here in awhile. The past few weeks have been revving themselves up for a flare and this week ...BAM!!! Awful few days of laying on the couch doing nothing! My dogs were/ are...
Is an ANA test result of <1:40 a positive result? Rheumy hasn't confirmed lupus yet but says I have a form of connective tissue disease. Started me on Plaquenil a few weeks back. I'm having what I am...
Oh boy, sooo my name is Jen, I have posted here, lupus, fibro and lyme boards before. Brief history, treating for past yr for fibro, lots of tests have been done. Some definitive but bldwrk not...
Hi fwdmotion! I'm new too and my story is sooo similar to yours. I know the frustration. It's like ..I know something's going on, I'm really NOT crazy! Yesterday I followed up with my rheumy who ran...
Hi. I'm 39...being treated for fibro for about 1.5 yrs. Lately having severe flare of symptoms and new symptoms. Rheumy checked for lyme (positive but ID dr said negative) and RA, thyroid, lupus, and...
Hi. My name is Jennifer. I'm new here. I am dx Fibro for about a year and a half now. Treating with rheumy at big nyc hosp. I have soo many other symptoms. He draws blood and nothing is ever...
Hello everyone. I was wondering if anyone has been to see Dr. "C" in Mt. Kisko, NY? If so, what was/is your experience? Also, I have no idea if this is related to lyme or not but yesterday I woke up...
Thanks for your replies. The rheumy had me on adderall for fatigue. It helped but now I've had to stop it due to the racing heart and palpitations. My primary said something that it could be lyme...
Hello everyone. Im new here. Freshly dxd with lyme. Being treatedfor fibro for about 2 yrs now. Primary happened to see bldwrk results from rheumy ... Said lyme positive and 21 days doxy abx. Ok......
Please email me too. I am also in the Hudson Valley...