Hi my ex was diagnosed with shingles by her gp turned out to be sub actue cutaneous lupus ie skin lupus get it checked by consultant...
Hi Barbara,firstly greetings and many cyber hugs from across the pond in the UK. I just want to try to give a male perspective to this as a husband father and previous carer to my lupus family!! Your...
Thanks razzle appreciate your reply....
Hi does anybody that has sulphite intolerence and problems with a yellow coating on there tongue,just wondered if it was linked.Seen my dentist,gp and both say nothing can be done,i do smoke have...
Was told by sons Consultant that quite often other family members have autoimmune illnesses i.e. thyroid. Lupus is running in our family my ex-wife and son both d/xs daughter thought to be "evolving"...
Hi Mommyof2little1s,whilst plaquenil is a mild immunosuppressant i dont think it will be strong enough on its own to make significant changes to your blood work.However i am sure there will be more...
Hi again Miss Lupus,you say they mood swings occur monthly? Could they be linked to your menstrual cycle/hormones? Probably a good idea to get it checked out with your G.P./Consultant all the best...
Miss Lupus you wont/shouldnt have any weight gain on 5/7.5 mg pred.My son was on intravenous steroids then 60 mg a day oral pred,he put weight on,but they saved his life!! As for exercise ask to be...
scaredmom2,re sunblock,dont think the sunsense would make the rash go away,but might prevent it from erupting,hope this helps paul...
TobyJC,they couldnt confirm it was the chemo,but was strongly suspected.Cyclo = Chemo.He had about 9 months of treatment,monitered yearly afterwards and was found to have returned to normal,should...
My son heart became enlarged after cyclophosphamide,worried his drs a bit but was put down to the chemo,it is fine again now,hope this helps....
MissLupus how thigs with sunblock,much easier than cream to apply?...
UKnewbie,am from UK,suffered with this for most adult life,my GP said probably nver find the casue.Well i di bout 4 years ago now went watch footy away 200 miles,so packed picky things to eat for...
Patty very glad not cerebal lupus! hope u get sorted paul xx...
Hi miss lupus,sorry to hear you not been well,hope ur ok now regards paul ps are you a member of lupusuk? good organization,helpful and magazine every 3 months with up to date topics!...
Miss lupus no probs hope it works for you,get you dr. to prescribe if its ok paul...
try nystan (sp) pastiles they are avalible uk dont know usa equilalant sure there must be some though,hope you feel better tomoz paul...
Oh sorry didnt realise it was a problem,my legal minefield these days!!...
haha well u av nothing to worry about re pregnancy n antiphospholipid! they will ensure everything will be ok.Sunsense no probs lass glad to help somebody out.paul...
goggle is your friend if we can get uk,think is australian manufactured,then am sure u will be able to get it somehow!! hope this help paul...
Haha good ur registered there.Having researched lupus for years st.thomases always comes up as major centre Dr.for example assisted dr in research into antiphospholipid,do u know its also called...
Miss Lupus will post em tomoz!!u do realise that in london st.thomases hospital is biggest lupus hospital in uk,more consultants than anywhere and antiphospholipid is there speciality!!I live north...
Do u not have free prescription Miss Lupus ? no cost from dr. i have at least 6 in cupboard,could mail you 2 too try,please dont think i want your address to stalk anything will post em to ya free of...
mally please be aware i am in the UK,may/maybe not available in your country,but no never seen it in shops over here prescription only i think paul...
MissLupus it is called SUNSENSE ULTRA SPF50+ it is a roll on type which my kids found much easier to apply and they would actually use it as opposed to lotion which is hard to apply as its so...
misslupus are u aware there is a roll-on factor 50 avalible on prescription uk?called sunsense...
You should ware factor 50 sunblock on your face regular,even on overcast days.Even in the UK which is a not very hot climate it is recommended,hope this helps paul...
PattyLatty cerebral (brain) lupus is incredibly difficult to d/xs,my ex-wife was d/xs with it but she had 4 minor strokes causing small areas of the brain to die.An astute dr. will be able to...
jstjohny,not gunna argue with you but if you read my post i DONT have lupus but my family do.Do some intense research dna,ds-dna,anti dsdna,r np heavy reading but worthwhile...
WOW,you have your belief bud,hope it works for you.take care...
jstjohny,wish it was that simple.Have you actually looked at the multipule genes that are involved not just a singular one!extremly complex illness,and until they find the cause,i think will never...
lillash,wow you have really been through the mill with your lupus!Hope you improve wont be overnight(as you know)but with right medication,strong sense of self belief hopefully you will get there!As...
Just be aware of the total cyclophosphamide that you have to much and potential other problems,overdosage (but neccessary)caused my ex-wife to require hysterectomy at young age due to chemo causing...
Thanks Butterflake,both are much better these days,my son now 20 lives away independantly at uni,my ex-wife is so much better these days no recent flares in years.I think her hysterectomy some 8...
Hi miss lupus,recall you are in uk!i am a chap aged 50 dont have lupus myself but been dealing with it past 17 years.My ex-wife had severe lupus (cerebral)d/xs 17 years ago i carried on working after...