Thank you Joy for the infomation. I'm happy that I found this site. In my little town there is only one rheumatologist so I travel 30 miles one way to see another. I don't have any confidence in the...
Bill I'd like to thanks you also :) I never knew there was 3 broad categoies. In 1997 I had a big one that lasted 4 years, then went into remission. Then 4 years later came out of remission for 4...
Sorry to hear about your problems, everything you've been through already, and everything your going through right now. I do believe that medications that are given cause other problems with their...
Look all the way down the pg and you can see who is online in here. I've never been on Benlysta so I don't know much about it. I wish you well!...
Isn't the rashes and the butterfly rash called Discord Lupus? They thought I had lyme disease at first. I never had any rashes I have SLE Lupus....
sueg, I found if I write down my questions before I go to the doctor apt and sometimes I write their answers down too. I thought I might be the only one that has problems with speaking out loud what...
I'm going to try to make this comment short, for I read everything every one said and you got a lot of good advice. I have lupus, the only sure way they found out that I had lupus was a biopsy. After...
Of course it's ok for you to feel the way you feel. Nothing wrong with telling them how they made you sad if you don't say anything, how would they ever know? Talk to them you may be right in saying...
Lupus attacked my kidneys in 1997. I woke up that morning with my feet the size of footballs and my legs were huge, I could hardly walk. I went to my doctor, from there a nightmare of tests, during...
I feel like I've been living under a rock for until recently I have become aware of lupus fog. It's real, it's why I have problems saying how I feel, getting the right words to come out of my mouth,...
Joy, Thank you for your reply. A genetic "switch turns on in our bodies", I had never heard of that until now. Makes sense, so research needs to find out what turned on the "switch" so it could be...
Years ago they ran all kinds of test on me in 1997 even after months and months of test they decided to do a biopsy on my kidneys that's when they knew for sure that I had Lupus. The rhemy that I had...