I'm sorry you had to deal with the lovely pain of a ruptured ovarian cyst! I too have endo and have had ruptured cysts and its HORRIBLE! Hope you feel better soon!!...
Barbara, I'm so sorry you're going through all of this. I'm angry when I read about the way your husband is. I guess because I am VERY blessed when it comes to the husband department. I agree with...
Hi everyone! I'm feeling super down right now and need some advice. I have been a nurse for 5 1/2 years, working mostly as an ICU nurse. I recently changed jobs to a sit down job that still allows me...
Thanks so much ladies! I have talked with my rheumy quite extensively about weaning off my meds and having a baby (she just had a baby so its easy to have the conversation). The sad thing is.. she is...
Hi everyone, Haven't posted in a long while but have had some things regarding pregnancy on my mind so figured I'd bring it here. I'm currently trying to wean off of all my meds so I can eventually...
I just had these same labs drawn on Monday and results called to me yesterday. But I'm sure bigger hospitals it takes quite a while longer because of patient volume....
Welcome Mrs. Mitchell! I'm glad (but not glad for your sake) that there's someone out there that can understand what its like to be tossed from one doc to the next. I'm sorry about the diagnosis of...
Barbara, Thank you for taking the time to message me. I know you're going through a lot right now and it takes so much energy for you to do this. I appreciate you ideas on the pro's and con's list....
So as if I wasn't confused enough before, the new rheumy I went to the other day just called me. She said that all of my labs look pretty normal and that my ANA is now negative. Could it be negative...
Lynnwood,I have tried all 3 :) Currently I'm on MTX injections once a week. First we tried MTX pills and when I got to the dose that was making me feel a little better, I was so sick and had diarrhea...
Hi guys, Just checking in and wanting to vent a bit. I went to a new rheumy today for a second opinion, just as a backup for when my current rheumy goes on maternity leave. She was very nice and...
Barbara,I'm so sorry you're having such a rough time right now. I'm sending lots of prayers and hugs!! Hang in there!!...
Thanks everyone! I go to see a new rheumy on Monday for a second opinion so I will bring up all my sleep problems. And Joy, I did not realize melatonin could cause flares.. my PCP actually...
Joy, I've never had a sleep study. I've always had troubles sleeping even before lupus and all the meds. I was doing better when I started lyrica because my legs weren't constantly burning and...
Hey everyone!!I'm sitting here in tears just reading your replies. You are all an inspiration that I really can do this. I've been feeling a little better emotionally lately, I think because I had a...
Hi fellow lupies! I hope everyone is doing ok and having low pain levels! I've been having a really hard time lately and just want to know how do you all keep going? How do you keep telling yourself...
NanaBee, I can understand your frustration when it comes to not being able to take meds together. I have had serotonin syndrome before and now I have to constantly check for interactions between...
The miralax may be what's making you feel bloated. It pulls water into your bowels and that's how it works to move your bowels, which can also may you feel and look bloated. If you are using stool...
My lymphocytes are always low and neutrophils are always high. Never asked why but I also blamed it on all the meds....
I've been tested for Celiac and it was negative. I don't have problems with going to the bathroom ever.. just the pain. I don't know.. just another random thing lupus has given me unfortunately....
Hi everyone! Just wondering if any of you have persistent abdominal pain with lupus? I have it on and off all the time. Sometimes it gets so bad I can't stand it. I've been to the ER multiple times...
Lol! I pull the I'm a nurse and know where my good veins are. Don't even try to stick me in the bend of the elbow in my left arm, don't stick my wrist, there's good ones here and here :)...
Its sad that we "get used to" having our blood drawn or have injections because we have to have it done so much! Here's to good veins and one stick :p...
Joy, I know they are available in prefilled syringes. I wasn't offered that however. My husband offered to give me mine.. even though he's terrified of needles, blood, etc. He just wanted to stab me...
Joy, I totally understand. I don't enjoy being on this side of the needle either but at this point I'll do anything to feel better! They sent me with insulin syringes (which are tiny little needles)...
Hey Butterflake!Thanks for the encouraging words and reassurance. My rheumy's office called today and said my doc called in a script for the subq MTX injections so I made a trip up to the pharmacy...
Hi everyone,I'm having a really rough time right now /community/emoticons/cry.gif I've been on short term disability for 3 weeks now and off of CellCept this entire time. My rheumy discontinued it...
Not to state the obvious but, have you been to a doctor to have the hives looked at? Hives can be from a number of reasons.. allergy to something, medication, food, etc. Have you tried taking...
I subscribed to my local lupus chapter.. I live in the St. Louis metro area so ours is called the Heartland Chapter. Search for your local chapter and if you follow their events they should have...
I was taking Nucynta 75mg q4prn. It provided me great pain relief but I had that "high" feeling too. It also made me very anxious for the first hour or so after it kicked in and also caused...
I am so sorry that you are dealing with lupus and family issues. I am lucky that I have a supportive family but have experienced people say that I'm faking it or why don't you feel better yet? In the...
Try not to get overwhelmed.. I agree that it sounds like photosensitivity or it could be hot flashes from the steroids. I wear sunscreen everyday, no matter if I'm leaving the house or not. It just...
Butterflake, I'm so glad you posted this (however not glad you're feeling terrible). I was diagnosed a year and a half ago and I feel like I've never stopped "flaring." I've been on so many meds and...
Hey everyone,I'm going back to see my rheumy on Thursday after 2 weeks of only plaquenil and prednisone (we d/c'd my cellcept). I'm not doing good and my doc said we're going to discuss what to do...
Hi Teddtlove,I'm sorry you're having so much trouble with joint pain. Joint pain is my main lupus symptom so I've tried just about everything. I use a heating pad, ice, TENS unit, Biofreeze, Salonpas...
I have been on prednisone for a long time. I managed to wean off for 9 weeks but had to start taking it again over a month ago. I am at this point fed up! And if anyone can relate I know its you...
Welcome Lise60!Thank you for your words of wisdom and encouragement! Its nice to know that eventually you can live with lupus. I've only been diagnosed a year and a half and lupus has been kicking my...
Barbara, I'm so sorry this is happening to you. Its hard enough to deal with chronic illnesses let alone family problems. Not trying to stand up for your daughter's behavior but as a young woman who...
Couchtater- I'll have to check it out /community/emoticons/smile.gif Barbara- I went to the Dr and we talked all about my little episode. She still thinks its med related so another 2 weeks of only...
I know. I frequently try to reapply especially if I'm outside. I try to wear ball caps when I can but haven't found a good floppy hat yet. Still in pursuit /community/emoticons/smilewinkgrin.gif ...
Thanks everyone for your feedback! I want to make sure I reply to everyone's questions so.. Couchtater- I am sensitive to the sun but I don't really know about fluorescent light. The sun eats me...
Hi everyone! I've been battling lupus non-stop for the past year and a half.. I beat one thing and have something else happen, story of my life. I was doing better and had managed to wean off of...
Robin, I understand where you're coming from. I'm only 25 and people look at me and don't see how much pain I'm in. I laugh a lot of things off when inside I'm in tears just trying to walk. I work 12...
Gina, Welcome! I'm a newer member too and was interested in your story when I saw that you were diagnosed when you were 25. I found out on my 24th birthday that I had lupus. I've been battling for...
Hey fellow lupies, So I recently got a 2nd opinion just to have a new set of eyes look at everything that's been going on with me. I had given my current rheumy a year to get me to feeling well and...
Thank you guys so much! I'm sitting here crying reading your replies and encouragement. I know I push myself too far and I don't know why I continue to do it. I guess because I feel like I have an...
Hi everyone! I've been reading through everyone's posts and its making me feel a little better and like I'm not alone. I am 24 and was diagnosed with lupus in March of 2012. I was immediately started...