Thanks Fran. So I had testing with the speech pathologist. Looks like vocal cords are thin but ok. However had major problems talking to her and breathlessness causing weakness over. Ended up in...
So, I've been on short term disability from work for three weeks now. The cough I complained about that started in about June progressed into breathing problems, or at least trying to get my breath....
Hi guys, I'm back on the forum. It's been a while I know. Thank you to EVERYONE who replied to my posts. Update: it took quite a while to get over the small bowel obstruction and I still have a lot...
Actually spent eight days in the hospital. Recovering at home now so ha ve to get my strength back before I start the treatment. Sorry you started with a flare..hopefully it is just stress that...
Sorry..I'm in the hospital! Admitted by ambulance six nights ago. Have bowel obstruction. Missedmy first benlysta infusion appt. Very annoyed. Wd be interesting to hear how yours went. Fu nny when...
Wish me luck guys, I start my Benlysta on Friday. The last two weeks I've been having so much more trouble sleeping, getting just a few hours a night - doesn't help when I have to work 9 hours a day...
Barbara, do you have a health advocate with your health insurance? I am fortunate my company offers someone that can talk to the insurance companies or doctors for me, if things get too much, which...
Just empathizing here, past two weeks of 'feeling tired' and not sleeping more than 4 or 5 hours a night - usually need 8 to 10 to get restorative sleep. Can usually sleep ok with my sleep meds but...
Just speaking from personal experience (and certainly with no medical/doctor experience), it sounds like she's getting serious with trying to find out what's going on with you. Getting a baseline of...
Barbara, please take care of you and know that we're all thinking about you. I'm having a rough day too, but NOTHING in comparison to what you're going through. Hang on, take each hour as it comes,...
Hugs right back to you Barbara.. and I said a thank you in one of my other posts where I was looking for bed recommendations. Take care of you....
Thanks Barbara, you are so very kind, despite going through everything that you have. I am leaning towards the mattress topper, as I have been trying a comfortable folded up under our flat sheet and...
Thanks everyone. At least my husband thinks my voice sounds 'sexy' when I start going hoarse, so I suppose that's one benefit. It started again today, just out of the blue, no reason. And, I'm at...
Thanks guys. I was going to go bed shopping, just wanted to know if people had any good experiences. Dreading the trekking around the stores, I know it's going to wear me out, but it has to be done....
We are in the process of building a room addition to make life a little easier for me... our current bedroom is up some steep stairs. We're considering buying a sleep number bed because I have a lot...
Thank you both for your advice, glad to know it's not all in my head! I am so glad I found this forum. So much of what I've been through, I went through on my own before I got married almost four...
So with my recent new diagnosis of a 'lupus-like' disease instead of an 'arthritis-like' disease I guess I feel better that after more than 7 years I've finally found a doctor that is willing to take...
Barbara, I am new to this site and have only posted a couple of times but I have read a lot of yours. You really seem to have it tough and I'm sorry. You always give me a boost even when your...
Laura, I am a new member too and I can totally relate to your daughter's problems. Mine came on in a similar way and it was frustrating to the nth degree. All the symptoms are very familiar to me,...
Melissa, thank you for the information, it helps a lot! I have been on a lot of different medication over the years, including Enbrel, Meloxicam, Celebrex, Methotrexate, Prednisone, Colchicine,...
Double check about the meds... I have taken percocet and klonopin both together and haven't been told this could be a problem....
Hi, I'm new to the forum and just been told (Insurance decision pending) that I'm going to be given Benlysta to begin treating my symptoms. Brief history, seven plus years of problems. Began with a...