I haven't visited the forums for a few months. Now I wish i'd had. Been going through a lot of issues the last 6 months and I thought of Barbara tonight and decided to come see what she was up to....
Praying for you Barbara to get through the surgery easily and you feel better soon. Thank you Lynn for the update also....
I'm still here, been over in the thyroid threads for a while but I keep reading just not commenting. I was diagnosed with Hashimoto's Thyroiditis the day before Thanksgiving. My immune system is now...
Well, if you look at my signature line you will see I have been given a new diagnosis. My immune system is attacking my body again. This time it's attacking my thyroid. This is getting to be so...
Hi Barbara, happy birthday, sorry to hear you're still feeling poorly. I haven't been on in a while but decided to stop in and say hello. I'll keep you in my prayers. :-)...
I have been on the generic form of Arava, called Leflunomide for the last year. The first month or so I lost some hair but it finally stopped. My hair is kind of thin now but I haven't gone bald. So...
Memory and balance problems come with Lupus for sure. If i'm walking there are times I will start wobbling to the left or if I turn too fast i'll wobble. My husband sometimes calls me Weeble Wobble....
I have Connective Tissue Disease as well as Lupus and RA. My dr has never sais if it was uctd or mctd. Seeing as how I have several I guess you could say mctd. Anyway,I have had the swallowing...
Sorry to hear that he's hurting so much. I had growing pains from the age of 7 and my mom has told stories of me waking up in the middle of the night screaming and crying I hurt so bad. I was always...
Hi and welcome, Sorry to hear you're feeling crappy. Rest when you can because you will be tired almost all the time. It has been a year and a month for me since I was diagnosed. I have good days and...
Glad to hear you are doing a lot better than you were Barbara. Try not to do too much at 1 time and let your body heal. Still sending prayers your way....
Hi Emmi, I get the mouth sores on my tongue, inside my cheeks, on the roof of my mouth and on my lips. Thank goodness not all at the same time though. I've got a big 1 on my upper lip I've been...
Good to hear that you are finally feeling better and get to go home. Yaaaaaa!!! Please take it easy and don't try to do too much at once, PLEASE! You don't need to go back in. My prayers again that...
Sending prayers...
Hi Shelly, welcome to the forums and sorry to hear you're not feeling well. I was diagnosed last Dec. 4 and wound up in the hospital the last part of Jan with a Lupus flare and needing a blood...
Wishing and praying for you Barbara. Hope you get to feeling better soon now that they have finally figured it out. Thank you Lynnwood for the updates....
Oh yes, I have been hospitalized twice with Lupus flares and needing blood transfusions. It's not fun....
Hi Ena, welcome to the forum. Yes, Tylenol for me is the best. Also if you are really achey, a heating pad or electric blanket helps. A bath with Epsom salts also helps with tired, achey joints and...
What Lynnwood said. She seems to be able to explain it way better than my dr's have done....
Sounds like it's time for you to see the dr Couchtater. I hope you get to feeling better. I have never had a pneumonia shot and now it seems like even if you get a shot you can still get it so what...
I have problems with my feet and legs all the time. It ranges day to day what problems I have. For the last couple of months I have had what seems like a cramped calf muscle in my left leg. Not...
I have done that and I have gone to turn right and I've turned left instead even though I was meaning to turn right. I've stopped at green lights and i've run through red lights swearing up and down...
Have you started a new sleep med like Ambien or the generic equivelant? That has been know to do that....
Hi Melody, How long have you been gluten free? Sometimes even though you think you may be gluten free you may be still getting glutened. There are some people who are so sensitive that little pieces...
Are you having a cold front come through? I've noticed I hurt all over and feel like crap a day or 2 in advance of a cold front....
Barbara, you take care of you. I thought that's what these forums were for to help everybody that needs help, give someone hugs and a shoulder to cry on if ya need it and to share the good things in...
Thanks Lynnwood, Since I've posted this I found out it's very expensive and even if it does work I can't afford it so I may not even try it because what's the point if I can't get it. My ins will not...
Sorry, I misspelled it It's Nuvigil .Dr. gave me a 7 day trial of Nuvigil for my Chronic Fatigue. Anyone familiar with this 1? She said it would help with my symptoms with my Lupus. iIt's a 150 mg...
So sorry to hear Barbara. I am sending prayers and good thoughts your way so hopefully you feel better when you wake up. I turned 49 in May myself and there are days I feel like i'm 90 and I know...
Hi Barbara, I've wondering how you were feeling. I wish there was something I could do for you....
At the moment the only meds I am on are Leflumomide, generic for Arava, it is mainly used for Rheumatoid arthritis. Which is interesting because I have not tested positive for RA but it sure has...
Thanks for the replies. No, not on fish oil. I finally started doing some research and landed on the The Lupus Foundation of America website. It states that some people with Lupus have a higher...
Hi, everyone I have a question again. This time about high cholesterol. I watch what I eat and I also don't eat that much when I do. I have watched what I ate since I started living with my husband....
My husband has been somewhat supportive of me since I was diagnosed but yet there were days that he would get upset with me because when he is home he wants to go out running around and I just...
Hi Barbara, I wish I could give you a hug and shoulder to cry on. Will be sending prayers your way for you and your family....
Oh hon, i'm sorry. I would hope that you could talk to your dr and complain, unless you don't think that your dr would listen. I can't remember if you're on disability or not, if you are not then...
Hi and welcome to the forums. I was diagnosed with Fibromyalgia first, then a gluten intolerance, then Hypoglycemia, then all my back problems, then Rynauds, then Gastritis, then I started seeing a...
Thanks for the info, i'll be getting that stuff and using it. Thank you for the tips....
I'm seriously starting to dislike drs. I was diagnosed with Systemic Lupus back in Dec by a Neurologist. I had been having balance and cognitive issues so I went to see her. I am supposed to be...
And here is the typical saying. Wow, and here I thought I was the only 1. /community/emoticons/tongue.gif But yes, since the day I was dx'd with Lupus my dr suggest I keep track, and my normal is...
My hips started to hurt day before yesterday and I was told last night and this morning that i'm walking like Donald Duck. I was upset at first but then I though well heck just laugh, it could be...
Thanks everyone for your replies. First off will be getting a new Rhuemy but can't get in to see her becasue she is all booked up until late July. I hope that means she's good. After years of having...
Well, it just keeps getting better and better. NOT! Went for a regular checkup yesterday and told her that I really don't feel anybetter. I'm having problems sleeping, anxiety is getting worse,...
Thanks everyone for the replies. As far as the IRS taxes are concerned. hese happened before I married so even if we divorced I am still responsible for paying them. I have filed for disability so...
I Know a lot of you have gone through this but want/need to vent. I was married to my first husband for 21 years, he was abusive in every sense of the word. I finally got out of it and pronised I...
Sounds like a flare. If you're still hurting like that by monday morning you need to call your rhuemy for something....
I can't wear earplugs because my ears are so sensitive it feels like someone is sticking a knife in my ears. I have a hard time sleeping unless I have a low steady hum like a fan on. Someones teeth...
Yes, you can have Lupus without many symptoms at all. And if the drs are reluctant to call it Lupus. That could also be known as a Connective Tissue Disease. That's what most drs call an AI disease...
Oh Barbara, i'm sorry you had to go in but now you can get better. Aren't you just a little relieved that you know what is causing the pain? Hang in there and know that we are pulling for you. Gentle...
Yes, I also, have this. My right hand is my dominant and it will start feeling stiff and I will stretch it and it will pop and snap but no pain really to speak of just a relief of the stiffness. I...