Hello everyone, I am new to this forum but am kind of active on the lupus forums (because I have lupus). My 8 year old daughter had a TSH of 59 (normal is less than 4.9) and a normal Free T4. She had...
So hard to find a reply to this Sunset. There are so many people who deal with cancer who are bald that it is almost a "badge" now. "I have cancer, I am bald, I am okay with it". I know you dont have...
One of the symptoms of lupus is sores in the mouth. As for dermo's... I havent found one in the past five years that wants to do "real dermatology" any more. They are (at least here in Vegas) mostly...
This is a tough one. I referee soccer and am out in the sun for a few hours on Saturday mornings in Vegas. I try to be done by noon. I am not sure if I am sun sensitive or not. I went two years after...
Hi all, I am in a whimsical mood today. I slept pretty good last night and when I sleep well I feel *almost* normal :-). Except for the fatigue. And - like all of you - I am "sick and tired of being...
Stupid question but my Rheumy put me on Cell-Cept for my LN - what is his reasoning for taking you off? Is he saying that the Cellcept is causing kidney damage? They use Cellcept in place of Cytoxan...
Ahhh, but allergies are not contagious diseases. I get what you mean about colds and flu and "catching them" because our immune systems are suppressed - but allergies are the immune systems response...
Hi everyone, This is a "comparing notes" post. I didnt have any allergies until about 15 years ago. They were controllable with Flonase spray until my lupus was triggered five years ago. Now, every...
Gotta agree with Lynnwood. My rash started with a pencil eraser sized dot on my nose. After a month it became a dime sized spot. Went to a dermo - he said "Roseace" ... here is some expensive lotion....
The thing is... Lupus is a "bucket" diagnosis. It isnt like "Ya, you have colon cancer because we can see the cancer in your colon" (sorry if that is a terrible analogy but my dad passed from colon...
Very hard to say Girlie. You dont say if you are on any meds, nor do you mention who did the antibody test. I have found that my PCP orders all the wrong tests and that I have to go to my Rheumy for...
Am nodding my head at couchtater on this one. My kidney doc said my days of Advil were finished and quite honestly Tylenol does very little to relieve my pain. I used to eat Advil like M&M's :-) but...
My numbers in my first reply were completely off :-). That is what I get for trying to actually REMEMBER anything anymore! Not sure which Reagent strips your kidney doc is using but the ones mine...
You dont mention if you are on any meds. I was put on CellCept and it did the same thing to my arms. I feel like I have no strength in them even though I can go to the gym and lift weights. So I have...
Hey Couch, I dont want to be a downer but you have to be careful here. There is more to it than just how much protein is in your UA. As Aimsgirl mentions Creatinine is also important as is the GFR...
Hi Cathy, I had my first infusion last week. Second in the series is tomorrow. Then four months between them. After one dose I can honestly say I do not feel better nor worse - but it can take a...