I saw my rheumy today and discussed my thyroid issues and looked over blood work. thyroid tests all good. lupus blood work came back negative. ANA still positive, crp and sed rate still elevated....
Thank you Lynwood. I see my rheumy next week and will mention the above. I do see a neurologist Had an EEG 2 wks ago and everything was good. MRI showed lesions 6 mos ago. I am scheduled for another...
Lynwood I am on Rayos 5 mg, hydroxychloroquine 400 mg daily, duloxetine 60 mg, diclofenac 50-100 mg a day, and synthroid .75 mg. I feel like I have been sleep walking all this week. I have been...
I have GERD and constant bloating, I have difficulty swallowing if I have soup with meat or veggies, juicy fruit such as watermelon. It is as if I can't chew and swallow a the same time. I get full...
I am sorry to be posting so much tonight but I guess I am feeling a bit anxious. Can you feel your anxiety coming on? I did today. It first started as an annoyance with a co-worker talking about...
I could really use some advise. I am in the process of being diagnosed with some type of autoimmune. As of now they are ruling our lupus, RA and MS, So in the end I may have MCTD. I am currently...
Thank you both for your replies. Yes Amethyst4 I agree about pushing myself not having a diagnosis. I don't fall directly into one AI and so the Dr continues to work on eliminating diagnosis. AT...
I am feeling pretty much like a failure these days. No diagnosis but not feeling human. Good days bad days, feeling up then crashing down. It is hard to know what to expect one day to the next. I...
Thank you...
Lynn, I am still on the Rayos. I think they started on a low dose because I think they thought it was human parvo virus B19. But since inflammation is on the rise again they are revisiting possible...
When it is said that a diagnosis of lupus is not always made on blood tests alone what are the other ways of making a diagnosis? Is a burning sensation on the face common in lupus?...
It has been a while since I have posted. I am currently seeing a neurologist for brain lesions, numbness patches on legs and hands and feet, burning and tingling on face, and brain fog issues. I am...
Jim what were your first symptoms?...
Thank you Jim. We talked a little about Lyme disease but they don't feel that is what it is. They said I did test positive for a Human parvovirus B19. (Fifth's Disease in children). It is a little...
That is crazy. I am glad you got your diagnosis quickly. I don't know if I have MS. I am so focused on how I feel on a daily basis that I sometimes wonder if I am looking for things. So I have made a...
Voodoo doll did you have issues before landing in the hospital? Do you have a family history? I was stunned just knowing of the possibility of having MS. Since I have no actual diagnosis I am sure...
Today I have had some weird issues. Out of nowhere my ears seemed to plug up and my hearing was not efficient. That lasted for about 30 minutes. during that time I felt very heavy and weak in the...
HI Bad Mojo The burning on my face first started out on my lips and under my nose. and has since moved to most of my face . but the worse is still under my nose. The pain I get is primarily in the...
I also forgot to mention I seem to have word finding difficulty, memory issues and more easily confused. Again these tend to come and go but it is quite disturbing....
Hello, I am not diagnosed and not sure if I ever will be but here it goes. I know you are not Drs. and cannot give me a diagnosis but I was hoping for your experience and thoughts on the matter. It...
Oh forgot to mention they are ruling out MS. I was told the lesions are indicative of MS but I don't present as a classical MS patient. ( I did not know the was such a thing in any autoimmune...
Hi Barbara, Yes I have other symptoms. I do get tingling in my hands and feet and occasionally in my elbow. I also have issues with my sciatica from time to time. Over the past few weeks I started...
Yes Joy adults can get it, it is in a different form. Most people do get this as a child and then have immunity from it. And from the test interpretations I have read( online thou) I should be...
Hello. sorry for the long post I just needed to vent and let it out because I am trying to remain strong in front of Family as to not to upset them . \I have been going through the diagnostic phase....
Thank you Icanspell. It must be difficult to have to children at home and suffer from Fibro. Being a stay at home mom is a lot of work without any issues. My kids all live at home but my youngest is...
I hate feeling out of control. ugh! I may have to take a peek at that you-tube video....
I am feeling an overwhelming need to shed tears. I have been holding back for sometime. I have been acting brave and as if I haven't a care in the world. Although I still have no clear diagnosis's of...
My new rheumy made me feel better and justified about my fatigue and pain. I was starting to think I was turning into a hypochondriac. He assured me that blood work doesn't lie and there is something...
Thank you, I do too!...
After complete dissatisfaction with my first rheumy I saw a new one today and he was VERY VERY Good!. He has a practitioner that works with him. She spent 30-45 minutes with me going over my history...
Thanks...
I am sorry if this sounds like a stupid question but Is the thyroid gland considered organ involvement?...
What should I expect from a Dr. visit with a rheumy? I did see one rheumy in Nov and I was not happy with his comments so I will be seeing someone new on Tuesday. My first rheumy only tested my...
I just read that that burning sensation around the lips could possible be discoid lupus? I looked up pictures and I have a very similar look but much more mild. I also get little red blotchy bumps on...
I had a very busy weekend. I worked and played hard. Since then I have had increased pain from time to time and weird bruising as well as burning on my upper lip. It kind of feels chapped but it...
Yesterday I was at a baby shower. I put my drink on the chair next to my husband and went to get a piece of cake. When I returned I sat in the opposite chair and asked him to pass me my paper. In my...
I noticed a rash again on Sat. I was not really in the direct sun but outdoors for about 45 min then I went shopping and spent some time in the car. When I got home I was drained and my cheeks were...
Do you ever get like a bruised feeling? I mean this morning I noticed that my upper boney part of my chest feels bruised and so does my chin. I don't remember bumping either one. Also I did a little...
I drove about 20 minutes to meet my mom for lunch and after about 15 into our lunch she said that I have a rash on my face. I was wondering because my face felt a little itchy and tight. after about...
Is increasing eye pressure related to lupus? I have to see an ophthalmologist for a consult....
AW Thanks, I had a very stressful week t work, especially on Friday and I started to noticed a build up on sat and sun. Today was the worst. Will see what tomorrow brings....
As I said before I am not diagnosed with lupus at this time but the that few days I have felt more symptoms and have been experiencing more pain. I have felt a weird sensation on my left leg ( where...
Thank you Joy...
What was I thinking when I wore high hills to my nieces baptism today? Oh dear feet please forgive me!...
Barbara Yes I am taking cymbalta. It has helped with the aches in my back and legs but not the joint pain in my hands, feet and knees. I think my last rheumy thought fibro but never told me. I had no...
Barbara I have started a notebook of all of my symptoms current and past. I also put a family history and diagnostic issues I have had in the past. I have taken pictures also but they don't come out...
Thank you Lynnwood. My thoughts exactly!!!!! I have missed out a lot over the past few months and why would I choose sleep over having fun? I must say you all are amazing people. I have read several...
Thank you Joy and Barbara! My PC also thinks something is brewing just not sure what. Does Cymbalta help with lupus symptoms? It seems to help with some of the back aches but not much for the joint...
Hi, I am new to this forum. It all started in Oct of 2014. I had minor surgery and after 2 weeks I was to return to work but continued to have extereme fatique headaches and aching hips and joints...