Thank you so much. You have been a big help....
Thanks Amy! My only other question was the drop in egfr over 2 years has gone from over 100 to 62...does it typically fluctuate ? Just want to have a better understanding before I see him. It helps...
Sorry you asked meds... Plaquenil and quinacrine.. But I think imuran could be in cue because lupus has been active.. Although with these recent labs not sure if that would make difference...
Hi Amy! Thanks for the reply. All my other kidney numbers are in range. My bun is 11 ( range 6-24) and albumin is 4.2 ( range 3.5-5.5). No RBC in blood only trace wbc esterace. I have not had a...
Thanks for reply..hope she comes on to answer:). Had it awhile back...does that mean remission...that is good to hear...
i am seeing doctor next week..but just looking for some insight. My abnormal labs are: Egfr went from over 100 to 62 in last two years ( still in normal range..but significant drop....
I have also been told that once you are positive you are positive...however Ana can be positive and you may not have lupus. Mine went negative after treatment. My doctor told me once you are positive...
Thank you!...
Thank you Lynnwood. I am not sure what I am doing wrong..when I click on tab for email..it says to use link above to get email..but that just brings me back to homepage. I will keep trying:)...
P.s. I do know that we are lucky to be catching early if we do have it..there is medicine that can slow it...
I don't know of anyone else that is positive for AMA and has lupus..so nice to have someone to talk about it. I am curious what info you get from your doctor...I just recently found out. My alkaline...
I am also positive for both Ana and AMA. I am still learning about it too..so much conflicting information...hard to sift through it. Are your liver numbers off?...
I do...he specializes in Lupus...he is awesome doctor...great at explaining...very caring...
I would say rheumatologist that specializes in SLE too....Dr. Schulz is excellent at Penn....your symptoms sound like SLE...but he can treat you for both...all the best to you...
How did you do today? I hope everything went well and you got some answers....
My ANA went from positive to negative on plaquenil also. My rheumatologist said that can happen. I hope you get some answers. You are in the best hands. Try to get some sleep. Praying you get good...
Ok thinking not much we can do for it..which is frustrating because I have had it for months now....
Yes thanks. I am on a round of prednisone, but strangely it doesn't appear to be doing anything....
Does anybody know anything that helps? I have read a lot but can't seem to find much! I have tried heating pads, Epsom salt bath and Motrin. The bath helps the most.. But it has been going on for...
I have done three rounds of steroids each time for about six weeks... I usually feel myself about three to four weeks later. I try to watch while on them and get in exercise and weights when I can. I...
Good luck to you. I think I would take the opportunity to just ask what advice they would give you overall. I would also ask how could you contact them should you have any follow up questions. Also,...
http://online.wsj.com/articles/SB10001424052702303277704579346430438409534 Wall Street Journal article....disturbing!...
Joint pain Pleurisy Rash Loss of hair Oral ulcers Photosensitiviy AntiDNA Positive ANA Positive antiphospholipid antibodies...
I was nervous to take plaquenil at first too...but once I realized that it helps to prevent the organ involvement.. It was a no brainier for me.Also a little googling about how a lupus patient...
I am sorry you are in so much pain. That sounds awful. I find warm showers and epsom salt bathes help me. but, I have never had it as bad as you sound. Please take care and I hope you get relief soon....
I was wondering same thing. I also seem to get it real light.I have seen pictures of it light. I am in a bit of a flare now and it came out a few weeks ago. I guess everyone is different, I think it...
Good morning! I just wanted to introduce myself and ask a quick question. I am newly diagnosed this year. I have been a stalker here since then and have found all of you so helpful. Thank you! My...