There is no "usually " for lupus or one specific blood test unfortunately. In my experience I had a range of symptoms that would come and go , generally felt awful for at first days at a time which...
I have felt that way. I find that it helps me to sleep if I stick to a routine. I try to go to bed at the same time every night and get up at the same time every day. Also I limit my caffeine intake....
First I'd like to say that I'm sorry for your losses. Being sick all the time is exhausting. I think it helps to just take each day as they come, one at a time otherwise the cycle can be...
Darla, I hope your son continues to have triumphs, big and small! Thanks so much for chatting with me today. Sometimes I think we all need to connect with people who understand the messy,...
I hope the doctors find something That works better for you! I'm 36. I have 3 kids ages 16,14 and 8. I first started feeling ill after the birth of my youngest son when I was 28. I just assumed...
Nice to meet you too! Yes, every time I bring something I'm feeling up with my rhuem he just says " oh you have this too and gives me a pamphlet on whatever it is. Lol. If I didn't have all the lupus...
It is frustrating! I personally am not a huge fan of my rheumatologist but I live out in the boonies and there weren't a lot of options as far as doctors go. He has made me feel better though . When...
My rhuem had me on gabapentin(sp?) a while ago but I stopped taking it after a few months . It didn't seem to do much, if anything ,and I'm all about as little meds as possible. Thanks for the reply!...
Hi everyone. Hope all of you are well. I have been having a lot of muscle pain lately. It is in both my arms and legs. My legs feel like when you stretch to touch your toes...that burn you feel in...
Welcome! Good luck at your upcoming appointment. I hope you get the answers you need and that you start feeling better soon. Best wishes, Breanna...
Hi, I had my tubes tied after the c-section of my last baby. That was 8 years ago. It was before I had lupus. It was my 3rd c-section so the recovery was a little more difficult but I don't think it...
Hi Poppy. I also see my Rhuemy about every 4 months and I do labs every 3 months. I believe I have labs every 3 months to check my liver since I am taking methotrexate . All my labs have been good...
I'm so ,so sorry to hear this. I didn't know her personally but I always found her responses to people helpful and positive. My prayers and thought are to her family and friends....
I'm so very sorry that you are having such a difficult time . When I first became ill headaches were one of my first symptoms .I had never suffered with headaches before and they were horrid. I...
Hi ! I am so sorry that your having such a hard time! I have been on methotrexate for some time now, almost or just over 2 years. Its very important that you take folic acid supplement with it. I...
Hey all, I hope you're all doing well.Just wanted to update about the pins and needles feeling. Basically it went away ...I did mention it to my rhuemy when I saw him and he thought that I may have...
Hi there! I cannot answer any of your questions, sadly I am not a doc but I can tell you to hang in there as best as you can and you should most certainly, if possible get a new doc if you are not...
For the last 2 or 3 days I have a" pins and needles" type feeling throughout my entire body. Just liittle flutters of it in my hands, arms ,tummy, neck, legs, Everywhere. Its not painful. I'd say...
I'm glad that you are checking up on her. She has been and will continue to be in my thoughts and prayers. Thank you for the update....
When I first became ill I also did not have a regular doc. That was the first thing I needed to do. Once you get a regular dr. he or she can then refer you to a specialist . Also, once you get an...
Butterflake, I just wanted to let you know that I'm thinking and praying for you! I hope that you are on the mend and that your biopsy went well....
I'm so sorry that you are going through this!! I will be praying and thinking of you....
I can't tell you if your high ana means anything but I can tell you about my experience on methotrexate. I've been on it for almost a year and it has helped me a lot. I take the pill form. I take it...
Hi. I think this is a great idea! Started on hydroxychloroquine 200 mg added a course off prednisone 10 mg for 3 weeks then tapered to 5mg for 3 months then tapered off.. raised it to 400 mg 3 months...
I'm so glad your knee replacement went well!!! I hope your recovery goes quickly and that you're feeling better soon!...
Lisabeans, I think you might need to find yet another new rhuemy. Mine says that I have fibro as well as lupus and he treats both. ... I'm sorry that you having such a tough time getting a good dr....
I hope you get answers and help for your daughter soon.I'm sorry that I can't give you any answers . Lynnwood is right, its best to wait( I know its hard). I can tell you that migrains and fatigue...
Hi Dustmite. I started taking methotrexate a few months ago and its made a huge difference for me. I was flaring all the time and now I haven't had a bad flare in months. I'm still tired but nothing...
Right! A couple of months ago I started to take an iron supplement since my red blood cell count is always low and that's what the internet said to do. I saw my rhuemy shortly after and mentioned I...
I had my labs done last Tuesday and just got to see them today, my dr. called on Wed. and said everything was good. I'm thrilled about that. When I looked at my labs it was marked that my white blood...
I had the same thing going on. It felt like something was stuck in my throat. Sometimes it was worse than others but it was horribly annoying to almost painful. I tried to ignore it and I was eating...
Mine is always around 96 or 97 degrees....
Hi. I'm usually on the lupus forum . Two years ago I suffered from what I believed to be a panic attack. It was so bad that I thought I was having a heart attack and my husband called 911. My heart...
Hi, I was diagnosed last July. I've seen my doc about every 2 months since then and I started methotrexate about 4 months ago. When I was first diagnosed he put me on 200 mg of hydroxycloroquine...
I had what I believed to be trigger finger with my middle finger on my left hand. I hate going to the doctor but after a couple of days it was really getting painful. My husband took the top of a...
Hi Lynnwood. I currently take a maintenance dose of 5mg and have been on that for 3 months. I was on a dose of 10 for a two week period and I had the worst insomnia . I would fall asleep just fine...
This isn't about lupus but I'm many of you can relate. My daughter,12, was planning on staying at her friends house tomorrow tonight for a sleepover and she mentioned yesterday that her friend had a...
I had this happen once with the toes on my right foot. It only lasted a day and never has happened again. My toes kept curling together and they would get stuck until I physically pulled them flat...
I normally take 400mg (2 pills) with dinner and then I take my gabapentin pills at bed time. I don't know why or how but I grabbed my hydroxychloroquine bottle and took out two pills and swallowed...
I get something that all the time. I'm not sure if its the lupus pr the fibro. I'm on Gabapentin for it which is generic neurontin and other than helping me sleep I don't think it does any thing...
Hello all. I'm from the lupus forum normally as thats what I have but I've been peeking around here from time to time. My 12 yr old daughter was born w/ third degree heart block and then was...
Hi. I felt the same way you do about being taken seriously by docs before my diagnoisis. I was even told once that it was all in my head. I was diagnosed w/ lupus this past July. About 2 months...
I was having the same problem. I go to bed around 9 and I was was waking up at 2 am . For me I think it was the prednisone I take for lupus. I cut back all coffee. None allowed after 11 am and I...
Lisabeans, Mine has me on 400mg of hydroxychloroquine every day ,except he had me stop taking it on Sunday and next week I stop taking it on Saturday too. I was on 200 mg for a while but he raised it...
Hi Lisabeans. I too often feel silly for complaining when I know that so many are struggling so much more than I am. I do think its ok to feel bad though. I find that I'm mourning the loss of the old...
I had been on Gabapentin 300mg for 3 months or so and I didn't notiice any sidee effects, negative or positive so I stopped taking it. I think I'm going to start taking it again as I'm having trouble...
Hi Lynnwood. I'm Taking 7.5 of pred. daily right now. I was on 10mg for a maybe 6 wks? and have been on 7.5 for a week. I'm going to see my doc. in early Dec. and if this is still going on I'm going...
So far I haven't noticed much of a change. I still feel crappy a lot but its not as bad as its been in the past. I haven't gotten sick at all from it. Lately I''ve been having trouble sleeping. I go...
I hope you start feeling/doing better soon! I skim through this site at least once a day and everytime someone post something you are always there with words of encouragement and advice. Thank you...
Hi all. I have Lupus and fibro. Headaches were one of my first syptoms and still my most frequent. I was taking tylenol and Ibprofen but recently had to stop with the Ibprofen since I am now taking...