Hi everyone, I'm new to the IBS board - I usually stay on the lupus one, however I have recently been diagnosed with an "unspecified IBS-like disorder" (according to my GI doctor) after almost a...
Hi everyone, Had a bunch of lab work with my new rheumatologist. Everything was ok except my albumin. It was extremely low. So low that my doctor doesn't believe it's from lack of protein but rather...
I can tell help or give any advice because my lupus isn't nearly that severe but just wanted to say good luck and I hope you start feeling better and I'm sorry you are going through all of this....
Hi, When I start having one of my mild lupus flares (swollen lymph nodes, headaches, butterfly rash, generally ill feeling and achy) I feel like I'm running a fever when I'm reality I'm usually...
Oh my! I'm glad to hear you were in fact able to bounce back form that and are still alive today! My issues are no where near severe. But the GI specialist today also feels this is lupus related...
Thank you! My urine hasn't been particularly dark as I'm drinking a TON of water. But I'm up at least 15 times a night using the bathroom. Even when I stop drinking water at 7. Even if I'm dehydrated...
Thank you so much! I really appreciate it :)...
My husband is in the Coast Guard, so we have long been living along coastal areas in sunny locations. It wasn't until a full year after I first started getting sick did I have my first bad reaction...
If you have LN, what were your early symptoms? I've been researching a lot, and I see my doctor on Monday. The last 2 months, I've had both overflow incontinence and difficulty urinating (voiding...
Like butter flake said there are lots of sun protective clothing brands. I've had success with some of the more "natural" sunscreens - alba bontanicals especially. They are much more expensive...
Dustmine - I am so sorry to hear about your diagnosis, but like many of us I am sure you are relieved to have some answers! I wish you the best in starting your treatment. My joints are most affected...
Subject pretty much says it all - how often do you see your rheumatologist? Outside of when you may have a flare. Especially, how often did you see your rheumatologist when you were first diagosed? I...
Thank you guys! I saw the corn huskers stuff at walmart today and grabbed it - if that doesn't work I may just suck it up and see a dermatologist. My mom swears by Dove - now that I think about it,...
My skin had had it rough since being diagnosed with lupus. Between an increase in varicose and spider veins (I'm only 22 so I assume its from the lupus?), hot skin to the touch, itchy skin, dry skin,...
I actually have some clothing from that website on be way :) I remember you putting that link in another question I had posted so I checked it out and ordered some a few days ago! As an update, I...
Thanks - I had no clue a flare could last this long. I'm also struggling with learning what it's "normal" (lol at normal because nothing is normal or expected with lupus!!) and what I should be...
Hi, Has anyone else ever dealt with swollen lymph nodes during or after a flare? I am currently battling my first bad flare since being diagnosed a few weeks ago. Suddenly I have horrible reactions...
Thank you guys for the response! I will definitely check out that clothing - my husband and j both loved fishing before and j just can't get out in it anymore. Maybe it will help?? We are also...
Hi lynnwood, Thank you for the response - I had no clue the lights in stores could affect it! Looks like I may be staying home for a few days to see if these symptoms clear up. I have a...
Hi everyone, 3 weeks ago I was officially diagnosed with lupus. My symptoms have progressively gotten worse and I've seen no improvement yet with Plaquenil. I used to have just a mild blush on my...
Thank you both for the responses - I am especially glad to hear they usually start treatment right away as a diagnostic tool. I think maybe that would have been a better way to articulate my...
Hi everyone, This is my first post here. I have been sick on and off for at least 10 years. 2 years ago I developed severe secondary Raynauds in just a few fingers. I was briefly hospitalized, tested...