Interesting to hear I'm not the only one! Weird. It comes and goes. It seems to only be about once a month at his point. One night of insane itching and scratching. Then I'm good for a few more...
Craaaaazy itchy feet and ankles. This a lupus / UCTD symptom? When I google, I seem to keep landing on diabetes as the cause, but I was just tested recently and am not diabetic (or pre-diabetic)....
On a routine week, I usually work 45-50 hours a week, but make sure I sleep at least 9 hours a night on weekdays, and 10-12 hours a night on weekends. IF I keep up that sleep schedule, I find I can...
When I get stressed or am flaring, I can usually feel the malar rash in the size and shape of a butterfly rash... however, it's never visible. I can feel my face burning and heating up in that shape,...
Agreed, Lynnwood. While I'm still a newbie and figuring this all out, I'll chime in when I can! Thanks so much for leading this group. It's been very helpful as I figure this all out....
not to hijack this thread... but, I've been advised to stay away from Advil/IBuprofen as it could trigger flares. Anyone else heard the same? I try to stick to Aspirin / Tylenol, but not much helps...
Finally got the labs back... Disheartening :( Since my last labs, it was three months of my best behavior - no gluten, limited alcohol, mostly clean diet, plaquenil religiously... and everything went...
Who uses Quest for their bloodwork? They've always been good to me, and I love that I get the results on through their website within a few days, and I don't have to wait for the doctor to see what's...
I'm still relatively new to the lupus/UCTD scene. I've never had sun sensitivity or light sensitivity. Lived at the beach until last year, and still drive my convertible with the roof down any chance...
Thanks all, for the tips. Just to clarify a couple things... I definitely don't mix the ambien and the alcohol, I know that's bad news. It's an either or. Last night I tried Zquil, trying something...
Hi all, Haven't posted in this group before. Recently, I've been dealing with a lupus/UCTD diagnosis. However, I wanted to get your take on night terrors. Anybody here dealing with them? I have a...
I've found Cauliflower Rice is a good substitute for regular rice, if you're trying to limit carbs. Some stores sell cauliflower rice, but it's also easy to just put regular cauliflower in a food...
I'm doing this three-day cleanse starting tomorrow...Basically 3 days of fruit and veggie smoothies to help rid the body of toxins. If anybody wants to join me, let me know! (I'm not affiliated with...
Other than the stomach problem, I am feeling pretty darn good. Very minimal joint pain, almost no fatigue, high energy level, no fevers. pretty much my only complaint is the stomach cramping/nausea....
Good News, my diet for the past 3+ weeks has been stellar. All lean proteins and veggies and zero cheat foods. My rheumy said a Gluten Free diet could help me. I'm not celiac, but she said it could...
Anyone get massages that also has lupus? I have bad hips and herniated discs, so massages used to really help me. It's now Been a while since I had one, and then got my lupus diagnosis. I went last...
Frustrating! I'm going through something similar. Recently Dx'ed with Lupus, and my friend knows this. She asked me why I was cranky the other day. I had thought I had done a good job of putting on a...
Yep. I've been on the generic at 200 mgs for 6 days now. I pretty much alternate between it coming out one end or the other... and it makes my Lupus symptoms feel worse. BUT. I understand it takes a...
Thanks, Lynnwood. Yes, it's the rheumatologist who is sticking with "probable." I'll check out the link you provided. thanks again...
Hi All, A few different questions... I just started on Plaquenil 200 mg, as we are working with a "probable" lupus diagnosis - that was my doctor's terminology. Am I really looking at up to 6 months...
Anybody know if this drug (methylprednisolone) can cause mania/depression? Been on it for over a month now, and it is definitely helping with my lupus symptoms. However, over the past week or so,...
Hi all, New to the Lupus game - well, at least new to being diagnosed. I've only been taking 4mg of methylprednisolone for about a month. It was working great. I felt like a new woman. All of my...
Anyone have all three of these? I'm waiting diagnosis, but it's looking like the trifecta. Anyone have experience or advise? Much thanks...
34 year old female. Went to my orthopedic surgeon for chronic wrist/thumb pain that has been going on for 2 years. Xray and MRI are negative so he sent me for blood-work to look into immune...