Not sure it is just anxiety. I have Mixed Connective Tissue Disorder including Lupus. UV rays, or blue-light exacerbates Lupus. What you mention is the same feeling I get when out in the sun too...
Hello all, hope you are doing well and heading for a wonderful weekend. I’m gonna’ try my best too, but I am having a time with head pain. My head feels inflamed. My scalp, face, teeth, sinus,...
Hello. I woke this morning in so much pain and stiffness.🤨 I am not sure if it is fibro or Lupus that is the culprit. I don’t have much for pain meds as as I have read on this forum I too try my...
Sorry everyone, meant to say Loopies you know.....! Tuffymason...
So I’m still not asleep try as I might. It’s 3:30am! The frustration and or anxiety has taken over at this point. Which begs the question about anxiety. It is not something I have been diagnosed with...
Oh dear how awful. All I can tell you is that on the Johns Hopkins Lupus Clinic website there is a list of thins that can cause flares. One is bacteria from alfalfa sprouts. I wonder if that...
Hello all, it’s late an I’m not sleeping.....again🙁 So I thought I’d chat to someone who understands. Something interesting happened this weekend and I thought I would share. I met two people, in...
So sorry o hear it searching. Plus when you are feeling so bad it makes a dismissal even worse. For me now I know at least for the most part why I am feeling so bad, but still I was told my thyroid...
Hey there searching, thought I’d let you know how my endo visit went. It was today. I am so lucky, he was really great. Intellect, sense of humour AND ears! I worried he would judge me for the mix...
Hey Sparrow! So glad you are here and happy birthday. Lupus does take perseverance, both for diagnosis and day to day. So sad to hear your winter/spring has been a trial. I don’t do so good in winter...
Hello, I am posting in this area for the first time. I have multiple diagnosis re Lupus overlap. Recently I am having trouble with hypothyroid. TSH is real bad. Ended up in the ER the other night re...
Dear searching, we sound allot alike. I have been miserably ill for the past three or four months. Hair loss, vertigo, nausea, vomiting, constipation, tender sore throat, hoarse voice, sore ears and...
Hello everyone, I am grateful to read your posts. I have been all around this forum as I belong to many topics I’m afraid. Recently I have been battling something...I don’t know what....but it’s been...
Morning everyone, hope the day is good to you. I am posting about something I don’t often see much here or anywhere really. I am and have been struggling. I have gone from a decently normal life to...
No sand in my Samich......too funny....funny ha ha.... also funny....but funny hmmmm.....I am also an over achiever....I have deduced many of us are... How are you doing today? Have things settled a...
Hey Karen, I’m your girl! I hear you and I am mad as heck. Sorry about your incarceration....how much time served do you think? I was officially dx’ed in 2006 but know it existed long before then....
Goodearly morning all. Things are getting back to normal a bit...I hope. Normal sick anyway. I have travelled a rough winding road the past few months with my albatross. That I am posting at 5am and...
Hi everyone. I have posted in several areas on this site. I never thought I would be posting under Migraines. Not that I don’t get headaches, and some dilly’s, but I have always respected that there...
Morning all, thanks for being here and caring for others. I am having a time. I have multiple health issues. Each diagnosis as difficult as the next but if I was asked which was the instigator I...
Thanks. The story is difficult. My folks and brother and I were close. They lived on the family farm I lived in my house next to them. My brother and I cared for our folks until they both passed with...
So I am new and trying to understand anxiety. I have never had a medical diagnosis for anxiety. I live everyday with pretty debilitation chronic illness at times, but also have some lasting at least...
So, my rheumatologist meeting yesterday went very well. I am blessed to have her. She has been my rock since 2006. It is very hard for a doctor to meet with me and not think I’m a hypochondriac....
Morning, and thanks. I too know that allot of disorders causes allot of disorder🤢 It is hard sometimes, but eventually I can finally figure it out. I have had gastric emptying tests and my stomach...
Thanks it helps. Your therapist seems bang on. I do listen to my inner voice. It is why I have gotten this far. My original diagnosis is some thirty years old. It is also how I ended up here. I am...
So that is the issue. Here at least patients of chronic illness are not considered the same as other patients. So if someone finally makes the agonizing decision to go to see their doctor (even...
Morning all, I have been carrying allot. Allot of chronic illness baggage, Lupus, sjogren’s, Fibromyalgia, Addison’s disease, and all they entail....pain, fatigue, nausea and GI issues. But I have...
Can someone who has a positive diagnosis of irritable bowel please explain what irritable bowel is. What does it do? Why does it do it? Can a person have an absolute diagnosis of irritable bowel or...
Morning all, wishing you a good day. Sorry this post is kid of long but I work toward an understanding. I post on several forums here as I have lots going on and trying to figure it all out. But I am...
Morning all, wishing you a good day. I have been searching through the posts and find that nausea and tummy problems are not the most prevalent posts. Except for me. From what I have researched GI...
Thanks for the reply, I do think about that too. But I find it almost impossible to relay the possibility to specialists. With so much going on I feel like they think “enough already”. They seem to...
Morning all hoping this post finds you doing well. I am having a struggle. It’s my GI tract. I have a motility problem with my stomach. I’ve been tested and it just diesn’t empty efficiently. It...
Hi everyone, it is snowing heavily here and it looks like a snow globe...but I know there are many who are way past the pretty to fed-up with snow....hope you are all safe and warm. I post tonight as...
Thanks for commiserating. Sometimes it helps more than you would think just to know “it’s not ME” personally.....and I’m just weak 😥...funny what can seep through the caverns of this the mind when...
Well, I tried to take a power nap, that is what I often need to do because I don’t sleep well through the night when I am in a flare. But even that I just could not do today. I took 25 mg of lyrica....
Good day everyone. I hope you are coping well with your battle. I have several diagnosis. Right now the Sjogren’s is flaring and always, always is accompanied by fibro. It often happens durning...
Thanks again, I too think it’s well time we tried something else. I did try plaquenil but had trouble with feeling “flat, or disconnected”, I just didn’t like the feeling at all. I also tried MTX and...
Oh my Gosh! Me too! Mine are right around where my bra sits on my ribs. My rheumy says that a nerve runs around there. So I just figure that when the sjogren’s flares it aggravates the nerve. I also...
Thanks Darla for your understanding. It truly is an almost impossible balancing act. I often think it would be so much easier if there was a “glucometer” for prednisone for the Addison’s. But...
Actually the burning came before the coconut oil. I think you must be thinking of a different oil. The virgin coconut oil is very soothing. It is thick like soft lard. I don’t think a professor from...
Good day folks, do hope you are all doing well. I was just posting because I’m not : ( Anyway maybe I will get some suggestions. But I thought I would tell you about something pretty promising I have...
Hello everyone, Happy New Year. I thought I would post tonight about my struggle. It has been ongoing...for a month or two. I have a tangled bunch of diagnosis. But the instigator to them all seems...
I am in troubleagain. It has been a couple of months. What I am finding though that is quite new this time is the flare of osteoarthritis with the fibro flare. The osteoarthritis is in my hands,...
So from my subject line you can tell I have been struggling. I am in a bad flare that has been so long Iha e stopped referring to it as a flare, it’s now a normal. The only way to stop it is to go to...
Hi I am 56 years yong. I am on 7.5 mg prednisone daily, I have Addison’s disease so it is a replacement dose. Also florineff for electrolytes as the adrenal gland also regulates minerals. I take...
Good morning everybody, all the best to you. I post today as I am unsure how to handle my seemingly new normal. I am speaking of pain, stiffness and fatigue. It is not much of a post, not new or...
Good day all, hoping this email finds you doing well. Myself, not so good. I have what seems a mountain of issues so I shouldn’t wonder at feeling so miserable, but still I do. Symptoms, pain, nausea...
Well, thanks so much for the posts. You are inspiring. It is about expectations. I had a dear Uncle who has passed now, but when he struggled with just the same thing I post about I would tell him...
Hello all. Hoping you are all doing well. I am posting about the most confusing thing. I am starving but have absolutely no appetite. How crazy is that. I love to cook, and have spent the past few...
Hello everyone, It’s late and I am not sleeping. Either pain and insomnia or insomnia and pain..... I was just thinking about how fibro changes who you are. I like to cook. It is something I can do...
Thanks everyone, I am doing better today!😅I finally gave in to the pain and took two tyelenol 3 two nights ago. It was sooo the right decision. My body melted, the tightness and pain felt like it...