I was told by my doctor that it was from the prednisone-it was a nightmare! It was during that they finally told me-nothing like a helpful warning! anyone else told this by the doc ? I thought it was...
My daughter had an eye condition starting at 18mos,she had rounds and rounds of surgeries and medications to ''control'' her condition,she was slowly loosing her sight and by age seven,they weren't...
I have been having great success with my Dr. ! Dr of -Traditional Chinese Medicine. For the past 11 days,I have had daily acupuncture(Abdominal) and herb tea. He grinds it daily and makes changes...
HOLY COW!! You hit the nail on the head! YES! I thought everyone was mumbling and get frustrated because I need to be face to face,and tend to turn my head so the ''good''ear is facing them. The...
Sorry,forgot to mention,I have that tonsil thing as well (both problems on right side) and socket pain along with the eye pain and light sensitivity(extreme many days). my vision can literally change...
Hi Kari, I was at the opthemologist yesterday,and he told me that it is common in lupus patients,and that along the bottom rim of the eye there is a gland and it will often misfunction or become...
Hi Laura, Welcome to the forum!! I have discoid Lupus as well ,on my face ,but recently had more on my neck behind my ear-very itchy and no color. The lesion on my face is lighter after treatment,but...
Hi Angela, Mine is like Babs' rash,and I do treat it like Lynn does. I agree not to use any soap etc on it,I found EVERYTHING would irritate the malar & the discoid-my face would get puffy as well,I...
This doctor said I need to see him everyday until there is no more than 20% pain,then he will do aggressive herbal treatment-it is very expensive,but worth it-I feel like I am slowly getting some...
Each day is a little better,I am just crabby today,this no coffee or cigarettes thing can be tough,but only 2 cig's this week! That is darn good , I don't know why I ever started again after the kids...
The area of pain yesterday, was not there today(thankfully),the large cysts are painful without being touched at all-wearing clothes hurts-he said it will be necessary to go again tomorrow again,but...
LOL! OKIE!! you crack me up! My husband brought me a T-Shirt that says: ''Still a Hot Babe'but now it comes in flashes! ''LOL! Omega, It is a tea that is very simple to use,-my daughter had the kind...
I made it! after the 1/2 hr consult,it was on to the needles/pins-which start to finish,was another hour. wow,is there ever alot! pin things from upper abdominal to low pelvis....at first it was...
BIG'BIG HUG to you too Ginny!...
Ginny, I was told about 8 yrs ago that I was experiencing peri-menopuase symptoms as well-if that be the case,how did I end up with my 3 yr old I asked?! I had a bunch of stuff to take for...
Hi Paula, I had mine almost 4yrs ago,everything was fine,though recently have problems with one of the clips-still waiting on what they plan to do. The incision is very small and is like a...
thanks ladies I will try the flic acid and will call the dr tomorrow(if I can find one) for the magic! have a good night! crystal...
thanks you two,My husband looked in my mouth with a tiny flashlight and said they look pretty gross. The pharmasist said there is something called ''fletcher's sore mouth medicine'',but it hurts...
I have ulcers on the roof of my mouth,both sides on the bottom right of gum,upper gum-both sides,and top of left on one side. Eating is painful,even soft food like rice,any advice? The rheumys side...
sorry,not from your area,but understand the frustration with a rheumy that explains little or nothing,''the look'' is getting on my nerves! do they not teach vocalization ?...
picked up ''vichy'' sunscreen/block? yesterday,was wondering about the burning & flourescent lights as well,but was wondering how it will affect the discoid-will it make it flare?make up isn't my...
it seems like we can handle almost everything until it affects our children,we would willingly take all pain and suffering from them if we could. it is good for them to be checked,hope everything is...
went for dinner last night ,came out of the washroom,and found myself thinking,''hmm,he's cute'',as this man smiled at me ,I got all all giddy,thinking he was checking me out-sure was,it was my...
I have discoid as well,and most days burning that just seems to get worse each week with my whole face looking sunburned. My lesion has been itchy and painful,I call it the ''entity'' because it...
LOL!! I ask the same questions as BITZI! I bought ''HELLO,my name is..'' tags for my kids! This wasn't from the lupus,but,when I was in labor with our first,I was so confused each time someone came...
cyndi, I have the burning thing too,it drives me up a wall!Nothing seems to work,it used to be like hot flashes,now it's down right burning-usually my face and upper arms. I wish they could figure...
Stacie,she is 17 and this is something she wants to ignore,I don't think it is something to ignore,thank you for the advice,I had no idea our kidneys can do that silent thing,I thought anything...
hey Ginny,I was wondering where you were,glad you are back! As for the post,yes,I too have experienced this,however,it was the diagnosis before I knew of the lupus. I didn't know the stats were that...
I was diagnosed in January,and never even knew of the rash until then,I thought it was my coloring or the sun as I was outside a lot year round. I was diagnosed with discoid( wolf-bite). I ran into a...
Hey Hippie! I have blinding headaches and found that my eyes are affected as well. Usually,the headaches are worse if there is any light what so ever,and it usually starts in my eye.I was given a...
Stacie, I am concerned about the swelling thing HUGE! My daughter has had swelling in her ankles ,to the point she hides it,she doesn't want to go in due to fear.I have lupus,my mom has secondary...
could it be from the medications you are on? hhmm,my mom has similar problems 10in at ankle,14in,just below the knee,she has been going to physio (sp) and has helped,something with deep massage seems...
I think it is twisted that all these tv shows and magazines portray an''image'' of beauty.I personally think most look sick and gaunt.. Beauty is on the inside,and with that being said,I KNOW I have...
I know where you are coming from,I started using emu oil for stretch marks though mine are from pregnancy,and find it certainly makes a difference. I feel embarrassed to change or bathe with my...
/community/emoticons/yeah.gif Hey honey!!Welcome to the forum!! I am so glad you found us!!! I have discoid lupus,and have found my ''entity'' likes to fake me out ,it did look thick and bumpy,red...
BHK, I am so sorry to hear the SLE,but now you know-as hard as it is,but maybe now you can get med's to help you,I am so ,so sorry. I do agree with Bitzi,some men need to ''fix'' a situation,but I...
I am 38(but tell my husband I look 21-hehe,I was ID' before xmas),LOL! The jack hammer thing is too funny-it reminded me of my husband taking out concrete! But,the lightening speed twitches are so...
YES YES YES !!! holy crap(can I say that?)ah,yes the eye move back and forth at the speed of light!yup!I'M using the bifocal part to read yet when I look up! I have nerve damage(optical I believe) to...
thanks for the replies,I was for warned about ''freezing the eye for injections''OMG! are they kidding how do I lay still with a needle coming at my eye!!! has anyone else heard of this? I'm almost...
ocean I know the dry eyes are able to be helped with many types of drops,the ocular migraines you mentioned ,is that the pain behind the eye? I have that but even my doctor realizes she has nothing...
thanks Babs,always love/look forward to hearing from you!Thanks for your kindness and support,it means a great deal,pray your days get better and better!-2nd post-lost the 1st one,hope this one gets...
forgot to mention that eyeball feels enlarged and irregular...
is anyone else dealing with lupus related eye problems?MY eyeball and socket hurt all the time,even the underside of the brow bone feels like it has been beat to crap! I know there is nerve damage...
kris,my father's best friend acted out in the same way as your father,he did eventually get tangled with large amounts of drugs and alcohol-which aggrevated his symptoms.My father is a recovering...
ican, Blame shouldn't be placed on your daughter for any reason,because she was 14 and drunk was NO excuse,and I don't care what the age of consent is either,I wish these criminals and their...
I don't have MS,my mom does and when she was self injecting she had alot of trouble,thank God someone came out with the auto!Things are much better. I say''here's to you!'' good that it is at one...
new member I was also abused as a child(5),and when my daughter was 6,she was as well,and by a ''family friend''. the worst part was I didn't know,yet around the same time the same person raped me as...
I have been diagnosed with lupus,but some things such as shaking in right hand is not thought to be a lupus symptom .I'm a little confused because my hand turns white and freezing cold,and shakes no...
shashi, I do not have MS but my mom does,and she went through the same thing,neither of you were treated fairly,I recall the agony when they put her through test after test,but came in with an...
emu oil has actually worked for severe headaches and migrains,you can rub it on temples,forehead,basically anywhere it hurts,I've closed my eyes and rubbed it into the eye area as well,it helps for...