Thank you all!!! I am going where no lupie has gone before. I have been accepted into a program for bariatric surgery. 6 mo. will be going to support groups, nutrition classes, and some weight loss...
Hi Glory, I have followed a macro based diet for many years now. I don't eat nightshade vegies. I know that the diet has kept digestive issues to a mininum. I am a strong believer in macrobiotics. It...
Hi Rose, You are in my thoughts and prayers, your little one and family too. Hugs, Peaceful...
Hi Lynnwood, You are in my thoughts and prayers for a quick, positive outcome. I am glad to hear that you have friends close to you who are supportive, and a good attorney. I am also relieved to hear...
Tomorrow I have an appointment with a doctor for bariatric surgery. My hemotologist referred me. Because I've been so inactive due to fibro and lupus, I have put on a ton of weight. It is a very...
openia. I was so ill, I went back to my other hemo/oncol, who was glad to see me back, he ran tests and the next day I was in for a 5hr. iron/dextran infusion. It's been a few weeks now, but I'm...
I still don't like my CPAP, and I cant' get anyone to look at it or me. It's frustrating. It seems like the company had time to sell it to me but now they don't want to answer any question. They said...
Hi Tasha, How are you doing? I hope that your symptoms are getting better. I also hope that you are getting the information that you need. (((((gentle hugs and prayers))))), Cecelia...
Hi Ginny (((((gentle hugs and prayers))))) I'm so sorry that you're going through all of this. I hope that things calm down for you before wedding season. My periods did that for a while, my gyn said...
Ginny, thank you for your kind words. I feel the same way about you. Indeed Praise the Lord for his Grace in our lives. My love and faith in God are my greatest healing and His love gives me...
Omega, thank you, I meant Qu Gong? I used to do the long form, but my knees are in very bad shape as well as my back. My PT suggested Tai Chi too. Maybe I could start with the short form. My son is a...
Hi Ann, I'm sorry about all of the abreviations. Bill covered them all except CPAP, which is a breathing assistance machine to use at night for sleep apnea ....breathing incidents while you're...
Hi Barbara, It's so good to hear from you! I'm sorry that your CPAP didn't work for you. I hope that mine works for me. I hope that you are feeling stronger and getting rest. Have you gotten home...
Hi Tasha, gentle hugs and prayers for you. You are so young and have your whole life ahead of you. Grieve as long as you need to. Offer your suffering and grief up to God for some greater purpose. I...
Hi Des, I've cried in the doctors's office too. Just a couple of weeks ago I broke down and cried. I hope too, that the Lexapro helps and that you get some answers soon. It's good that your PCP is...
Montecarlo, I would like to know more too about your accupuncture. This is something I want to try too. I have chronic pain from my back and fibro. Did your doctor suggest one accupuncturist in...
Hi Ann, I'm on a six month appt. schedule too with my rheumie. I am monitored by my PCP. He can't run lupus tests because that is not his area of speciality. But he does run a CBC w/differential,...
Hi Sue, My hemo/oncol. told me to have the sleep test done. My PCP set it for me. I went to the hospital at 9:00pm and they put me in one of their sleep study rooms for the night. It was a very...
I hope that you all have a good weekend!! Happy Easter and Happy Passover to everyone! I've been switched from neurontin to lyrica for pain relief. I'm going through some side effects, but I've seen...
Carol, I'd go to the doctor about your thumb. Well, it's about time that I'm not the only 50 yr. old. around here. I hope that you're thumb gets better soon! gentle hugs and prayers, Cecelia...
Hi Hippi, oh no. I hope that you're not getting pneumonia or pluerisy. If you get worse, like Babs said. you should go to the e.r. and not wait for Monday. I'm with Carol too, on getting an xray...
Hi all, I take tramadol, Ultracet, among other meds. It helps me. It was a life saver when they took Bextra of the market. That was the only thing back then that helped many of my symptoms. I tend to...
I was going to Church and I had all of this stuff with me. I couldn't find the car keys. I knew that I had brought them with me because I did remember locking the door. I looked everywhere through...
Hi all, thank you for the good info. I had been given the UCTD before and I didn't understand it. He doubted my SLE dx too. My new rheumie confirmed my SLE from years of history/tests etc. and also...
Hi M and welcome! I get the lesions too. I have SLE and sub-cutaneous lupus. My derm. has me on azelex cream 2xday and a retinol cream everyother day. I also have rosecia.The azelex cream is soothing...
Hi and welcome! I have both SLE and sub-cutaneous lupus. I get pimple/waterfilled "things" on my fore arms and I have some on my neck. These are areas were I used to get a lot of sun exposure. They...
Me too!!! I can't wear nickle earrings or jewelry. I can wear sterling earrings for a couple of hours before the itching begins. I can wear sterling necklaces and bracelets and they don't bother me....
In the past, my old rheumie gave me a dx of UCTD. What is it exactly and how is it treated? Thank you and blessings,Cecelia...
Hi Sunshine, I'm sorry that you're going through so much now and that you're in alot of pain. My pcp referred me to a neurologist who took mri's of my spine because of constant pain and numbness. I...
Hi Hippi, I'm so sorry to hear that your son had a flare ....I hope that he is on the way to feeling better. Just another idea to think about...I was waking up w/headaches and getting bad headaches...
Stevie, I haven't heard of this either. I would have your sister go see a specialist, ie dermatologist, open wound specialist. If things aren't getting better for her, take her a.s.a.p. to a...
I'm cold most of the time too. It can be the middle of July and I'll have flannel p.j.'s on and flannel sheets on the bed. I am miserable in the winter....my hands and feet are like ice and my lungs...
Babs, I hope that you get another good night's rest. Thank you for your thoughts and prayers. I hope the new med works for you. Wow, you work long hours! Lots of sleep would be good for you. My...
Babs, I am so glad that you're feeling better, take care and blessings, Cecelia...
((((Babs, gentle hugs and prayers)))) I get the same thing. Sometimes its related to my c6 c7 fusion with radiating pain, sometimes its when I sleep the wrong way. There are also lots of tiny lymph...
Hi Bill, I will be thinking about you on your anniversary! What a grand way to spend it with you friend...you will give him hope and inspiration! I hope that your day is special....(((gentle hugs and...
Babs, (((prayers and gentle hugs ))), Your prayers, and support mean so much. My goal is to be of support to others too. You have been through trials too. I hope that you are improving. You are in my...
Hi Carol, Kari and Bill, Thank you for your posts and sharing info. Bill, you are a miracle. I'm so glad that you told your story....you have given me and others hope. It is a disease of a thousand...
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Hi Kathryn, welcome! I am new here too. I am in the process of being diagnosed. Last week I was told that I have cirrosis and hepatitus. Other than that, I don't know what kind I have, hepatitus that...
I will pray for Mark that he will soon receive the transplant. I have already begun praying for everyone on this forum. Thank you for thinking of my husband, Paul. He is a blessing and has been...
Hi Barb and Gene, That is wonderful news! My thoughts and prayers are with you. I hope that you both can enjoy the day. Hugs for you both. Maybe if Gene isn't able to use the computer yet, he could...
Hi Connie, I'm glad you're able to use your laptop and happy to hear that your sister is going to set you up with a (router?) I have three cats and a rescued greyhound. They always stay near me and...
Hi Connie! I'm new to the forum. I hope that you and Mark are having a good day. I have edema in my left leg from a large dvt about 5 yrs ago. I elevate my leg, but not as often as I should, my son...
Thank you and God bless you all! Valerie I have taken notes on things that you have said. I will get in to see a hepatologist asap. I hope that everyone will have a good day. Please say "hello" to...
Hi Valerie and Barb, Thank you for the warm welcome to the post. I hope that I can be just as supportive to everyone. I'm a good listener, I just don't know that much about liver conditions yet. The...
my liver and spleen due to the results of the scan and lab tests. He is concerned about[b] my liver and spleen. This thursday I am going for a liver/spleen scan. He told me that I have an enlareged...