Hello everyone, I wanted to wish you all a Merry Christmas and a Happy New Year. I hope we can all have some relief from our pain and just enjoy this wonderful time of year. Sorry not to have been...
Hello there, This has been happening to me for a while now, it is accompanied by vomiting at times too. I have had CT scans done and they showed up a 'formation' of something in the colon. I am...
Hiya Latashia, I have a problem with my peripheral vision. I have scarring in my eyes which is caused by inflammation. On occasions there is only a blackness on the outer edges of my sight. I do have...
Hello there, I have always been susceptible to bruising because of steroids which I have been taking for over 30 years. As the others have said it is not anything to be too concerned about when it is...
Hello lionOO, I know you already have the rash but I thought this info might be of use to you. Look into PLE - polymorphic light eruption. Most people confuse this with prickly heat but it is very...
Hiya PattyLatty, Glad the treatment worked for you. My doctor is good with me, if I say that I do not think it is the 'usual' gastric trouble and perhaps we could do the preventive medicines for HP,...
Hello mamamuse, I too have lot of gastric problems. On the odd occasion when the usual medications haven't helped, I have had testing for helicobacter pylori and after it has been verified, I take a...
Hello there everyone, I have been AWOL for a long time due to illness but hope to be coming back more and more now. Sharen, I hope I can offer some helpful ideas on your problem. Maybe you could look...
Hi there redrose77, I do really think that more education is needed on this type of thing. Thanks for bringing it to the forum. I received this e mail in a different form from a lady I know only...
Hiya Rush and welcome from another newbie, I have had SLE for 30+ years and have been on steroids since the day of my diagnosis. They saved my life, I was only a youngster when I was put on them,...
Hello Emily, Sorry I can't comment on your allergy question, as I am fortunate in that I do not suuffer from any at all. I do though have Sjogrens and to get a definite diagnosis of this you must see...
Hello Marisa, I am not medical doctor and can only speak about research I have done concerning about SLE and other types of lupus. I have had SLE for 30+ years. I was recently hospitalised with...
Hello everyone, I am coming into this one a bit late I think, but just to say I have had this done a few times and as the others say, the preparation beforehand is worse than the actual procedure. I...
Hello here, I had a moon face and put on weight when I was on 70-80mg sometimes more per day as a newbie to them. Sounds very dramatic, but it was back in the days when prednisolone was the only...
Hiya everyone, I still can't get my head around the statement that the pain caused when tapering steroids "simulate" fibromyalgia pain. /community/emoticons/nono.gif I still maintain that only we...
Hello everyone, As I increase and decrease my steroids myself as and when I feel I need to, when I taper I do it by 1mg per time. Drop 1mg and perhaps 3 days later, drop another 1mg. I have been on...
Hiya everyone, I have just received some new information concerning hair loss like e go through. Unfortunately at the moment I am having problems using my hands properly so I am finding it difficult...
Hello there, I lost a lot of of my hair through chemo. My eyebrows too. I always had my hair cropped and spikey. Even though I have periods of losing it now when I am in a lupus flare that lasts for...
Hiya Boog, First thing to say is good luck with your surgery. Your chap seems to be on top of everything and extremey experienced in what he does. Seondly, yes I am free of pericardial pain since my...
Hello, I have SLE - lupus - and I had had recurring bouts of pericaditis for a number of years. I had a major heart attack 4 years ago, followed by a smaller some 5 months later. This resulted in me...
I was healthy too until about 15. goldenwings /community/emoticons/yeah.gif ...
Hello Cathy, I have been taking methotrexate for about 13 years now and I haven't had any problems with it. The only time I did have a problem was when I tried to stop it. I had a lot of pain and...
Hiya PL, Thank you. I do try to explain things in layman's terms. I only ever talk about things I have experience of so I make sure that I do explain things as clearly as possible. No, I have never...
I hope so too. The witch hazel is so worth trying though. It really works. goldenwings /community/emoticons/yeah.gif ...
Hello lion, What happens in the UK is that if the doctor thinks that you need to use a certain sunscreen because of your lupus skin condition, then he will prescribe it for you. This will work out...
You are most welcome. gossamerwings /community/emoticons/yeah.gif ...
Hiya Connie, Do you have local chapters of lupus foundation near you ? If you are not sure, then contact [color=#800080>www.[b]lupuscanada .org If] Take care goldenwings...
Hiya Connie, Some lupus patients are apparently eligible for free sunscreen or cheaper pricing because of their medical need. May be worth looking into. I have personally have never asked because I...
Hello everyone, I am pleased that you have found a suitable sunscreens and are finding the benefits of using them. As sunbeds are a definite no-no, fake tans are so popular too. Thing is though, even...
Hello Heidi, I had not heard of chalazions before. It got me thinking that what you have sounds a lot like what I have - blepharitis. The lumps on the lids, the itchiness, etc. What blepharitis is is...
Hi there, This is something I really feel strngly about . I am a lupus patient who cannot go out into the sun. Even the heat in the air is horrid for me. The sun though is an absolute no-no. If ever...
Hiya, Yes, I have really bad back pain. I have had it for years with the last episodes for about 3 months. In the last 2 weeks it has really hit me hard though. Going down into my bottom, it's really...
Hello thr, I get them too. On the roof of my mouth and on my inside of my cheeks. That along with ulcers makes for a very sore mouth at times. What I use is plain old salt in warm water. It has...
Hello there, I agree with the others in that it most definitely points towards being an infection. I had the same just recently whilst I was in hospital, and they gave me antibiotics. Before that I...
Hi there, I think a few words you wrote initially count for a lot "waking up from a coma". Maybe your friend, after being unwell for so long and then finally getting the correct treatment and help is...
Ooops, I never, ever take my temp. I have never been asked to. I do know that with lupus patients especially anything over 99.6 that doesn't have an "obvious" cause will suggest an infection of...
Hi there Babs, Hello to you too. I think we can offer a lot because as you know even today there is so much misinformation about lupus out there. We are still here and living proof that there is life...
Hello Barbara, Thank you so much for your welcome. Another "old timer" of lupus. Whilst I am so sorry to meet you because of this, it is good to know that with our longer experience of lupus, we can...
Hello razor, You have been given some really good advice here. I would like to add just a little bit more if I may. Thje most "common" causes of death in lupus have been given as "overwhelming...
Hello sandspoker, Another newbie - unfortunate that lupus has brought you and indeed all of us together, but good I think because the more of us who speak and share about lupus and our experiences...
Hello everyone, Thanks for the welcoming words. I will try my best to be of any help that I can to you. Only from a personal viewpoint of course, never a medical one. What I speak about are only...
Hiya okie, Good to meet you. I look forward to getting to know you too. I honestly feel that I have a lot to offer from a personal viewpoint of SLE, and I hope to be of help in any way I can be. Take...
Thank you dbab. Take care goldenwings /community/emoticons/smile.gif ...
Thank you hippimon and patti for your welcoming words. I do hope that I might be able to people here. /community/emoticons/yeah.gif I think one of the most important things with any chronic illness...
Hello, I don't know whether there is a more suitable place to put this, but I would just like to introduce myself as a new member of the forum. I have had SLE for 30+ years and hope I can be of help...