Hi there - You aren't losing your mind... every inch of my body hurts! I too have had very sore nipples... you aren't alone!...
Hi Lostnomad - I know exactly what you are talking about ... In fact, you could be writing about my situation... I always get up when I am experiencing this type of situation. I turn on the tv and...
I too have extremely sensitive skin - not sure if it is from Fibro or the Lupus but every little thing hurts me - tags on clothing can drive me crazy, even the little stub left over can cause pain....
I'm glad I read this post as I am useless for a several days every month too. I think that my cramps are getting worse each cycle. Last month, I was in so much pain. I was running to the bathroom all...
Hi Victoria - I too get severe leg pain. There are times when I come up the stairs and have to rest my arms on the counter to wait for the pain to subside somewhat... this comes and goes and I can't...
Hi Firebabe... I totally understand where you are coming from - I'm sure most of us do actually.... Here's one for you - you can have your morning chuckle on this one... Both my sister and I have...
Hi Diane! I saw your post and had to reply (even though it is a tad old and I guess by now, you've had your biopsy). I too had one of those too and I was scared - more afraid than I'd been for...
What a warm welcome back!!! I posted then I had to leave again - we were gone for almost a week then it took another week for me to recover...lol We went to an annual "party/reunion" in my home town....
Hi Pat - You poor woman - I read your post about the pity party and hey, I've been to a few of my own lately...lol I too have a reunion of sorts this weekend and I've been super apprehensive about...
Hi there - I read somewhere that lupus patients do have problems with anything skin related. I too get a reaction to all bug bites. If I get a mosquito bite, it gets really red (you can actually see...
Hello All /community/emoticons/smile.gif I haven't been on-line for some time - how is everyone doing? I've missed you all /community/emoticons/yeah.gif ... Work and just life in general has been...
Hi there - Great idea!!! I am a 41 female, happily married with no kids (I have another condition that will not allow me to concieve - naturally anyway). I too was very active and outgoing - always...
Count me in too!!! My sister (who also has Lupus) said - are you ready for this - the fatigue is "mind over matter". I remember her complaining about being sore, tired etc and sleeping 24 hours a day...
Hey Tammy - Welcome!!! Lupus isn't the greatest thing to hear but at least you are getting close to an answer. The minute my doctor (GP) suggested Lupus, I thought - YES - that's why I'm tired,...
Hi Peachy... I remember my sister (who has Lupus) sleeping and sleeping (for entire days it seemed). Although I have always been a very sound sleeper, I don't sleep and sleep. My problem is that I...
Hey Sarah - I'm like that too. I just don't have the pep I used to. At first, I was like, what the heck is wrong with me, all I did was "..." and I'm burnt! Thinking back, it was a gradual thing....
Hello My3sons... I was having some troubles like you mentioned. Initially, when it was in my arm, they thought it was a pinched nerve. Eventually, I was diagnosed with Raynauds which is bad...
Hey Veronica... I totally hear you!!! Can't say I have the answers but... I understand what you are talking about . Today, I had to carry some boxes down stairs. They weren't overly heavy but by the...
Hello MissCali - I have a hard time sleeping some nights as well (like right now). Like someone else mentioned, I can be so tired yet can't sleep!!! I start thinking about really irrevelant things...
Hi Veronica - You know, it's our pride that makes it hard for us to ask for help. I was struggling to get stupid little things done that, prior to getting sick were not even a chore. I would push...
I too experience Hot Flashes - I think my Doctor said it may have something to do with the Lupus -- I am in early menopause (which I heard can go 10 years - can someone PLEASE tell me this isn't...
Ok Ladies - lets get you on the right track!!! Be Positive!!! I've read all the posts - and first and foremost - sweets ARE addictive. If you give in today - you are going to crave again tomorrow....
Hi there - My sister had 2 kids after her diagnosis - she was diagnosed when she was 20ish. She had her kids when she was in her 30's. She did suffer a couple of miscarriages though. I think both...
You know Hippi - I was wondering about my chest pains. You said... I agree about mentioning the chest pain to your doc, especially if it gets bad. Sometimes with lupus you can get pleurisy which is...
Hi Everyone - Thanks for replying - it makes me feel better knowing I have people who understand me here. My chest feels ok now (very little pain now) - My mood is back to the norm too...
Morning Everyone - Does anyone get real bad chest pains? Mine have been somewhat better lately (before I used to think I was having a heart attack they were so bad). Today I feel like someone is...
Morning Razorbacc - Welcome :) My sister and I both have Lupus. My sister was diagnosed 30 years ago at the age of 21, I was just diagnosed recently but I've had symptoms for the last 4-5 years. I'm...
Hi again - That build up of calcium made me think of something I had read recently.... check this link out to see if these symptoms sound familiar... It is a form of arthritis called psudogout (fake...
Morning Lou and a warm welcome :) I want to understand what you are saying here... So, you saw this surgeon and he said that you have an autoimmune problem... Did your GP send some of your bloodwork...
Hi Barb - Yes, I finally had some energy yesterday - thanks for asking. You say you are feeling under the weather too - what's going on? Or is it a case of the blahs? I get those...lol Your in-laws...
Hey Carol - You know, I can feel the pressure in my face too /community/emoticons/redface.gif - I actually went to the doctor today and forgot to mention it to him (my GP though). My BP was normal...
That's a great idea - start one!!! Like I said in one of my posts, I've read some of the postings from here and told my husband some of the things that people on this forum go through and that in...
I've noticed that bending over really has an effect on me. I don't know if my BP is up or what exactly is going on but if a chore involves a lot of bending over, I'm useless. I sometimes get a pain...
Hi Y.T. I take percocet for pain. Honestly - I can't remember the last pain free day. I agree with Carol - sometimes these pain meds help and at other times, I wonder when I took one! My prescript...
Barbie... I think it's your in-laws who are trying to lay a guilt trip on you... and I say - Don't let them!!! All I hear in your post about your conversation with them is..."we, we, we" and nothing...
Hi Leta - No need to apologize - we all need to "ramble" from time to time. I hear you about friends - I know I've lost friends along the way too. It seemed that when I stopped doing the...
Alicia - I just read your post and felt compelled to add my two cents. I too suffered from a bout of depression several years ago and it definitely put a strain on my relationship (we weren't married...
Hi Bitzi! You are so right - it's a terrible inconvenience!!! Btw, I was getting the same type of reaction here too when I'd let things slip because I was just too tired or feeling lazy too get up...
Hi Hippi - thanks for the support. You are right about having to remind our husbands from time to time too. I guess in some ways we can be our own worst enemy - when we try to do too much. I had a...
Hi Carol and Lisa - You are both right in that... We don't look sick but can feel absolutely drained at times and... that it really is up to us to make people understand. I too have been backing out...
Hi Everyone! I was just reading Barbara's post (stick to your guns woman!!!). Getting people to understand what we go through can be so difficult. Why is it that some of the people we are closest to...
Hey Kitty - You poor woman - this disease can be so frustrating. Well, it's Saturday morning so hopefully you're feeling somewhat better by now. Keep us posted!!!...
Wow!!! Thanks for sharing everyone - you can't imagine how greatful I am to have found you all!!! I've read every post. I guess some - maybe most of us had hints to what was to come (lots of...
Hi Diane - That's not good. I also find that when people don't believe us when we talk about the pain and how bad it is, it adds to the stress and that's the one thing we should avoid (it's almost...
Hello Everyone - There is a subject that I'm quite curious about and it's childhood illnesses. I have a great-niece who, at the tender age of 1 1/2 has been in hospital quite often with chest...
Morning Everyone!! I agree - I think we all had this lurking in our bodies long before we were diagnosed. As I read your posts, I now wonder if it was my bout with hepatitus that brought my Lupus out...
Morning e! I too get dizzy and have no balance whatsoever at times. I never attributed it to the Lupus, but who knows. Mine don't go on for days - it is usually gone when I get up the next morning....
Hey there - Most of us have also been diagnosed with Raynaud's too and my Rheumy told me to stay away from chocolate and coffee for that condition....
That's great news Jessica (about the job that is!). I think the sun can cause headaches and other issues as well. I think covering up may be the answer though. I don't have that type of a reaction to...
Hi Victoria - I too suffer from joint pain all over actually but often in my hands and feet. It sometimes get so bad that the area gets swollen, really red and hot to the touch. I can barely move at...