PS I used to have burning and red streaks with the MSG/Nitrates. I would swell in my face, legs, hands, etc. Felt numb. (Prior to diagnosis) The Chai tea would be a naturual diuretic and we know tea...
Hi Jenn, When my disease is active, my appetite decreases and I usually eat berries, fruit, water, yogurt, crackers/peanut butter, cereal bars, etc. I have been on prednisone (avg. dose 20mg) over...
HI, I have Severe Systemic Lupus and Sjogrens. My brother was diagnosed seven years prior to me with Chrohn's disease. We were both twenty-nine. He manages it but has not had to have major surgery...
Hi Lynwood, I think the stress of ending a trusted relationship with your Rheumatologist, skin cancer removal and your projects are screaming for you to take it easy. I know the projects are extra...
Great Spirit! I love the idea of having your team over to celebrate! Good for you....
I am still laughing about the "No More Casseroles" book. I got tons of chicken casseroles, lasagna, bagged salad and brownies to last forever. Just to think someone even gets that is too funny. I...
You are welcome. I am not that great either, but being sent from a fundraising page helped. (Tax Deductible.. /community/emoticons/smile.gif If you decide, just remember you are not asking for...
Hey Guys, I did the Lupus Walk in Atlanta and had a Firstgiving Page. First I was surprised at who responded and those that did not. My parents were the only family members that gave, with the...
Kitty, My resting heart rate was from 100-145 for years. I had inflammation in/around the heart. It comes with Lupus, and can also come from a low grade fever in other patients. My heart rate is much...
Hi Kitty, If you are doing fundraising for your walk check out Firstgiving.com. You can create a page with your story, invitation and picture! Set a goal for whatever amount you want to raise, it...
Kitty, I did not realize that you have a new SLE diagnosis. Wow. Hopefully the plaquenil and prednisone will work for you right away. I used to think I had to do everything at home and also with...
/community/emoticons/yeah.gif At times, I was so tired and sick that weeks turned into months of house/bedrest. My muscles had atrophy and I was so out of shape. My doctor told me to just walk to...
Hi Kitty, If you have never been to a walk, I encourage you to go! Walk whatever you can or just take it all in! We just had a walk in Atlanta and it was a beautiful day and event. Patients walking,...
I get burning in one or both of my hips and shoulders and there is no pattern. I notice it if I am walking on the treadmill and for me it lets me know that I have an increase of disease activity...