Rosie your ear, your words, your encouragment and the way you seem to comfort with your responses....I am so deep in misery and pain from what seems like being dealt a bad hand that when I hear...
barbara, one more thing your friends/family need you in there way and just may seem distant because its hard to explain snow or ice to a person from a hot zone.,,,,,,,,,they dont know. thats why my...
Barbara, you just made my heart bleed for you. That means you can smile for just a little while because I will hold your end of the burden. Last week I was told by my md a company would help pay for...
Thank you so much today is a slow day cold and damp in chicago but working things out....does it seem that your cycle makes you feel weaker? Hope you are ok today. SLE.RA.antiphospholipid syn,pulmon...
Thanks sharentrials for the warm welcome I am looking forward to looking up the website you made reference to. Every day I look for some way to cope with the illness and the battles that are related....
I can identify with half a day of joy and a week of pain/fatigue - my 11 year old had a soccer game I loaded up on spf put on my hat and tried not to get to excited but I missed his luncheon the next...
Emmy, your todays story more than equates to so many of my days and situations. Maybe you are open with your friends and family and they listen-hear-understand, that support is great. I am so...
Thanks Carol, even with the swelling in my hands and elbows I am finding today to be one of the better days that i have experienced in a while....thanks for being supportive, Aree...
THANKS PATTYLATTY AND HIPPIEMOM2, YOU ARE BOTH RIGHT i DO FEEL less isolated I think I need to deal with some inner healing and all of the positive things you guys state are encouraging me to tie a...
Thank you all for the warm receptions. I cry because someone understands, and not just says that they do. Alwaysrosie you put it simply if I cant control the waves I'd better learn to surf. I will...
have had lupus more than 16yrs, parent of one 11yr old child stopped work last yr lost mobility in certain joints . .i've tried enbrel/humira/plaquenil/methatraxate/preds/warfarins and every...