Thank you GreenBeans and Beave. I will go check out the ulcerative colitis section. I am on long term calcium + vit D for a long time, and sadly, my specialist here does not want to reduce my 7.5 mg...
I wonder how many of you lupies have osteonecrosis due to long term use / high dose of Prednisolone? I was diagnosed osteonecrosis on my left knee due to long term use + high dose (2 occasions) of...
I havn't been here for a long time, but I remember Butterflake. I am so sorry to hear of her passing....
Thanks, Lynnwiod...
I had a major flare with great possibility of lupus attacked my lungs as well as suspected TB recurrence. My rhumty later thinks that it's a major lupus flare, but my lung specialist said it's...
I am deeply saddened by the news. My deepest condolences to you and your family....
I am allergic to azathioprine, and I was hospitalized due to pancytopenia. The specialist withheld the med. I am now on cellcept and it's a magic for me....
Agree with Joy. Google "lupus affect eyes" and you will find loads of info. I would advise to consult your rhumty....
I have no negative reactions to Cellcept except some diarrhea initially. I responded quite well to Cellcept which controls my flare extremely well. I have serious reaction to Imuran. I agree with...
(((((((((((((( Hugs ))))))))))))))))))) Sorry to hear that you had a rude doc. He needs to go back to training and not practicing. Anyway, praying for you and hope you get the results you want....
I gained a lot of weights also due to hypo. It's frustrating. My doc told me that once my med starts kicking, I will be loosing weights....
Hi I am a 42 years old female with SLE for 25 years, and I was just diagnosed with hypothyrodism. I started Levothyrodicine three days ago. I have most of the classical symptoms. I am still in the...
I agree. U may need to ask something to pacify your stomach. I used to take omerprazole, which is a prescribed drug. I love Cellcept although it's expensive. I havn't had joint pains for ages since I...
Same as others' opinion. This is a strange dosage. I would ask for a second opinion as well!!!...
((((((Hugs)))))))) You will certainly be in my prayers. I hope things will go well with you....
((((( Hugs ))))) I hope the meds work for you. My thoughts and prayers will be with you....
If you are running a fever and chill, you need to see your GP. If you are itchy, it could also be yeast infection. It's best you go down to see the GP and get diagnose....
Agree. I suggest you go see your GP and get tested....
Hope she feels better and get well soon....
My rhumty instructed me to take Cellcept on empty stomach (before meal) because the body absorbs better. I have no problem so far with taking them on empty stomach....
First, did you wife put on any sunblock? Did she wear long sleeves or using an umbrella or wearing a hat to avoid the sun exposure? If not, she needs to start using it. I now reside in Hong Kong and...
I remember the antibiotics I took is only 3 times a day and for a full 7 days. I think mine is Famvir because I am allergic to acyclvior....
I had shingles two times. The first time was awfully painful. The pain lasted for more than a month or two. The second time was better. It still was painful but not as serious as the first time. I...
I agree with MaryAnn and Joy. There is no cure for lupus. It's a known fact, and I would be extremely skeptical on anyone who claims to have a cure for lupus. The symptoms can only be controlled and...
DO NOT EVER TRUST anything in China. There is a saying relates to mainland China..."Everything is fake except con man." No matter how cheap it is, if you want to have any parts of your body remain...
I am one of those with no tolerance on Imuran. I got serious sign effect, such as losing all my hair, extremely low WBC, low platelets, high fever, serious mouth ulcer, and I was hospitalized for ten...
My rhumty told me to take it without food because it absorbs better, since then, I take them with empty stomach along with all other mes. I am taking cellcept since 2008, but had taken it a year...
I agree with Amy and Lynnwood, you need to discuss with your doc before you taper down or stop taking it. It can be dangerous if you stop on your own and not taper down accordingly....
It is absurd that your doctor knows nothing about the symptoms you have. Can you change to another primary care? Blood in stool and throbbing pain in abs are some symptoms that need urgent care. You...
I am not sure about Medicare. Can you check or phone them and ask? My private insurance at first refused to pay for my ophthamologist bill because they claimed that my insurance did not cover eye...
What kind of meds are you taking, Shellybooboo? You've only mentioned pain meds, but if you are having lupus, the rhumty should prescribe you some other meds for lupus instead of pain med. Usually if...
I dun think it's silly at all. I think is absolutely sensible. I remember when I was young and had raynauds, I told my GP, but because she did not see it herself (by the time it was my appt time, my...
I used to take Imuran before taking Cellcept. I cannot tolerate the drug and I got serious reaction. I lost all my hair, had horrible mouth ulcer, dropped WBC, dropped platelet, higher fever due to...
I heard of Reiki, but never and will never try it. I dun hv any idea how it work. I agree with couchtater. There is no cure for Lupus at this moment. Any therapy or anyone claims would not make sense...
When I took it initially, I did have some mile form of diarrhea, but it went away later. I did not experience any flu-like symptoms. I agree with Lynnwood and Smurfyshadown, give your rhumty/doc a...
Have you tried Cellcept? It's an expensive drug, but it has generic now. It works pretty good on me....
Your GP is crappy. Go see a specialist. No malar rash DOES NOT mean you can't have lupus!!!...
Bill, u are so fortunate. No symptoms, no flare, and no medication!!!! That's a dream for me....
I also have high blood pressure, but it's under control by taking meds. I used to take Prednisole and Cellcept. Now I am only on Cellcept. I know high dose of Pred may cause high blood pressure, but...
Agree with Lynnwood. Lupus will only go inactive, but will never be gone. It stays with us for life. Mine is at the stage of inactive, too, and my ANA is negative, but it does not mean my lupus is...
Been doing great. My lupus is under control, which is very fortunate. I am so glad that after 19 years of Prednisone, I can finally stop taking it. My rhumty in the UK is wonderful. No docs have been...
I agree with with Latina_B. It depends on your situation and your weights. Your GP or the anticoagulant clinic will be able to tell you. My INR have to be between 2-3....
As to my knowledge, lupus anticoagulant does not necessary mean that you have lupus. You may have APS if lupus anticoagulant is found in your blood work. Sadly, I have lupus and have APS. If you have...
I had taken Thalidomide for one day and then stopped because I am allergic to this drug. The doc used it because I had TB got into my spine and nothing seemed to work on me at that time. This drug is...
Hooray!!!! Glad you can go home. Take it very very easy!!!!...
Lupus cannot be cured, but with appropriate medication, it can be controlled. As for the diet, I eat everything. I don't have any particular diet. I only know Alfafa sprout is not good for us, and I...
There are other auto-immun drugs besides Imuran that will deal with Lupus. I don't know about Imuran and warafin, but I am taking Cellcept to control my lupus and warafin to control my bloodclot. I...
rashes, fatigue, joint pains, brain fogs, sensitive to sun are pretty classical symptoms of lupus. As for your facial rashes, google lupus facial rash or lupus rash image, and see if it looks...
This is very good news. Hope she continues to do well....
I had tried those Chinese herbal medicine long time ago, and it didn't work on me. It gave me a flare and stayed in the hospital for few days. After two trys of Chinese herbal medicine, I stopped...