Something similar happens to me, my voice seems more strained or hoarse, when I mentioned it to my rheumy she said there is a joint in the larynx. So my guess would be it's inflammation from lupus...
[3] Saturday, April 30th @ 4pm Piedmont Park Come by and walk with us, there are a couple of us that will be there! [/3]...
Sorry I've not been around much, I do stop in and read post. I've had a busy couple of months and a couple of flares in between (joint pain, chest pain, pleurisy, muscle pain, fatigue, etc). My lupus...
Praying for Donna and her recovery and for Redrose family..... how devastating it must be to her family....
I am in shock and my heart breaks for Redrose family. So glad to hear Donna has improved some, prayers being said for both families....
It's also one of the safest meds to treat Lupus with the least side effects. I started out slowly too, 1/2 tab every other day and worked my way up to the full dose of 2 tabs a day within a month or...
Hi Stacy, Plaquenil is one of the meds used in Lupus that has the least side effects. The eye problems that can occur are very rare and are usually seen in higher doses (more than the typical 400mg a...
So good to hear from you Donna! Congrats on the weight loss! Take care and keep us posted on how you are doing. Love ya!...
I've had pleurisy for almost a year! I can't get below 5mg on Pred, actually should bump it back to 7.5 and the highest dose of 20mg. My heating pad and pain pills have helped a lot too. I hope you...
The pleurisy could be related to lupus. I had bronchitis earlier this year and during this I got pleurisy and it hasn't gone away. I've been on Pred since the end of January and can't get below 5mg...
In my experience my blood work doesn't always indicate a flare. It's just one of those weird things, of course mine is never ALL normal. I could be feeling ok and my blood work could be terrible then...
Hi Britt, I don't know how I missed your post, so I am sorry for my delay. Have you ever been checked for Celiac Disease? Your GI issues sound all too familiar to me. Starting in July 2002 I was so...
Hi Britt, I get little sores on my scalp from time to time. When I asked my rheumy about it she said you can get them with flares similar to sores in the mouth or nose. It's all a part of lupus...
Thank you Julia for letting us know. Barb, praying you are better soon and get back home! Love ya...
Awesome Donna, UGA Fan right here!!!!! Glad you had a great time and that the Dawgs won!!!! Take it easy and take good care of yourself! Love ya!...
Hi Mkayla, So sorry you are in a flare, I pray you come out of it soon. For me each one of my "big flares" have been different. With the first one being a constant headache that I could not get rid...
Sorry to hear about your increase in pain :shakehead: For me, MTX took a couple of months to kick in and start helping my joint pain but when it did I could tell a difference in my pain levels. I...
I could tell a difference in my fatigue levels after several days. I am glad you are feeling the effects so soon and hope it continues to work well for you....
Hi Penn, I too had a problem with mouth sores caused by lupus. Mine were also painful in part because I think I always had so many at the same time and they lasted for 2+ weeks. I had some paste and...
Barb, so glad to hear you are home! Hope you continue to improve and feel better each day! Take care...
((((( Donna ))))) so sorry you've been sick, hope you are feeling better each day! Love ya...
((((( JoAnn )))))) I don't know what it means but pray you find out soon and that it's nothing serious! You are in my thoughts and prayers!...
that is great news!!!! :wink:...
Hi Kat, You are most welcome! I know how overwhelming this all can be, but you are doing great, just keep asking questions and learning all you can about your illness. I also suggest you write your...
Hi Kat, It took several months for it to kick in for me and I am on 7.5 mg a week. Be sure to take it with your biggest meal. I usually don't have nausea unless I don't have enough on my stomach but...
Hi Donna, you have it again too, what is it with this stuff?!?!?!!? I don't feel it much as long as I stay at 7.5 I just hope I don't have to go up on it anymore. I guess I am more bummed that this...
Thanks Carol, JoAnn & Amy, I saw my rheumy yesterday and she wants me to stay on 7.5mg of Pred for a while. When I asked her how long this pleurisy pain could last she said she had a patient that had...
Hi Redrose, I had the nuclear stress test in March. When they injected me with the chemicals it made me feel VERY weird (chest tightening, etc) but it passed after a few minutes. The doctor / techs...
For those of you that have had pleurisy, can you tell me the treatment you were on and how long it lasted? I have had it since the end of January and been on 5-20 mg Pred. Right now I can't get below...
I am 38 and had a bone density test over a year ago and found out I have osteopenia in my right hip. I know I should be taking extra calcium but I don't :( Lupus joint pain also attacks my hips and...
(((( Pat )))) I pray you have a quick recovery and get to feeling better soon! Love ya...
I agree with Lynnwood, it sounds like you may need an anti inflammatory (NSAIDS) in the form of an prescription. This would be something you would take daily, there are literally hundreds out there...
I am so sorry to hear your husband abandoned you after so many years of marriage, I couldn't imagine what you're going through. You sound like a very strong person and I pray you will get through...
I seem to have this problem too. Will be seeing my rheumy the end of the month and have already added it to my list. This disease never ceases to amaze me and what part of the body it can attack...
((((( Carol )))))) you have been through so much, it was bound to happen. You are such a strong woman and such an inspiration to me, even when you're down you can always make me smile or laugh. I...
I've been on Pred daily since the beginning of Feb, anywhere from 5 - 20mg. I cannot seem to get below 7mg without the pleurisy coming back. But I don't see it helping my fatigue levels, maybe...
Amy, I've been thinking about you, how did your sinus surgery go?...
Jennifer, what a blessing to finally feel better! I pray it continues on! Thank you for sharing and giving us hope that one day our body will cooperate and we may feel somewhat normal again! Take...
You ladies crack me up!!!!! LOL Carol, I'm sorry you had to go to the ER and not feeling well. Hang in there my friend and know we are here for you and are praying and thinking of you! Love ya...
Hey Amy, Anxiety is the first thing that came to my mind too. Prednisone makes me feel jittery inside too. I hope you get to the bottom of this soon, I know it's a pain to deal with. Sending hugs and...
Hi Nikkey, welcome! So sorry you have to deal with two diseases' at such a young age. I am 38 and started having health problems when I was 31, before that I was never sick. It's been hard to adjust...
Hi Jennifer, just wanted to welcome you to the board! As you can see this is a wonderful place filled with supportive people! Feel free to ask us any questions you may have. I look forward to getting...
When I started Plaq I could tell a difference in my fatigue within a couple of days! I am glad you are seeing an improvement and I pray it continues! Take care and keep us posted on how you are doing....
((((( Carol ))))) fibro is the last thing you need! I pray you feel better soon! Love ya...
Lynnwood, I agree with Carol I would only mention the rheumy that had any sense! Maybe take some of your past labs if you want. You are in Atlanta right? There are a couple of rheumy's that I've...
Donna, so glad you are recovering nicely! Just wanted you to know you've been in my thoughts and prayers! Take care of yourself and keep resting! Love ya...
Hi Redrose, how are you doing? Give us an update when you are up to it. Take care, you are in my prayers....
Hi bekkah & Chris, I am so sorry that you both are dealing with this disease at such a young age. This is a great place filled with wonderful people who will offer their support, advise, etc. I hope...
Hi, we all know how hard it is to wait on lab results and doctors to make a dx, hang in there. I would be more interested in the other results that you are waiting on. But since your thyroid test...
Carol, you are right and I've been one of those that haven't been around much. I think I am where Ginny is at, lupus has been so active in me lately, I just felt like I had nothing to offer except...