Hi, I hadn't posted in forever either so not sure anybody remembers me.. I am still struggling and still have questions but I'm still alive . Good to see your post and wish you the best!!!...
I get those as you described and other sores in nose etc. and I do have lupus. I wish you the best!!...
Hi everyone, I haven't posted in very long time. I've thought of you all often but have had so much go on in my life. As some might remember I have SLE. In 2010 I was also diagnosed with CVID which...
Joy, In my opinion if I were you I would get in touch with your rheumy... No need to suffer like you are and if things do not seem right to you chances are they are not. I wish I had a pain med I...
Angelina, Just wanted to say I can relate to you... I too can't remember when I felt good :( This is such a frustrating disease.. Cathy...
Angelina, Hope your apt. went well.... I did not even know they could do ultrasound for inflamation, but then again I live in a very rural area lol just a once upon a time farm gal :) Regards, Cathy...
I too have mouth and teeth problems and hate to admit it, but haven't been to dentist for 5 years :( I guess I am doctored out... I seem to have dry mouth and get bouts of thrush quite often... Cathy...
Greetings Everyone!, I haven't been to this forum in so long and it was always so helpful to me. Things have been a mess for me the last 2-3 years. I think the last time I visited here the rheumy put...
Hi! I've been doing my MTX injections since last Nov. I had to be switched to injections due to malabsorbtion from the pancreatitis. I give mine in my thigh in the muscle it's not bad at all. My dose...
That was my first injection of the 20 MG I had been on 12.5 since Nov. No it didn't go well that's why I was trying to contact the doc :( Thanks and hugs! Cathy...
Hi! Rosie ;) Yes I did my first 20mg injection (myself) on last Tuesday. Nearly time for another one :( No doc never has called in fact I even called again Sat. am so after 5 calls I've yet to hear a...
Just wanted to stop in and say "hi" to all my lupie friends :) I as usual have been having a rough time. I seen my rhuemy a week ago and he upped the MTX injection from 12.5 to 20 each week. Needless...
Good Luck Sweetie and make sure you take the folic acid everyday :) By the way the shots aren't bad I just use a teeny tiny TB syringe and needle :)...
Hi! Good luck with your Methotrexate :) I never vomited either when I took the pills. I was switched to injectable Methotrexate on Nov.30 of last year, so I give myself a weekly injection. I usually...
Thanks for your replies ended up in hospital from sat. until today had to have PPN due to mal-absorbtion from the pancreas that lupus has messed up need prayers hugs Cathy...
Hi! Everyone, i hope all had nice Thanksgiving!! Now on to my questions maybe someone can help.. Do any of you get severe neck and head pain with your lupus?? I have horrible neck, head, throat pain....
Thanks I was just curious if meds would do that??? so far it hasn't mine but I was just curious in case it would suddenly be negative :) hugs! to all...
I was wondering something... Is it possible for ANA tests to be positive sometimes and then negative another time?? Do medications play a role in the results if it was positive and now negative??...
thanks everyone for all your support!! I'm in such trouble now with the lupus and NO rhuemy that its not funny just got back from the ER. I just hope all we are doing sparks the interest of someone...
Thanks for your replies. I am the standing gal my mother in the nursing home is who is seated. I feel like I'm dying everyday!! The article was much longer in the actual paper and real informative...
Hi1 All still feeling horrible, but the County paper did a wonderful story for lupus awareness month in fact in the actual paper it was feature story :) Here is a link to it online however it only...
Thanks Everyone I will let you all know how it goes! I was surprised none of the lupus organazations mentions awareness month Hugs! Cathy...
Hi! everyone as we know October is Lupus Awareness Month. Does anyone know where I might find a press release about this as my local newspaper is doing an interview with me tomorrow to help raise...
I found more info. out this am. The place where he was practicing without warning Let him Go!! He was actually there in the middle of seeing patients when this happened!! He was the ONLY rhuemy in...
thank so much for your support and they gave me NO hint of anywhere to go??? Guess just left all his patients hanging... I don't understand Hugs! Cathy...
Hi! Everyone, Well as you all know I have a great rhuemy which took me forever to find and I'm on chemo (MTX) for it. I was to have an appt. Tues. the 25th at my rhuemy. Well, late afternoon a...
Hi! Everyone I got my results today!! Doctor didn't want me waiting and worrying over weekend. MRI is fine /community/emoticons/yeah.gif nothing to worry about its just from my lupus I will just get...
Well I survived the MRI lol Now just waiting.... I ended up taking 3 MTX last night will take 3 tonight don't suppose it will make much difference Hugs! Cathy...
Hi! Everyone, I had my appt. Monday with my neurologist and she of course wanted another MRI with contrast which I get done at another place rather than hospital I had it. She thought the resolution...
You guys are super!! What a support group I have!! Emmi that was funny lol You bet I'm not going to settle for just this answer from the other day. I know I'm allergic to CT contrast hopefully the...
cured4real? That was funny lol Maybe I did as a child and it took that long to show up lol Maybe its just some artifact or malfunctioning MRI. Yeah seen that without contrast Hugs! Cathy...
Thank you Kristen and all!! I think I am going to put a positive spin on this as I like Positive so I am going to say I'm having 2nd MRI Wed. to rule Out Tumor :) I mean why not they could be wrong...
Yes Okie I agree with you!! Previous brain MRI's were ok.. Could it be a mistake?? I've been trying to search and see if lupus lesions are dark but no luck... Hugs! Cathy...
Thank you all for your support and kindness it is greatly appreciated :) I even asked if they were sure its not a lesion that sometimes us lupies or MS patients get but they said no. See I'd had lots...
My doctor called me personally at 5:30pm my time to tell me the news. I see the neurologist on Monday and will have another MRI Wed. am at 7 with contrast to define the edges better. It is on brain...
Hi! Everyone I am scared to death I had an MRI of brain and it is showing small dark area in center of brain. Has this happened to any of you?? I've been on Methotrexate. Hugs! Cathy...
I think the MTX is going ok however I get labs Monday and they think I may be a 5 pill gal if it causes too many side effects. They also think the burning is the lupus :(...
I suffer from low potass and magnesium which no one can figure out....
I get twitches and tremors too, so I don't think we are CrAzY lol...
Hi! everyone I was wondering if anyone has ever had this wierd thing happen to them?? Every once in awhile I get this burning sensation from my navel up through my chest it don't feel deep and its...
Glad you done well!! They do that surgery here on an out-patient basis they were wanting to do that on me however I keep having too many lupus complications lol Take Care!!...
If I took a picture how would I post them here?? Now one place states blisters are common side effect while another place states life threatening?? Talk bout confused!!! Here is a copy and paste...
thanks so much i hope i can hang in there and i hope im not dying or something /community/emoticons/sad.gif was going to take pictures and my batteries dead in camera /community/emoticons/sad.gif ...
Talked to my rhuemy he said was sure it was not from methtorexate and to take my dose wed. night as scheduled and was glad my pcp initiated biopsies. So I wait /community/emoticons/sad.gif Biopsies...
Thanks so much for your help!! I decided to Google and guess what I am finding a link to this and SLE I had colon biopsy 10 years ago and was negative for Celiac so I bet it is from my SLE and I was...
No havent talked to rhuemy yet as it just happened over weekend. Even though I don't wish this on anyone I do hope one of my fellow lupies has had something simular to this...
Hi! Everyone I am up to 15mg a week now on my methotrexate do have some side effects but all in all seem to tolerate it well. However I have now started getting itchy water filled blisters in various...
Hi! Sandpoker, I was going to post about chest pain when I read yours. I too keep getting upper chest pains but it goes away when I lay down but it scares me. Im on methotrexate and I dont know if...
thanks guys i did go to my doc on monday and he done chest xray and didn't see anything to worrisome i do have copd then of course i did read the scare sheet with the methotrexate and have myself...
Hi! Everyone I keep feeling like I can't take in enough air do any of you have this?? Freaks me out as I have myself in a frenzy thinking its that rare lung infection from the methotrexate despite...