MedicalNerd I understand your situation if you are self treating. I unfortunately have no experience with herbs.Hopefully someone else will be able to give you some guidance. There is a wealth of...
MedicalNerd Yes you are right in that you can’t kill Babesia with antibiotics alone. I took Mepron initially and later switched to Malarone....
The explanation was that Babesia replicates quickly and is not a good candidate for pulsing. I was diagnosed in the acute phase of the infection so my treatment was very aggressive....
My LLMD felt strongly about not pulsing Babesia meds... he was comfortable doing so for Lyme and Bartonella....
I have had to get several meds compounded in the past since I am celiac. I haven’t had any luck in getting them to cover anything so far. I spent over an hour on the phone explaining the situation...
My labs these days are all fairly normal except my ECP (Eosinophil Catatonic Protein) always comes back High. Have been told it could be parasitic or allergic response?...
dcd thanks for your reply..definitely think I will be adding the neomycin to the Rifaximin...I lucked out and my doctor was able to give me 2 weeks worth of samples so I didn’t have to spend$$$$$$ on...
dcd when you take Rifaximin do you take it alone ? My doc just prescribed it for me but a couple of years ago I took it with neomycin...since I am more sibo C than sibo D. Being celiac puts me at...
I bought mine at Amazon. The brand is Inspired Nutrition. My LLMD suggested this one....
That was the starting dose, 1/4 scoop,recommended to me. Definitely sounds like it helped your friends EBV titer. That is encouraging! Let us know if you decide to give it a try. Best of luck!...
My LLMD is a big fan of monolaurin. . He has prescribed it for me although I haven’t started it yet. He did explain to me that it can cause quite a herx since it has both anti viral and antibacterial...
What are these videos of Tucker Carlson on Fox News doing on the Lyme forum? So much for not bringing politics here anymore....
Kitkate. Good news!!...
Yes I can surely relate to that . I find at the end of each month like clock work I will have a worsening of many symptoms that last a day or two. It will not always be the same symptoms and this can...
The best advice I got was to stay hydrated both before and after the vaccine. Let yourself rest if you need to and take Tylenol AFTER if you have any discomfort.I received My second Pfizer shot two...
I believe Tylenol is fine..the advice was not to take anti inflammatories sch as Advil as they may have an effect on the immune response. Haven’t heard anything about Benadryl. I took Tylenol after...
HeartsinPain...I had fibroids many years ago and procedures were not what they are today. I had surgery at the time to remove them and never had a reoccurrence. I did not get a hysterectomy at the...
Cignet when I was being treated for Babesia I definitely suffered from the Mepron blues!! I later had to retreat but chose Malarone which I tolerated much better although I was not given the high...
I along with my husband received our second dose of the Pfizer Covid vaccine last week. We discussed the subject at length and decided it was the right thing for us to do. This is a very personal...
dcd thanks so much for the info! Those prices are terrific..as I said the last time I took it my insurance covered the entire cost. Oh well that was then... now is now😢 what about probiotics while...
I have also suffered from SIBO...was tested last time but doctor wants to give me Rifaximin now due to symptoms because I would have to wait three months for the test!!! Is that a good idea? Also dcd...
Cignet when I had Babesia I had shivering chills, so cold I had to constantly turn up the heat or have lots of blankets. Sweating at night was just as bad. I also had terrible pain in the sides of my...
I was given Xanax to take “as needed”a couple of years ago. I took it several times and did not like the way it made me feel. Have you ever tried magnesium? That has helped me....
That’s not necessarily a true assessment of his views. He embraces the idea of all vector borne diseases., that infection may be the trigger for autoimmune.I think it is unfair to be so critical of...
I appreciated Dr. SP’s book as well as those written by many others. Since this in not a one size fits all disease and every patient is different I applaud each and every doctor for taking the time...
Thank you all for the valuable information. I will certainly look into TMAO...have an appt with my cardiologist next week. I wasn’t aware that aspirin had antimicrobial properties but interestingly I...
Yes the aspirin is for heart disease...family history and elevated cholesterol...familial hyperchloesterolemia was the diagnosis...lucky me🤢..always was active and ate pretty much a Mediterranean...
Thanks to Girlie and Garzie for your input. Yes I am on a baby aspirin for the anti-clotting effect. The only time that my CRP and ESR were elevated was when I was in the beginning of my illness with...
I agree with you potsnpans...
I have been on daily aspirin for the past six years on the advice of my cardiologist. Since aspirin is anti inflammatory I have often wondered if it suppresses the immune system to some degree. Also...
Girlie, yes Dr Phillips is one of THE best LLMD’s! He is a true advocate for us all as well as a compassionate kind person....
I can attest to the fact that steroids definitely contribute to ulcers. They are very hard on the stomach. Some doctors prescribe PPIs along with the steroids to offer protection for the stomach. Try...
I think that is a wise decision to try and eat clean and stay away from coffee. Coffee is a definite stomach irritant. Sometimes it is the simplest things that we do that make a difference....
I had to quit Rocephin after seven weeks due to gallbladder issues..didn’t feel any different on it..then switched to IV Doxy for several weeks...felt the most improvement on Ceftin(oral) and that...
I did the Mepron Zithromax combo for three months . I started feeling better early into the treatment. They caught it early but I had periods of flares and relapses.I then transitioned to malarone by...
I was not treated specifically for Babesia with heparin but while I had a picc line during my Lyme treatment I had a daily flush of the line with heparin. Since it is a blood thinner(anticoagulant) I...
When I had a picc line for Rocephin they checked blood labs every week and that arm developed bad scar tissue which eventually got better....
We decorated inside including tree and outside a few days before Thanksgiving! I always love the holidays and was determined to not let this year put a damper on my mood! And lots of Christmas music!...
Yes I see you had mentioned two different tests for SIBO..not sure if I originally had both...it was awhile ago.. will definitely look for additional testing facilities thanks for the help!!...
saraeli No my esinophils have always been normal. I always suspected that I have suffered from MCAS though..reactions to many things meds, food etc . Is there a reliable test for that or is it based...
Astroman... last time they ran H Pylori it was a breath test ..are you familiar with that? Prior to that test I had a blood test to detect it.. I wish I was able to test for Sibo now but the hospital...
My labs for this test repeatedly come back high. The lab that tests for this has a normal range of <17.7. Mine are 34.3. I have received different explanations from allergic reaction to this being an...
Astroman thanks so much for the additional info. I do have a dr that I’m sure would be willing to do the testing and that would be nice to get it covered by insurance.!...
WBF ..thanks for your reply Garzie thank you for the explanation and info..it’s more complicated than I thought but certainly worth investigating...
I have never been tested for Candida ....not to sound completely stupid but is that a blood test? I notice the subject comes up here a lot. I have been diagnosed with sibo before but now with COVID...
MedicalNerd. Just curious how you were treated for the pancreatitis? I have had several bouts that mirror your exact symptoms. They keep giving me antacids and PPIs that do nothing....
SickKitty I also did home infusion of IV Rocephin with a picc line. All of my costs were covered by insurance...including weekly visits by an RN...she would change the dressing as well do blood work....
What??? Is this for REAL?...
IV Rocephin for Lyme, especially neuro Lyme is used frequently....
Girlie....😀thanks for sharing that!!!...